tag:blogger.com,1999:blog-5348155237652648174.post6101505121856699937..comments2023-10-02T03:16:48.356-05:00Comments on "EB"ing a Mommy: Bear with me... Courtney Rothhttp://www.blogger.com/profile/01781571778358173399noreply@blogger.comBlogger98125tag:blogger.com,1999:blog-5348155237652648174.post-51530111242292256442012-10-06T05:21:42.116-05:002012-10-06T05:21:42.116-05:00So excited and happy for the Wonderful things happ...So excited and happy for the Wonderful things happening! I think Tripp is smiling down on you :)Tacyhttps://www.blogger.com/profile/15578678301670646400noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-23925293886207668052012-10-04T22:59:59.481-05:002012-10-04T22:59:59.481-05:00So proud of you and think of you and Tripp often!So proud of you and think of you and Tripp often!Jennhttps://www.blogger.com/profile/14223924659075745498noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-7513969817477099392012-10-01T23:23:06.478-05:002012-10-01T23:23:06.478-05:00Dear Courtney,
I'm a mom myself, I know how ...Dear Courtney, <br />I'm a mom myself, I know how heartbreaking it is to see your child in pain, and yet you have to see it everyday and still be strong. That smile on your face in each and every one of your picture with Tripp tells me how strong and grateful you are for having him. I hope you still have that smile<br />I'm the 95th person commenting on this post and lives a continent away from you, so believe me there are a million of people out there who feel for you and pray for Tripp :)MSOhttps://www.blogger.com/profile/12094925721888973437noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-70392417069635808252012-09-30T01:22:07.153-05:002012-09-30T01:22:07.153-05:00I can't imagine how hard your struggle must be...I can't imagine how hard your struggle must be to move forward, but yet yearning for the past at the same time -- like being in quicksand. I just hope you never forget that your baby watches over you, and just like you gave your every waking moment to him, he watches and waits for your happiness. Please know that you honor him and his life with your good times, and I envision him as some sort of heavenly event planner, making all sorts of wonderful things cross your path, in the hopes they will bring you joy.<br /><br />When you get to meet Elmo, it will be so wonderful. I think many many people view you in that same way -- you are a hero, and so many people will be thrilled when they get to meet you. You are, from now on, your own style of celebrity. You have touched so many hearts and I know you will continue to do so.<br /><br />Congratulations on your engagement, your new house, and the new baby coming to the family. But mostly, congratulations on the recognition from DebRA. You deserve it. <br /><br />Best wishes in all that you do.Toniahttps://www.blogger.com/profile/14818800542809585045noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-36262911376518150222012-09-15T04:34:56.355-05:002012-09-15T04:34:56.355-05:00I have been surfing online more than 3 hours these...I have been surfing online more than 3 hours these days, yet I by no means found any attention-grabbing article like yours. It is beautiful value enough for me. In my opinion, if all web owners and bloggers made good content as you did, the web will probably be a lot more useful than ever before.<br /><br /><a href="http://www.networkers.in" rel="nofollow">Software Application Development</a><br />Traffic Pulse Indiahttps://www.blogger.com/profile/09564036978734837138noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-45661182923567280052012-09-14T18:48:46.777-05:002012-09-14T18:48:46.777-05:00Every time I read one of your posts I cry, not bec...Every time I read one of your posts I cry, not because I pitty you but because you are so open and I can literally feel the love you have/had for Tripp. I think it's awesome that you are going to counseling and getting in the gym, both are such positive ways to help heal your heart. I am so so so excited about all of the good things in your life. Prayers for you and Matt!!!!Jessicahttps://www.blogger.com/profile/02613363627520107690noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-61818292205875094282012-09-14T18:44:23.262-05:002012-09-14T18:44:23.262-05:00I love you Courtney..for so many reasons. You give...I love you Courtney..for so many reasons. You give me strength. Thank youShanshttps://www.blogger.com/profile/16645349323133055718noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-33516635764845463232012-09-13T21:21:26.328-05:002012-09-13T21:21:26.328-05:00I would like to offer my congratulations on your e...I would like to offer my congratulations on your engagement/wedding and on the honor award. You are an amazing mother and deserve this recognition.