Courtney! Beautiful photo and Merry Christmas! I wanted to comment on your last post- I have been a reader of your blog since the beginning, but I rarely get to comment because I usually read your blog on my phone (google reader) which doesn't allow comments. ANYWAY- I just wanted to send you some love and support. You are an AMAZING and inspiring mom, and if anyone questions your intentions regarding Tripp, then they OBVIOUSLY do not know you or your beautiful, mother warrior heart. I can't say enough how amazing I think you are, and how Tripp was blessed with the most perfect mommy for him. I was talking with my family the other night about you, and we were marvelling over how Tripp could not have been matched with a more perfect mom for him. You are so patient and caring, and I just want to tell you how much I admire you as a mom. ((((hugs)))) Merry Christmas, girl! Sending you much love and light...
A Merry and Blessed Christmas to you and your family. I saw in your blog that you read "The Power of Positive Thinking" ...sending positive thoughts and lots of love your way.
Merry Christmas! This Christmas I am thinking about your family everyday. I followed your blog for less than a year. In another country, far away. But from reading these past 10 months about what you go through I feel like I have become a better person. At least I appreciate life and health in a completely different way now. Tripp is so special, and so are you. I am amazed of both of your strengths. I wish Tripp could understand how many hearts he has touched and how many lives he has changed. Even my life is changed because of him and I think that is incredible! This young little boy. He is a gift from God, a very special gift.
EB on the other hand is the worst disease I have ever heard of or seen. It's horrific and I hope with all of my heart that someday a cure will be here. I am just so sad that the cure won't be here in time to help you.
I wish you a calm Christmas filled with love. And I hope Tripp can enjoy himself and won't be in too much pain.
I have been following you for the last two years. Im also from Louisiana but currently living in NJ. I have nothing but great respect and love for you and your beautiful boy. Those judgemental people can shove it where it does not shine. :) I have donated over $100 and will continue for your baby boy. I swell up with joy whenever your blog gets posted! I have a six year old son who also follow your blog. I only have one son. He has for years stated that he DOES NOT want a brother or sister....He changed his mind recently and said he ll be Tripps older brother. That brought me to tears. I was so stinking proud of him. He has send Tripp an oranment with Elmo stickers.
Best of luck with Tripps health and your relationship with your new man :)
Great picture of such a beautiful, loving and caring family. Wishing each of you much love and peace during this Christmas season. I hope that Tripp will have a great Christmas day, with as little pain as possible. May God continue to bless each of you and continue to give you strength and courage. Merry Christmas with Love, Timmy, Teela and Katie Falgoust Chackbay, Louisiana
I've always already written you on this post {#4}, I need you to know something. Please know that God is working through your precious baby boy. This verse you quoted today gave me chills & tears when I read it earlier. I knew right then Tripp is a plan of God. I am a newly wed who just started a book study with other wives about how to be a Christian wife. I know this really has nothing to do with Tripp but please, hear me out. We get together every Tuesday and discuss one chapter at a time. This past Tuesday, the discussion was a lot of Eve choosing the apple, and what the outcome of it. Yaddi Yaddi Ya! After we were finished, a christian wife of three years asked a question to the leader of the study that has always questioned her but she never knew the answer. "Why is it we praise God when good things happen to us{because we are supposed to} but when bad things happen, we are told 'Not to ask why God would do this or blame God.'" Our leader, who knows the bible very well, tried to explain it but couldn't really get to it so she then called a member of her church and asked for help. He said something along the lines of 'God never causes the bad, he allows it. God creates all good. Satan is the cause of bad.' Yaddi Yaddi Ya. The wife with the question felt better but I could still tell it wasn't clear. We then began to discuss different things, like examples & I brought up your amazing son, Tripp. Me? I wasn't brought up in church, therefore I do not know a lot about the bible. I've been drawn closer to God & built my relationship with him about a year prior to getting engaged. When I brought up Tripp {which both of these ladies have already heard me talk about him prior too} I started to use him & what you write about as an example. I couldn't understand why this could happen to him and why he is suffering so badly. I explained you once stated that you felt God is working through Tripp to bring people closer. God suffered so much for us, as Tripp is doing... for me, and these two ladies as MANY other people out there in this world. Yesterday, I prayed in the middle of the day because I just felt the urge. Tripp.. & you were in those prayers, as always. I prayed for Tripp & for whatever reason this is happening to him to work in the matter of time. I told the lady with the question to read this blog, as I forwarded your URL. I don't know if she read it or not, but I will tell you when she got my text message today "Today on Tripps blog it states, "Shall we indeed accept good from God and not accept adversity?" -Job 2:10" She wrote back with "Wow really? That's crazy! Apparently she picked her bible up and read it because she then said "That's nutso! It's like God knew you would see that because we were talking about it the other night. I'm about to go read more of Job." Then she explained what JOb stated and how it answer her question but it also helps me understand Tripps situation. My last text to her was "Yes, now go read Tripps story because apparently that's why Tripp is here... to bring us the word of God."
