Please visit www.Debra.org to find out more information on EB. All donations to Debra go to finding a cure for this terrible disease. We would have truly been LOST if it weren't for this organization. They have helped us and supported through all of our tough times since day ONE. They provided us with supplies, diapers, support, and so much more when we didn't have our thoughts together yet. They help so many EB families on a daily basis. What a great, terrific, wonderful organization!