tag:blogger.com,1999:blog-5348155237652648174.post4550086100304836533..comments2023-10-02T03:16:48.356-05:00Comments on "EB"ing a Mommy: Venting...Courtney Rothhttp://www.blogger.com/profile/01781571778358173399noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-5348155237652648174.post-21981707902296665772009-10-28T13:16:40.554-05:002009-10-28T13:16:40.554-05:00Hey Courtney,
Still praying. I know I can underst...Hey Courtney,<br /><br />Still praying. I know I can understand a lot of what you are going through (watching your kid suffer, lack of sleep, isolation, not being able to hop in the car seat and show your baby off, wondering where in the heck fall went because you've missed it all sitting in the house), but I cannot begin to imagine how you feel sitting in that hospital room watching Tripp have to breathe through a tube. YOU are amazing, strong, wonderful. Not perfect. Not superhuman. Not an inspiration (well, yes you are, but don't you get tired of hearing that???). You are lovely, precious, the BEST mom. And you are right, we can't take one minute of it for granted. <br /><br />Vent away, sweet girl. It's not complaining. It's not negative. It's a release, and you HAVE to do it. Nobody is gonna judge you for that. And if they do, send them my way, and I'll bust out my inner Rosanne on their sorry tails. <br /><br />Love you!Patricehttps://www.blogger.com/profile/06865294910862077812noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-72076031360457234942009-10-28T11:51:27.859-05:002009-10-28T11:51:27.859-05:00Much love and prayer! You are wonderful parents an...Much love and prayer! You are wonderful parents and strong and brave! We'll ask angel Zoey to visit Tripp and bring comfort....Ryan n Heidihttps://www.blogger.com/profile/07304418346280287659noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-38265663156062068562009-10-28T06:46:06.218-05:002009-10-28T06:46:06.218-05:00Hi to Tripp's family--I'm coming over from...Hi to Tripp's family--I'm coming over from Jonah's blog and just wanted you to know that you have another one added to the prayer warrior group for Mr. Tripp. Thinking and praying for you guys often. I do my praying when I'm driving (which is a lot) so his name is getting dropped to God a lot these days. Just thought you should know. A stranger in ArkansasLexiehttps://www.blogger.com/profile/15465536157664382937noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-38447178933814759222009-10-27T22:38:33.243-05:002009-10-27T22:38:33.243-05:00Court!!I admire your strength so much! Your the mo...Court!!I admire your strength so much! Your the most amazing mom I've ever known! I can't even imagine what you go through daily. I wish I could take it all away from you and bare it for you. I love you and your precious little man. Wish I could be around to help on those sleepless nights. Love youUnknownhttps://www.blogger.com/profile/15102817113566975496noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-51079943644121585072009-10-27T20:57:25.298-05:002009-10-27T20:57:25.298-05:00Courtney -
My daughter has RDEB and I happen to co...Courtney -<br />My daughter has RDEB and I happen to come upon your blog looking for information and support because as you know being an EB Mom is not easy. Please hang in there. I ched your blog for updates every day and pray for Tripp. Please know it is okay to be frustrated, sad, mad and thankful -- and to be all of them at the same time. Hang in there and know that my family is sending their support all the way form Minneapolis, MN!Robert and Kim Carlsonhttps://www.blogger.com/profile/00838812420401027550noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-40207194966414217272009-10-27T18:24:39.216-05:002009-10-27T18:24:39.216-05:00Oh. My. Goodness. How do you not just eat him up w...Oh. My. Goodness. How do you not just eat him up with those chumky cheeks? He is a DOLL! I have a seven month old with the same cheeks and I just love them.<br /><br />Thank you for your honesty. We have eight kids, my husband has been out of work for a year and we are about to lose, well, practically everything. I know that is nothing compared to having an EB baby, but what I have learned through all this is that you do not need to feel guilty for being sad, mad or disappointed. Things happen that, quite frankly, suck. And, you definately don't have to apologize for feeling that way.<br />Many blessings to you and that sweet little one.Courtneyhttps://www.blogger.com/profile/11693340280133115539noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-18770252372892926002009-10-27T15:26:08.311-05:002009-10-27T15:26:08.311-05:00Courtney, wow - how could we expect you to be posi...Courtney, wow - how could we expect you to be positive all the time? What you are going through, I can't even imagine and great, great are Tripp's, Randy's and your rewards in heaven. It will be worth it. God gave His son as well and He understands better than anyone in this world can what you are going through and I'm sure He understands your anger, pain and exhaustion. Vent went you need to and rejoice when He calls you to. You and Randy are an inspiration and testament to what Love is!Jen Burnshttps://www.blogger.com/profile/01792168311245374351noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-18102930824291207582009-10-27T14:11:45.569-05:002009-10-27T14:11:45.569-05:00WHAT IF...