Thank you for posting this verse for whatever brought you to it. I know this was a lot of ... yaddi yaddi ya, but I just want you to know Tripps suffering is working on all of us. Tripp is a child of God & I know you've touched on 'Tripp going home to the Lord', but he isn't finished working our spirits in his word of God.
May God bless you and Tripp! May God bless your family for the holidays. You & Tripp have changed me {as I've been telling everyone about him} since I first read your blog months ago.
Tripps is a very special child, as you know this, but believe that I hold him very close to my heart.
Merry Christmas to you too, Courtney - thank you for sending the picture of your beautiful family! I notice in the corner that you also have that little drum playing musical Santa haha, my daughter has one too.
Merry Christmas Courtney, Great family picture. Thanks for sharing. I've never met you but I know your family well. You and Tripp are in my thoughts and prayers daily. You are truly an amazing person. God knows who he can trust with his extra special angels. Know that you and Tripp are loved by more people then you can imagine. Hope you have a very Merry Christmas. Jody McLin
Merry Christmas to you and yours... Best wishes for the New Year. I have been reading your blog for some time now and I have to say you are an amazing woman, mother, caregiver and protector... I am a nurse as well and I can't imagine what you are going thru but Tripp is blessed even more that his mommmy is a Nurse.. :) Stand strong and tall. You are doing an AWESOME job... Laura Newman Bothell, WA
Though I haven't commented before I have followed your blog for several months now (and just made contact via email). What a beautiful photo, Courtney, of an amazing family - it is so heartwarming and uplifting! Please continue to be strengthened by all your friends and supporters all over the world - little Tripp is loved by so many! (As are you.) Wishing you all peace, joy and hope this Christmas.
Merry Christmas to you and your family! Especially little Tripp! I am praying for you daily for strength & for Tripp to not experience so much pain! God has His hands on both of you!
Hi Courtney & Family, Hope you have a Christmas filled with peace that only God can give. Hope Tripp has a very good day. Thank you for sharing your journey with us. I will continue to pray for your precious family.
I'm commenting from the UK. I had never heard about Tripp, his plight or, indeed, EB until I read an article about Tripp in the UK newspaper, the Daily Mail. I am a father, but also a hardened, ten year veteran, Police Detective; I read Tripps story, online, during a tea-break at work, and I'm not ashamed to admit that it broke my heart, and I wept. I have never in my life felt such a compulsion to do something to help.
Since reading the story, I have determined to learn as much as I can about this terrible disease, and do whatever I can to help; be that raising money or awareness.
My family and I wish you a very merry Christmas and a happy new year; and give the little man a kiss from us all.
Merry Christmas from The Curran Family in North Carolina. Your family is always in our prayers. I know you don't know us, but we love your family. Here is hoping for a cure in the New Year.
Blessings and blessings and blessings to your family and Tripp. You are not alone and we are praying for Tripp, for him to be comfy at night and pain-free until he meets Jesus. Love, The Haendelers - Seattle, WA
Merry Christmas to you and little Tripp. I found your blog about a year ago and every night, when I pray for all the little ones in our family, I add Tripp to the list. Courtney, you have become something you never wanted to be, a role model for loving, caring, protecting and unconditionally providing care for a hurting loved one. May God continue to strengthen you and to watch over Tripp this Christmas. God Bless You both...our prayers from Wisconsin will continue.
MERRY CHRISTMAS to your family from the Rakocy's of Ponchatoula. Tripp, you are the Angel on earth that God was looking for. Hold on because He is not through with you Yet.
Such a beautiful picture! One thing that continually amazes me is how beautiful you always look. I have a crappy day and I don't take the time to put on make up. Every photo of you I see you always look put together. I think that is awesome! Always thinking of you and Tripp, especially at this time of year. I hope you guys have a wonderful christmas!
Merry Christmas to you and your family! What a beautiful picture. Tripp is always top of mind for my family and friends as we all follow your blog. When my neighbor and I get together we catch up on Tripp! :) Just wanted you to know that Tripp and your family have a praying and cheering section here in MN!
