Hi there. My little man has been doing okay. It seems like this is what's going to be his "norm." Not feeling super great, but being able to stand up and play when he is feeling okay, after his morphine. Of course he is still dealing with the same mouth and eye issues, and also with a few more blisters on his torso area (I'm dreading the hot summer because they'll be popping up like crazy, inside or not). But mom and I are actually getting the hang of things... We're kind of exhausted, but finally getting into somewhat of a "routine" since the transition. Thank the good Lord for my mother... I honestly don't know what I would do without her. She has been by my side every single day since Tripp has been born. And now, living here... she's doing just as much as I'm doing. I can't imagine what my stress level would be doing this 24-7 by myself. I take that back- it would be humanly impossible to do this by myself. Especially since we have to trade off to go to the bathroom! And some people might say, "Well she's your mom, she has to do it"... but she doesn't HAVE to do it... especially with the patience and unconditional love that she does it with. So THANKS mom. I don't tell you that enough.
So Tripp's "Angel Baby" broadcast was sent to Louisiana Public Broadcasting by WWL Ch 4. And they loved it, so they want to air it themselves. It will run TONIGHT statewide on WYES and WLAE. I THINK it will run around 7 pm. But you can check their website http://www.lpb.org/ to find out what time it will run on which channel. It will be broadcasted on the segmemt called- Louisiana: The State We're In.
So just in case you missed it, or want to watch it again. I was just letting you know (a little late:).
I also want to send out a BIG HUGE thank you for the enormous response that we received from the broadcast. WWL was more than pleased with the 2000 hits they got to their website from this blog. It's so heart warming to know that there are so many people who care so much about our little man. Thank you for the donations, the kind words of support, and most of all the prayers that you all have been sending for Tripp and I. I think it is very true that prayers work in numbers, so it is so touching to know that there are so many prayers going up for Tripp across the country (and even outside the country).
I want to apologize to anyone who has sent me a message or an email that I haven't responded to. I was always SO good about writing you write back, and then I got so backed up that I'm overwhelmed. But please know that I get every email and every message, and it means the world to me to have the support system that I do. All of your kind words literally carry me through each day and each week. The positive words that you all send is like my therapy :)
My phone has been acting crazy lately and everytime I try to catch something that Tripp does on video, it either erases it, or cuts it off half way through. So I've been trying to get some video but it's not working great. But here are some more snapshots of my little hot mess.
There is no possible way that I could love anyone or anything as much as I love this kid.
Playing OUTSIDE of his "comfort zone!" Lasted about 5 minutes, but we will take it!
Skyping with my Nanny!! Thank you technology.
He has "soup" mouth in this one, but I wanted to put a close up of my poor baby's eyes. So you can have an idea of what they look like. This was last week I think. They get a little worse each day :(
Love,
You are such an inspiration. Prayer for you all each and every day.
ReplyDeleteThank you for the pictures! It is so good so see him up and playing. Praying for you all!
ReplyDeleteOh..just seeing his little face makes my day. So glad you were able to update was eagerly waiting some news on how your angel is doing. My heart is filled with joy for the good days he is able to have. Keeping you in my prayers Courtney and Tripp we love ya!
ReplyDeleteHow good to hear from the little man.
ReplyDeleteIt's good to see him play ...
I still have you in my thoughts and in my prayers daily.
Courtney you are fantastic as a mother, daughter and woman ... is with much love that I have in my heart.
Kisses with love
Sandra Afonso - Portugal
PS: I loved the photos
Tripp and your family is in my prayers daily! I will continue to pray for healing for him and patience and comfort for you and your wonderful mother. I pray for a cure and a miracle!!!
ReplyDeleteHe is a beautiful baby! I am so happy to see him play (even if it is a short time). you are doing so great with him, and I am happy to hear that you have so much support!
ReplyDeleteHi Courtney: Thanks for the update and the new pictures of my favorite little boy. I will continue to pray for the whole family. You and your mother are awesome. Please give Tripp a big hug and kiss for me. Love you guys so much. Love and Hugs Leah's Nana
ReplyDeleteYou are the most AMAZING momma I know! Tripp is a beautiful baby boy and God has greatly blessed him by giving him you as his mother. Prayers to your entire family.