<br />I have followed your blog for a very long time. I remember Tripp's first birthday. What a happy little man. I want to say that your raw honesty of your journey is moving, emotional, and motivational. I feel pain, I feel anguish, I feel longing. You did a beautiful job decorating for Tripp's 3rd bday. Elmo is such a special furry friend. My daughter has the same little plastic hand sized one. I am continuing to pray for you as every day is a chance of putting one foot in front of the other. <br />I have no advice. I have no offer of books to read. I have not walked in your shoes and I'm not a trained counselor. But, I am a sister in Christ and I humbly offer my prayers of blessing on your new marriage, prayers of blessing on the beautiful love you have for your son, and prayers for mercy and peace when the moments are the hardest. You are an inspiration and a hero mother. You packed more love in to 2 years and 8 months then many moms do into a lifetime. Bless you for that! They say that a woman who loses a husband is a widow. A woman who loses a parent is an orphan. But there is no name for a woman who loses a child. Maybe it's to painful to give a name. Maybe it's to unnatural. But it happens, and more often than many people know. Social media is spreading the word of such things more and more today. <br />I am now praying for a little boy named Easton. Just like I did for Tripp. EB is such a nasty, awful disease. I hope that all you have done and do will help find a cure for this. No baby should still be suffering in today's world of expensive homes, cars, such intelligent minds and science materials!<br />God bless you, sweet Courtney! God bless your sweet Tripp. God bless all the people that loved and cared for Tripp! God bless all you will do in the future so that no parent or child will have to suffer like you two did. May you see the rainbow after the storm you are weathering right now. I can only imagine the beauty that little Tripp is seeing right now. If he truly knew you like you know him (that little man could like up a room with his smile!), then you know he is so excited for you and wants you to have another man to take care of you. I believe he has comfort in knowing that he didn't leave you alone. So sweet! Just like the Tripp you told us about. Always a sweet, sweet gentleman, even in his last moments. <br />Love and hugs from TX.I am Nicole...https://www.blogger.com/profile/10744454294544577435noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-64901004683217401322012-09-12T21:44:53.863-05:002012-09-12T21:44:53.863-05:00I was just thinking about you and Tripp today and ...I was just thinking about you and Tripp today and thought I would pop on to see if you had posted anything recently so I'm late to the party but I just want to say congratulations on your engagement!! The picture with the butterfly is just amazing and such a beautiful sign from God and Tripp.<br />Moonstonemamahttps://www.blogger.com/profile/02111361893529654570noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-81652371065771581422012-09-12T16:32:25.147-05:002012-09-12T16:32:25.147-05:00Courtney,
Was curious...with the new changes in ...Courtney, <br /><br />Was curious...with the new changes in your life, engagement, being an aunt, etc. Do you and your fiance plan to have children? I know that's hard to think about with the loss of a child, but was curious.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-43789273739926947332012-09-11T23:38:45.221-05:002012-09-11T23:38:45.221-05:00You folks do not know me, but I have been followin...You folks do not know me, but I have been following your blog and the blog of several others that you also follow regarding children with EB. I have been managing the Prayers for Cheyenne Rae FB page and also have created her website at www.prayerforcheyenne.com. ON her FB prayer page it was shared with us a FB page for this little guy with EB. He was born at Auburn Memorial hospital had never seen a case like this so he was transferred to Crouse, where the doctor had only seen 2 in his entire career.<br /><br />I just wanted to share this with you, as I see this family needs your help. I am also going to send a message to Cortney and Jonahs mommy...you guys have done so wonderful with your little ones and each other, I pray you all will be able to bring some comfort to these folks. God Bless. <br /><br />https://www.facebook.com/SupportBabyEastonFriedelMelhttps://www.blogger.com/profile/10483348234463326774noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-32140011410642497932012-09-11T17:54:10.016-05:002012-09-11T17:54:10.016-05:00Earthly good byes are so hard to say till we turn ...Earthly good byes are so hard to say till we turn our thoughts on the heavenly hellos.<br />May God richly bless you with peace.<br />Just checking back for any new posts you may have written.