tag:blogger.com,1999:blog-5348155237652648174.post7140614814088932666..comments2023-10-02T03:16:48.356-05:00Comments on "EB"ing a Mommy: Happy 9 Months Precious baby boy.Courtney Rothhttp://www.blogger.com/profile/01781571778358173399noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-5348155237652648174.post-11235665205825227642010-02-17T14:22:25.504-06:002010-02-17T14:22:25.504-06:00You have no idea who I am but I have been followin...You have no idea who I am but I have been following your blog. You are AMAZING!Kim K.https://www.blogger.com/profile/06078994224280773023noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-40384273175694947552010-02-17T04:10:14.937-06:002010-02-17T04:10:14.937-06:00I am sitting here sobbing, I just can't imagin...I am sitting here sobbing, I just can't imagine how you cope....all 3 of my kids have heriditary spherocytosis..and they required frequent blood transfusions as babies..it is very hard on me..I wish I had your strength...bless you and your sweet little man...Amandahttps://www.blogger.com/profile/08608982782017774358noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-11549457854635416292010-02-16T18:22:07.377-06:002010-02-16T18:22:07.377-06:00I am so sorry that you had to go through a choking...I am so sorry that you had to go through a choking/not-breathing episode. I work with a young lady on a ventilator and it is hard for me to hear her struggle to breathe. I am wondering if you have ever heard of a Cough Assist. It's a machine that functions like a "cough" for people who can't cough well enough on their own. It can attach to a trach. It pushes air in and out quickly, just like a cough, and makes it easier to move gunk up to the top of the airway, to suction it all out. Many times I have heard the young lady I work for try to cough, but after she uses the Cough Assist the gunk gets up into her trach and it's easy to suction out. It might be a good thing to look into!<br /><br />- Sarah in MIAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-65682725631171132812010-02-16T16:48:20.663-06:002010-02-16T16:48:20.663-06:00Happy 9 Months Mr. Tripp! You are a handsome boy. ...Happy 9 Months Mr. Tripp! You are a handsome boy. I love those eye lashes. My son would only watch Handy Manny but I told him how stinkin cute it is when you dance and kick your feet to the Hot Dog song. So now when we here the hot dog song we dance to it and think of you!<br /><br />P.S. I just want you to tell your mom that even though I have never met her. She is MY HERO! Not only is she an AMAZING mother to you she has mad me a better Mother! And such an inspiration!<br /><br />Thoughts and Prayers AlwaysR.L.Lanserhttps://www.blogger.com/profile/11454448873626430310noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-67374185667124832882010-02-15T23:35:26.103-06:002010-02-15T23:35:26.103-06:00Courtney, I hate that I am not in a position to he...Courtney, I hate that I am not in a position to help you. I hate that you have gone through and continue to go through so much with your little gorgeous baby. I hate that God's plan is so far above and beyond what we can understand that this all makes no sense to me!<br />I do love Tripp though and if prayers are what are going to see you all through this, then hold on, cause we're all praying!<br />And I agree about not concerning yourself with future issues from steroids...in case that matters any.Jenniferhttps://www.blogger.com/profile/15910482781487167063noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-13606411533264632642010-02-15T23:20:02.785-06:002010-02-15T23:20:02.785-06:00Ugh, I hate to hear how rough things have been. S...Ugh, I hate to hear how rough things have been. Sometimes I think no news is good news, but that's not the case. My heart drops to hear about all of these struggles that you and Tripp go through at all hours of the day and night. Praying hard each night for all of you. Happy 9 months Tripp!! I have said it before, but he has touched my heart so much.Carriehttps://www.blogger.com/profile/17534118791782849210noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-67583831967261339782010-02-15T10:16:23.663-06:002010-02-15T10:16:23.663-06:00Happy 9 months Tripp, you're getting so big pr...Happy 9 months Tripp, you're getting so big precious baby! I wish I lived closer and I would help you, I feel like I know you guys already, I've been following your blog for sometime now and I'm totally in love with baby tripp, he's sooooo CUTE!!! I love his beautiful eyes. Courtney, hang in there momma, I know it's hard, but Tripp really appreciates all the love and care you're giving him, he loves you and thank God your mom and family help you. I really pray for a cure, or at least a miracle for Tripp to heal, it hurts my heart to read when he's in pain, I just want to hug him. Thanks for the update, I will keep asking God to help him by healing his sores. Take Care, luv you guys!Betsyhttps://www.blogger.com/profile/08586912758544469532noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-35234635018024842122010-02-15T09:25:34.099-06:002010-02-15T09:25:34.099-06:00Hi Courtney:
