tag:blogger.com,1999:blog-5348155237652648174.post6516779362649891558..comments2023-10-02T03:16:48.356-05:00Comments on "EB"ing a Mommy: Still here...Courtney Rothhttp://www.blogger.com/profile/01781571778358173399noreply@blogger.comBlogger57125tag:blogger.com,1999:blog-5348155237652648174.post-19514710348191370992011-02-02T12:40:10.175-06:002011-02-02T12:40:10.175-06:00Thinking about you and praying for Tripp today!Thinking about you and praying for Tripp today!Diana Lesjakhttps://www.blogger.com/profile/06476647718030742111noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-59652443696718564812011-02-02T09:32:03.773-06:002011-02-02T09:32:03.773-06:00I'm so sorry you have to go through this. It&#...I'm so sorry you have to go through this. It's so hard to see your child be in pain; I don't know how you do it.<br /><br />My little man has sleep apnea and will get his tonsils out on Friday and I'm a mess over it. Can't imagine how you must feel having him struggle to breathe on top of everything.<br /><br />Your strength is an inspiration. Please hang in there.<br /><br />Dagmar<br />Dagmar's momsenseDagmarhttps://www.blogger.com/profile/02009455086319026560noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-48443190914300672192011-02-01T18:10:00.114-06:002011-02-01T18:10:00.114-06:00just wanted to let you know that I am still prayin...just wanted to let you know that I am still praying every day for you and little Tripp. You are my HERO-- no matter what you think of yourself.(not to put any kind of pressure on you--- just want you to know that you are tope rate in my book)Brenda is SO Blessedhttps://www.blogger.com/profile/04639355281523300983noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-9616618160782127372011-01-31T08:57:15.845-06:002011-01-31T08:57:15.845-06:00I am keeping you and Tripp in my prayers.I am keeping you and Tripp in my prayers.Maryhttps://www.blogger.com/profile/08963449539854358998noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-9968684496604554582011-01-29T19:15:22.872-06:002011-01-29T19:15:22.872-06:00Just wanted you say that I am praying for you and ...Just wanted you say that I am praying for you and Tripp. You are an amazing mother, Courtney. May God give you both strength and comfort.Beckyhttps://www.blogger.com/profile/13832780447403308087noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-59078465507683053602011-01-29T05:00:57.272-06:002011-01-29T05:00:57.272-06:00You are AMAZING and so is TRIPP!! Our daughter is ...You are AMAZING and so is TRIPP!! Our daughter is much like you in a daily struggle and making the best of things and trying to stay optimistic with faith that it's all in God's hands. Her little guy has NALD.<br /><br />I can't imagine how much more stress it adds with Tripp's skin and how to handle it all. What a sweet boy! You and he are in our prayers!! (((HUGS))) for you and I'll just blow him a kiss.Hollyhttps://www.blogger.com/profile/04243241502261974167noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-55812890731642061512011-01-28T17:04:30.989-06:002011-01-28T17:04:30.989-06:00I hope Tripp feels better soon. I can't imagi...I hope Tripp feels better soon. I can't imagine how painful it must be for him, and for you. I'll keep you guys in my prayers. Maybe, the docs could prescribe a small dose of an anti-anxiety for him to take prior to his bath. This frequently helps (I'm a nurse), and might make it so much better for him and you. My heart goes out to your little guy.<br />Carla Spradlin, Portsmouth, Ohiocarlahttps://www.blogger.com/profile/03220167003874256410noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-31039145945552447572011-01-28T10:24:32.349-06:002011-01-28T10:24:32.349-06:00Prayers for your dear, sweet boy.Prayers for your dear, sweet boy.Mama10EEhttps://www.blogger.com/profile/05004523585108091541noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-53840487483780655952011-01-28T01:42:13.898-06:002011-01-28T01:42:13.898-06:00Sweet boy, he's beautiful.
I want to wave a ...Sweet boy, he's beautiful. <br /><br />I want to wave a wand and make it all better. Please know so many are silently cheering you on. You are Mother of the Year in my eyes.Alexhttps://www.blogger.com/profile/14551521423819492316noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-63532770270133159922011-01-27T12:43:01.406-06:002011-01-27T12:43:01.406-06:00Bless you guys!