<br />I’ve been a follower on your blog for a while now and would like to invite you to visit and perhaps follow me back. Sorry I took so long for the invitation.<br />Covnitkepr1https://www.blogger.com/profile/14155059748601952927noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-23333178815617890442012-09-11T16:02:54.501-05:002012-09-11T16:02:54.501-05:00Hi Courtney I've been following your blog for ...Hi Courtney I've been following your blog for a long time now. Your a inspiration for alot of people. There's a lady named Amy freidel from Florence,al she has a 19 day old baby named Easton with eb. Fighting hard for his life. Keep sharing your warmth and love and it shall surround you. Anonymoushttps://www.blogger.com/profile/09917570706252169056noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-22942708742577838562012-09-11T11:32:23.262-05:002012-09-11T11:32:23.262-05:00You absolutely deserve these honors...each of them...You absolutely deserve these honors...each of them. Everything you write makes me cry. My heart breaks and aches for you. But somehow through the sadness, I'm crying tears of joy. I feel like you bring out the cheerleader in me again-hehe. Since Tripp has passed on, I've wanted nothing more than to see you happy and getting all the good things in life you deserve. So happy to see what is happening in your life! And to go to Sesame Street...that just is the icing on the cake. That did it this time, bring on the waterworks! So much respect for them to invite you there. And the fact that it would make your LIFE as you said. Well, that just makes it that much sweeter! Still praying for you!jenremondethttps://www.blogger.com/profile/02757840044890838457noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-56901301157497801932012-09-10T10:20:05.580-05:002012-09-10T10:20:05.580-05:00I hope that one of these days I'll be able to ...I hope that one of these days I'll be able to read one of your posts without crying. You are such an inspiration and a model of strength. But I sense that you feel very weak by allowing yourself to feel sad. You have no idea how strong you are for holding yourself together and pushing forward. I am truly in awe of it. And I know Tripp is so proud of you and proud to have had you as his guardian while he was here. Keep pushing on and congratulations on all of your good news. Celebrate those happy times! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-90507216643535465962012-09-10T03:34:38.175-05:002012-09-10T03:34:38.175-05:00Great newsy post! You are doing just fine, Courtn...Great newsy post! You are doing just fine, Courtney. Step by tiny step, you are getting used to living without Tripp and are finding happiness here and there and helping make a difference to others and recognizing others who make a difference to you. Yes, you are special! Congratulations on the Debra award! I hope you post pictures of each step of the house you are building and keep your wedding plans managable so you aren't exhausted and crazy by the time your wedding day rolls around.Khttps://www.blogger.com/profile/07033823622722768455noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-34006999902549817322012-09-08T19:13:13.178-05:002012-09-08T19:13:13.178-05:00As always, your post brought about a wave of prett...As always, your post brought about a wave of pretty much every emotion within me. I am so happy to hear about the great things in your life, and I still think about you and Tripp EVERY single day. His story has changed my attitude in so many ways. Thank you for sharing and continuing to update.Abrahttps://www.blogger.com/profile/12547616678346153098noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-37092981916476020962012-09-07T12:14:54.930-05:002012-09-07T12:14:54.930-05:00You never cease to amaze me. You are strong and co...You never cease to amaze me. You are strong and courageous and I know Tripp is proud of you! I really believe that Tripp knows his cousin and told him all about the amazing family he is going to join. I am excited for all the wonderful things going on in your life. I don't think there is anyone better to speak at the dEBra conference- you are a true EB warrior!! Thank you for always reminding me by your sweet words to never take my kids for granted.Lacyhttps://www.blogger.com/profile/04197550732265905741noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-68682987278262230842012-09-06T23:01:29.831-05:002012-09-06T23:01:29.831-05:00Courtney,