What if God himself came to you and sai...WHAT IF...<br />What if God himself came to you and said, "I need a favor. For all I have given to you and for you, I now have a request of you. I need your help. You see, I have created this beautiful Heaven for all of my children. My goal was that I would be able to enjoy ALL of my children with me together in this perfect place that I have created. However, so many of my children are getting lost. I have entrusted them to not just their parents, but to the entire world in hopes that through love and compassion they would ALL return to me. Many times I have had to make REALLY tough decisions for the greater good of all humankind. Many times I send angels out. I'd like to send one to you. You see, angles are able to cover so much ground because of their massive wings. They aren't at all like humans. They are perfect in every way and under my complete protection from harm, so you won't have to worry about that. <br /> BUT, they require ALOT of care. It isn't easy to care for an angel, but the better care you take of the angel, the more lives you will be saving. I have watched you so closely through the years and though you may feel unsure of your capabilities, you are fully equipped with all that you need. You have impressed me so much in such a short time that I think you will be a perfect fit for my angel. <br /> There isnt much time for your decision. I know its difficult to accept this invitation not having any idea of what this will be like, but I will provide everything for the angel and everything you need to care for the angel as well. Can I count on you to help guide my children back home to me?..................................Thank you.<br />One more thing. This is MY angel. Treat him as you would your very own just as soon as you get him. I must go now, there is plenty to be done. I'll let the angel know that you have accepted and I'll give him my instructions. Oh, and be gentle. He'll be nervous at frst too but I know that as soon as he meets you he'll know that I've made the perfect choice too. Sometimes my angels are a little apprehensive too. They know how much care they require on earth but they know that I will protect them and they will be returned to me good as new. <br /> What's that? Oh, no, don't worry. (he starts to laugh) An angel has NEVER returned to me less than perfect. You have my blessing and you have the love and compassion of the entire world to help you. And if you ever have any questions, just ask. If you don't hear me, don't worry though. I NEVER take my eyes off of my angels. I will always respond to your questions. Most of the time, I'll just take care of them for you, rest assured of that. Thank you again. <br />"But wait Lord," you said. "When do I get this angel and what do I tell my husband, and my family? What, what if my husband isn't ok with me taking care of an angel?" <br /> "You will know it the moment your angel arrives. This is my request of YOU. Those that love you will support you. I took great care in the search for your husband. He is a suitable mate for you and so he will be suitable in helping you care for the angel. <br />Once the angel arrives, he will begin his assignment immediately and all those who know HIM will know ME. Through your care, he will work more efficiently. The more love and compassion you show the angel, the brighter he will shine. You will see him SHINE and this is how you know that he is getting exactly what he needs. <br /> And for being so accepting, I want to offer you something as well. I will send the angel to you with many offerings. <br />Through the angel, I will allow you to experience GREAT MOMENTS OF PEACE as they are in Heaven, GREAT MOMENTS OF HAPPINESS as they are in Heaven, and you will experience true COMPASSION from strangers. I will allow you a clearer vision of the path to Heaven as well. For those that follow you, will come to me.Jaymehttps://www.blogger.com/profile/08881184005062432216noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-35770801679302685652009-10-27T09:53:40.336-05:002009-10-27T09:53:40.336-05:00Courtney,
I only found your blog this last week bu...Courtney,<br />I only found your blog this last week but I have come to love your son and I am suffering as well. I do not have the answers...no one will. Please continue to look for peace in the love you all share. My prayers and my heart are with you. <br />...maybe our loving Father impressed on your surgeon that the simple procedure may have made things worse...Jenniferhttps://www.blogger.com/profile/15910482781487167063noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-87936975496499923312009-10-27T08:57:14.860-05:002009-10-27T08:57:14.860-05:00sharing your pain is good. Lean on Jesus b/c he ha...sharing your pain is good. Lean on Jesus b/c he has endured so much pain also, far more than we can ever imagine. he knows all your heart aches. Hearing your emotions makes me pray even more fervently. God entrusted you with one of His precious children and I know you are so grateful for that. <br /><br />"Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ. Through him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God. More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.<br />Romans 5:1-5Anonymoushttps://www.blogger.com/profile/04078041154319272042noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-41725104585186590712009-10-27T08:47:56.731-05:002009-10-27T08:47:56.731-05:00I just wanted you to know that Tripp has a new pra...I just wanted you to know that Tripp has a new prayer warrior this morning. It is the very BEST thing that I can do for you, your husband, and your precious son. Hang in there and know that you are absolutely normal to feel all the things you are feeling. God knows and will be everything that your family needs to get you through this. Let Him carry you.<br />Hugs from Florida,<br />Terah<br />PS I found you through Jonah. Praying hard for both very precious boys.Terah722https://www.blogger.com/profile/04949625599509136251noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-9776092021717718532009-10-27T07:11:32.971-05:002009-10-27T07:11:32.971-05:00Hi Courtney:
So glad that you could vent. It wil...Hi Courtney:<br /> So glad that you could vent. It will make you feel sooo much better. We know exactly how you feel. Please contact my daughter Meg Turnquist. Her daughter Leah is a JEB baby with a trach too. Leah had to have it done when she was 5 months old too. She is now 8 months old and doing very well. It is tough but God will give you the strength to get through this. Take care and remember you are not alone. God Bless Tripp and your family. Love Leah's Nana Linda Ainsworth lea252@aol.comLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.com