ReplyDeleteSweet boy! I love that picture of the two of you! Tripp is such an amazing kid and you are most definitely an amazing mom!! Continuing to pray for you and him!
ReplyDeleteLove from TX,
Laura
thanks for taking the time to update Courtney. I check often to see how you and Tripp are doing . It is great that your Mother is such a wonderful Grandmother and Mother. I am sure both of you are such a blessing to each other. Daily prayers will continue for all of you. I hope Tripp has many good days that all of you can enjoy.
ReplyDeleteYour Momma, Meme, surely must love that little man more than words could say! Thanks for the post... It seems an answer to some prayers almost, for me, to see Tripp playing at all! God bless your sweet boy~ and you too, Courtney!
ReplyDeleteOh Tripp honey I am so happy you are up and playing some of the time! You have the best mama and grammie in the entire world, which I am sure you know! I am sorry about your eyes, Bless you for having your other sense. Especially your ears to hear your sweet mama's voice and singing! I think about you all the time and am SO excited you are experiencing another spring. New life, growth, and possibilities!
ReplyDeleteYou and your mom are both amazing mothers. Tripp is always in my prayers.
ReplyDeleteI have a great mom too :) Thanking God everyday for her. Thank you for posting about Carson. We have more news coming up as soon as we are allowed to announce it. It is very exciting. Thanks for letting us be a part of your days. Blessings! Karrie
ReplyDeleteCourtney,
ReplyDeleteI don't think there is another blog that can be bring to tears like yours. Whether it is the fighting spirit of Tripp, your love for him and tonight, the mention of your mom, I am just amazed. You are a good 13 years younger than me but just know that you are an inspiration to me. I am so glad that Tripp has had some good days. I feel so badly about his eyes though. Thanks for updating us today and please know that you and Tripp are always in my thoughts and prayers.
I think you are right...your mom doesn't HAVE to do it, just because she's your mom. Some would say Tripp's dad HAS to do it, just because he is the dad, but he doesn't. So you are so right, your mom is great. Not all mothers would do what she does. You are very lucky in that regard. And Tripp is so cute and funny in all your videos, they always make me smile.
ReplyDeleteYou are beautiful inside and out as is little Tripp. What I have learned about patience and grace from you is priceless. I will keep you and Tripp and your family in my prayers.
ReplyDeleteMy husband and I pray for Tripp and Anton every night. You are such a great mom and it sounds like you have an amazing family.
ReplyDeleteOh my. He is just so sweet. Lifting Tripp up daily here in Nevada.
ReplyDeleteYour son is beautiful, you'll both be in my prayers.
ReplyDeleteLove the pictures ~ sending much love and prayers your way.
ReplyDeleteLittle Tripp and all of his family is in my prayers.
ReplyDeleteThe sweetest adoreable little trooper.
Just stopping in to say I hope things are going okay! Praying for you and Tripp.
ReplyDeleteHi Courtney~ I hope Tripp is feeling better these days, and enjoying his mommy and meme time! Praying for you all!
ReplyDeleteHi Courtney, stopping by to see if there is an update on Tripp. Wanted to remind you that I'm praying for Tripp and you. He is a very special little guy.
ReplyDeletePraying for strength for you today.
Hi, Courtney~ I came across your blog when I was on Patrice Williams' blog. Let me just say that you are FAR from being a slacker. I can't even begin to imagine what it's like to go through the things you blog about AND THEN find the time to blog. You are a strong mother, and I can see Tripp's strength in his smile. He's beautiful! God bless your family!
ReplyDeleteHi Courtney - got to your blog thru Ryans blog about his daughter Raquel (Bella). I have a son, 25 now! with JEB (non-herlitz type). we too were given the grim diagnosis just after his birth, He was transferred across town to BC Childrens Hosp, where he lived for 2yrs 2mths in isolation. He is now a Special Education Assistant at the high school he went to (as did his older sisters). I know in my heart that with your love and caring Tripp will have a fantastic, and long, life! Although we parents have to fight for them a lot, and sacrifice a lot, although we would do the same for any of our children, with or without a disability. Faith and Love - those are the things that keep us going...and going...and going :-)
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