I am so glad you have been invited to s...Courtney,<br /><br />I am so glad you have been invited to share your experience with different organizations. Your fight for Tripp's life is truly inspiring and helps people to become more aware that human life is precious and full of meaning.<br /><br />Keep working hard to heal and live a good life. Please pray for me and my family.<br /><br />BenjaminBenjamin Sanchezhttps://www.blogger.com/profile/02535230341517164757noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-64749848783521029152012-09-06T10:39:40.718-05:002012-09-06T10:39:40.718-05:00I've read your blog and looked at your pics......I've read your blog and looked at your pics...and what an amazing mother you are, a true inspiration. Your son was a beautiful, happy, sweet blessing. You are so lucky to have been his mother. My heart goes out to you and your family. Ayemehttps://www.blogger.com/profile/13505400575671608273noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-51478993677199154112012-09-06T03:47:33.650-05:002012-09-06T03:47:33.650-05:00I've been lurking on your blog recently, but ...I've been lurking on your blog recently, but I want you to know, I always check in on you. I think of you and Tripp every single time I see Elmo (which is often because I work with young children), and I hold you both close to my heart. love, EmilyEmilyhttps://www.blogger.com/profile/08710118552915270569noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-273002798482290492012-09-05T22:37:14.980-05:002012-09-05T22:37:14.980-05:00Hi, Courtney! I posted several days ago, but I fel...Hi, Courtney! I posted several days ago, but I felt the need to write again. Someone else wrote that they love/hate your blog, and I guess I feel the same way... I adore Tripp. He was such a handsome little man, but I have spent endless hours reading your posts and watching the videos and looking through his pictures, and I've cried through the whole thing. It breaks my heart how uncomfortable he must have been, how he must have lived each day in pain, how, at the end, he couldn't even see his mommy. <br /><br />I know that you have your faith to give you comfort and that makes me happy for you... But how did you get there? I have three children of my own and have been very lucky that they are healthy. Were you always so sure of Gods love? Did you learn that from your experiences with Tripp? I am not religious. I like to believe we all have a purpose, but sometimes I wonder why God would make an innocent child suffer in the ways that Tripp must have and the way so many other babies do. <br /><br />From your blog I've realized how much I take my children for granted. I look at my youngest, now only 6 months, and wonder what I will learn from him. The first night I found you, I went in his room and woke him up at 3 am just to rock him. I want to be where you are-- to be as certain of my faith and to be able to take comfort in it. I don't know if you will ever read this, but I think you are such a strong woman and that Tripp was very lucky to have you as his mommy. <br /><br />Anonymoushttps://www.blogger.com/profile/12878612920379517803noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-88443503976871702962012-09-05T16:32:24.651-05:002012-09-05T16:32:24.651-05:00I am glad to hear that you're pulling your lif...I am glad to hear that you're pulling your life together. <br />I am glad to hear that your grieving is changing its form.<br />I am REALLY happy for you.<br /><br />I think YOU and TRIPP are earned the DebRA Spirit Award!! <br /><br />Also, congrats your sister for me! I have the feeling that the baby will be a girl :)<br /><br />Tripp is watching you WITHOUT PAIN and he is SO proud. Some day you will be together again. I KNOW it. Heidihttps://www.blogger.com/profile/02282327945802929180noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-62577205394484864802012-09-05T15:11:51.330-05:002012-09-05T15:11:51.330-05:00I have been following your blog and praying for yo...I have been following your blog and praying for you for ages! While my heart breaks for you, I am so thrilled that you and Stephen have found each other. What a blessing. No doubt Tripp is up in heaven cheering you on and wanting his mommy to be happy!Debrahttps://www.blogger.com/profile/11795062742362659011noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-82423045801338405732012-09-05T12:40:47.437-05:002012-09-05T12:40:47.437-05:00I say it everytime I comment and I'll say it a...I say it everytime I comment and I'll say it again..you are truly an amazing young woman. A hero for all women. Your strentgh, love, and compassion shine through your posts. I pray nothing but blessings upon your life and your future with your love, Stephen. He sounds like an Angel the Lord sent to you to help heal your aching heart. So happy for you both. (ps. I'm 30 with no ring yet so any woman who gets a ring these days, I hate on...but when I saw your last post I cried tears of joy. =) Prayers as you continue your journey. Tripp is definitely shining on you...fsilva787https://www.blogger.com/profile/16353190265997621226noreply@blogger.com