"EB"ing a Mommy: EB Awareness

Tripp was born on May 14, 2009. He was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin or mucous membranes causes blisters. They told us he would not live to be a year old. Every day he amazes us by his strength. He is a fighter and with all he has been through, he has never given up. He is the strongest person I know. Tripp wakes up each morning with a smile on his face. Every day spent with him is a blessing. God has a special plan for him. I'm just blessed to be able to witness that plan.

I am from the small town of Ponchatoula, LA. Before I became a Mommy, I worked as a nurse in geriatric/psychiatric. I loved and miss my job, but now that my precious boy is born, I am a 24/7 stay at home Mommy. I dedicate every second of my life to Tripp and I treasure every second that we have together. Though caring for him is a very tough job, I would not trade any of it for a second. Tripp has taught me true love, patience, respect and selflessness. Being a Mommy has changed my life, but being TRIPP'S Mommy has brought so much joy and happiness into my life. I am entrusting Tripp's life into God's hands. He knows best. May His will be done-not mine.

A Special Child

You weren’t like other children,
And God was well aware,
You’d need a caring family,
With love enough to share.
And so He sent you to us,
And much to our surprise,
You haven’t been a challenge,
But a blessing in disguise.
Your winning smiles and laughter,
The pleasures you impart,
Far outweigh your special needs,
And melt the coldest heart.
We’re proud that we’ve been chosen,
To help you learn and grow,
The job that you have brought us,
Is more than you can know.
A precious gift from Heaven,
A treasure from above,
A child who’s taught us many things,
But most of all- “Real Love”

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EB Awareness