My heart is breaking for you. I r...Hi Courtney:<br /> My heart is breaking for you. I read your update and thought about Meg and how she felt with Leah. It is sooooo hard to see your baby in pain. I HATE EB. Please hang in there. You know that we are all praying for your beautiful son. Happy 9 months old Tripp. Love you guys. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-62245961079898340052010-02-15T09:17:05.009-06:002010-02-15T09:17:05.009-06:00I´m so sorry. I think I have a hard time and then ...I´m so sorry. I think I have a hard time and then I read THIS. I think of you and little Trip<3<3<br /><br />Emelie and EllyEmeliehttps://www.blogger.com/profile/13771151519850806281noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-60071329938531917332010-02-15T06:44:04.426-06:002010-02-15T06:44:04.426-06:00Praying for you and your sonPraying for you and your sonMariellehttps://www.blogger.com/profile/05800638752861442544noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-41141478537220474322010-02-14T20:45:48.569-06:002010-02-14T20:45:48.569-06:00I'm so sorry that he is having a hard time, an...I'm so sorry that he is having a hard time, and he is in that much pain, I no it stinks to see your child in pain. I will be praying for you and Tripp. I hope you can get some sleep, and get some help. When i was reading your blog my heart just broke and i had tear in my eyes. I hate EB and i hate it bc these kids with it are in so much pain. Im praying for you. Take care.Evans Journeyhttps://www.blogger.com/profile/01150294041956653328noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-69779045240332897452010-02-14T20:40:37.153-06:002010-02-14T20:40:37.153-06:00Two of my kids had had barium swallows done and bo...Two of my kids had had barium swallows done and both time the nurse just added some barium to their bottles. So they didn't drink straight barium. Hopefully that'll be the case for you guys! Also, have you tried National Rehab as a supply company? They are WONDERFUL and all you have to do is give Bill your info and what we need. He takes care of the info and supplies are sent 2 day UPS. I hacve NEVER had an incorrect order in the 5 years we have been using them!Sara Denslawhttps://www.blogger.com/profile/09625588629095084632noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-55550223768851857712010-02-14T20:32:57.360-06:002010-02-14T20:32:57.360-06:00I've followed your blog for a long time, but o...I've followed your blog for a long time, but only commented a couple times. I echo what the first poster said, you've just gotta think about getting some help. Please don't take that advice in an offensive way. I KNOW you're there for Tripp and your his mommy, but there's only so much a single person can do before they just give out. Even if it's someone to come in and clean for you. <br /><br />heck, I'd do it for you for free if I lived near (Yes, I realize you don't know me from Eve but...you know what I'm sayin.)<br /><br />I'm praying for you. Even through a blog, I can tell your frustration level is up to here. Sleep can do wonders. Tomorrow is a new day and I pray it goes well for you and Tripp.Lexiehttps://www.blogger.com/profile/15465536157664382937noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-74911482976563387012010-02-14T20:16:26.855-06:002010-02-14T20:16:26.855-06:00Bless your heart. My goodness...my heart just bre...Bless your heart. My goodness...my heart just breaks reading this. Is any kind of respite care available? <br /><br />Please know that I am sending prayers and love your way.Cindyhttps://www.blogger.com/profile/02817277697971424163noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-85785595213163595182010-02-14T20:14:46.726-06:002010-02-14T20:14:46.726-06:00I don't even have the words to say to express ...I don't even have the words to say to express how this post made me feel. My heart just hurts for your family and your precious little Tripp. I am praying for you as I know many are. <br /><br />Big Hugs,<br />LisaLisahttps://www.blogger.com/profile/12819089896296871441noreply@blogger.comtag:blogger.com,1999:blog-5348155237652648174.post-6184546408015432952010-02-14T20:04:27.322-06:002010-02-14T20:04:27.322-06:00Oh honey! Please think about getting some help! ...Oh honey! Please think about getting some help! I know how hard it must be to turn that over to someone else, but you have GOT to get some sleep! Even if its just for one night. A good night of sleep will change your perspective on everything.<br /><br />I wish I lived closer so I could help you.. but since I don't, I will help with prayer.<br /><br />Happy 9 month birthday Tripp!!<br /><br />(HA! my word verification is SUCKI! - isn't that fitting!)Janelhttps://www.blogger.com/profile/12741507889298351296noreply@blogger.com