This post is a little late, but I had trouble getting to my computer this weekend with a little monkey attatched to my neck. Last Thursday, after a long battle with EB, Baby Elle finally received her angel wings and is flying high with all of the other EB sweeties in heaven. Elle was in Minnesota taking part in the Bone Marrow Transplants for EB (same place as Bella). She was 43 days post transplant and was unable to fight the battle of EB any longer (she was 11 months). Please visit her site and give her family (the Pops) your love and support as I cannot imagine what they are going through. We love you Pops.
Elle is now free of pain, bandages, and blisters.... flying with her friends and family in heaven.
You will always be remembered, Baby Elle.