I hate EB so much :-(Bless you guys! <br /><br />I hate EB so much :-(Stacy K. https://www.blogger.com/profile/06853574441003653244noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-42137599432631552212011-01-27T08:35:27.237-06:002011-01-27T08:35:27.237-06:00Well, I've typed two comments and I have NO cl...Well, I've typed two comments and I have NO clue where they went. Crazy internet!!<br /><br />I just wanted to say that I just admire you so much for the things that you do for Tripp every single day. God most certainly knew what He was doing when he gave Tripp to you. I shudder to think what kind of like Tripp would have with another mom -eeeek!! I don't know how you stay as strong, humble and positive through all this because if I'm being honest; seeing Tripp's sweet little face just looks painful. And I don't mean that in a bad way at all -it just really makes me want to cry for him that he has to deal with such things. NO child should have to deal with ANY medical issues but I keep telling myself (with my son who has seizures) that God can see the BIG picture; I can only see a tiny sliver of it. It doesn't really make it any easier, but it does give me perspective.<br /><br />You are an amazing mommy to Tripp and I can't fathom how you do it all. But, you do. And Tripp is very blessed to have you. Keep looking UP and rest in the peace that only HE can give you.<br /><br />Blessings to you!<br />Julie B.jmhhttps://www.blogger.com/profile/17048044396266414283noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-56721988289543317332011-01-27T07:38:46.070-06:002011-01-27T07:38:46.070-06:00Please know we are praying for you & brave lit...Please know we are praying for you & brave little Tripp. It is just heart-breaking to see the pictures of him & know he is in so much pain. Hope he's back to having good days soon.Homestead Hearthhttps://www.blogger.com/profile/02773251070874411621noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-16504096039150354812011-01-27T00:41:37.266-06:002011-01-27T00:41:37.266-06:00I follow your blog from California. Just wanted ...I follow your blog from California. Just wanted to let you know your precious son is adorable. My thoughts and prayers are with you and your family. I hope that Tripp feels better soon and I hope that you get some much needed rest.Unknownhttps://www.blogger.com/profile/00158859219420528971noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-92052123797544032932011-01-26T22:58:45.031-06:002011-01-26T22:58:45.031-06:00I just found your blog and want to share how touch...I just found your blog and want to share how touched I truly am. I am inspired by your love for you wonderful son and your faith. I am so glad you have your mother to hep you. My family and I said a Hail Mary with the intention of giving you, Tripp and you family healing and peace. I promise I will pray for you all every day.Susanhttps://www.blogger.com/profile/01802351466724365211noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-62523794366408448022011-01-26T22:43:03.050-06:002011-01-26T22:43:03.050-06:00Praying for you and Tripp, Courtney - know that yo...Praying for you and Tripp, Courtney - know that you are loved by lots of people all over! I wish I could make this better for him. If there's anything you can think of that I can do to help, I'm an email away!<br /><br />Love from TX,<br />LauraLaura Ahttps://www.blogger.com/profile/06701139472899714172noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-34059440984318409732011-01-26T22:05:34.086-06:002011-01-26T22:05:34.086-06:00Always praying for you and your sweet boy from S. ...Always praying for you and your sweet boy from S. Florida.Pati @ A Crafty Escapehttps://www.blogger.com/profile/17176098739115609538noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-46823651748213123032011-01-26T20:26:49.715-06:002011-01-26T20:26:49.715-06:00Terribly heartbreaking. You and Tripp are both in ...Terribly heartbreaking. You and Tripp are both in my thoughts and prayers!Tiffanyhttps://www.blogger.com/profile/04102990053374514111noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-9903327685577190062011-01-26T20:16:17.429-06:002011-01-26T20:16:17.429-06:00keeping you and your sweet boy in my thoughts. i&#...keeping you and your sweet boy in my thoughts. i'm praying that better days are ahead for both of you!skullhttps://www.blogger.com/profile/14062215880582127799noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-41381450412449694942011-01-26T19:08:13.924-06:002011-01-26T19:08:13.924-06:00So heartbreaking to hear how awful bath time is fo...So heartbreaking to hear how awful bath time is for all of you. My heart breaks for all of the pain Tripp is in. It is not fair. Praying each night for Tripp. <br /><br />Carrie KataiCarriehttps://www.blogger.com/profile/17534118791782849210noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-91759316173646793842011-01-26T18:41:39.920-06:002011-01-26T18:41:39.920-06:00I just found your blog! I will begin praying now!...I just found your blog! I will begin praying now! HUGS! Praying for sweet Tripp!Dontmissyoursunsetladyhttps://www.blogger.com/profile/02837332668019832243noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-30639987831142447702011-01-26T18:27:22.347-06:002011-01-26T18:27:22.347-06:00I'm praying for you guys. I have followed your...I'm praying for you guys. I have followed your blog for a few months now. Tripp has been in my thoughts and prayers many times since then. God bless.Wendy Jeaninehttps://www.blogger.com/profile/12966468310936566254noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-51487395061371540572011-01-26T18:11:01.420-06:002011-01-26T18:11:01.420-06:00I'm sure you're already doing this, but pl...I'm sure you're already doing this, but please talk to your palliative care team. This is what they're there for; you shouldn't be alone in navigating pain management for your son. If he's in pain, he needs more pain medicine. In the world of pediatric oncology, you give what you must to control the pain...you don't focus on dosage as much as effect. <br />I wish I could give you some respite, even for a few hours. From here, I can pray, and let you know I think you're incredibly inspiring. Tripp may be little, but his life has weight and meaning and purpose, more so than most folks I've met.Noellehttps://www.blogger.com/profile/03626209147282168703noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-41894967057747416252011-01-26T18:11:00.656-06:002011-01-26T18:11:00.656-06:00i don't comment often but i read all the time....i don't comment often but i read all the time. i think of y'all often and am in awe of your strength and i really admire you as a mama! i can't even begin to imagine the emotional toll it takes on you and your mom to do all of the stuff it takes to take care of an EB baby\child. soooo sorry tripp has been having a hard time breathing. poor guy can't seem to catch a break. you are an inspiration to me as a mom. much love, prayers, and blessings from ga~ erin<br />erinand4boys.blogspot.comUnknownhttps://www.blogger.com/profile/01412896087703076658noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-81859725235109776222011-01-26T18:08:29.805-06:002011-01-26T18:08:29.805-06:00praying in TN.. I always remember you(special pare...praying in TN.. I always remember you(special parents) and the EB babies.Brenda is SO Blessedhttps://www.blogger.com/profile/04639355281523300983noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-9725518659824947132011-01-26T15:39:10.081-06:002011-01-26T15:39:10.081-06:00praying for y'all in tx :)praying for y'all in tx :)momma betchanhttps://www.blogger.com/profile/18263768382094508717noreply@blogger.com