Hey! I'm a girl from Finland. And I fall to read your blog. I began to read more and more and wow I just can say that I am very proud of you and your little fighter. You have been so strong with your son and I just can say: do not give up! I hope all best to you and your family and lot of strength! And I hope you guys have a great christmas!
Hi I not a believer and I havent been praying in ten to twenty years, but yesterday I started to read this blog and after that, I have been praying many many times. I dont know is there anybody listening me or am I saying the rigth words, but Im trying. Im praying the best I can. Im praying and Im crying. This is also my first time in years when Im crying like this. Im so sad at the moment... Reading this blog has open my eyes. Now I know that the life it self, is the most precious gift ever and now I trully understand what you have been writing. I have three kids and I would do exactly like you have been doing. No matter what will happen, Tripp will not be forgotten. He is the most strongest kid I know and I want to believe that there will be a good place reserved for him in the heaven. I wish you merry Christmas and all the best for the year 2012. I keep praying for Tripp, every day, every night.
Merry Christmas to all of you. You are in my prayers as always, and in my heart. I pray we can keep this Christmas Spirit all through the coming year, come what may. Tons of love to our little man...
Merry Christmas. I am thinking of you and our family always. You are an amazingly strong woman! You are loved in my home, I hope to one day meet you and let you know how ou have touched my life. Much love, Shannon Rohland
Have a wonderful Christmas. I hope the day brings you peace and that Tripp enjoys some of the day. You are a wonderful Mommy and Tripp is a precious little boy. Don't let anyone's comments spoil your holiday.
Merry Christmas to each one of you! We pray that your Christmas is filled with blessed peace and the warmth of God's love.
Special wishes for 'our' precious little drummer boy and his remarkable mother!! Courtney, you are one of the brightest stars to ever grace the arena of motherhood! May God be with you always!
We lift you and Tripp up to our Lord every day. We continue to believe God for little Tripp's miracle!
Sending our love and prayers from Houston, Noni and Leo
Courtney, I think of you so often. I am another one of the "you don't know me but..." people. I just think Tripp is so amazing. God did pick him especially to work miracles, and boy does he ever. But I think the part you gloss over is that when he picked Tripp, he picked you too. I am a single momma myself. I adopted my daughter, who just turned two years old in December. I think about you and Tripp, and my daughter and I, and I want you to know, I come read your blog thinking not only could I never be as strong as Tripp -- I don't think I could be as strong, as loving, as gracious, as faithful, as you are. I hope you know that while Tripp shows me how to be a better person, you show me how to be a better Mommy. It's 2 a.m. on Christmas morning here in Little Rock, and I just hope that Santa brings something good to you both today. Merry Christmas.
May you and your family be blessed in countless ways this Christmas with God's richest blessings. May Christmas angels surround you and may the Blessed Virgin share all the graces of her son with Tripp. May your voice fall upon Tripp's ears as full of love and as softly as Mary's was on that first Christmas morn. And may Tripp bless you with a Christmas smile! Much love to all!
Merry Christmas Tripp! We love you here in Charlotte and think of you every day. You (and your beautiful mommmy) are in our prayers and offerings. You were perfectly made to show this world what love is....
Hope you guys had a beautiful Christmas. We just wanted you to know that you and your little man are in our prayers each and every day. Tripp is such a little miracle, and your strength should be an inspiration to people. Merry Christmas and a Blessed New Year Courtney
I wanted to tell you that on Christmas night when I was tucking my 16 month old daughter in her crib we were saying prayers. As always we prayed for several of her "heart friends" (she has a severe heart defect) and after that we always pray for trip, when I said please help Trip, she said "Trip!" I couldn't help but smile! Out of the mouths of babes! We love your sweet boy! Hope you had a Merry Christmas!!
Hi Courtney, I just came across your blog. Sweet girl, you are a true champion. As a mom who came very close to losing my son too many times to count, I feel some of your pain. I pleaded with God to take away my child's suffering- to let me carry it instead. You are everything to your precious son, just as he is to you. Tripp got his strength and his courage from you and your family. You are an inspiration, Courtney. An amazing, amazing example of all that a mother should be. Sending prayers and love from Texas- Tina
Courtney, I have been reading your blog for a few months now but this is my first comment. I want to let you know that you and Tripp are always in my thoughts and prayers. You are an amazingly strong woman and it is obvious that you are a spectacular mother. I cannot believe that people have the nerve to say such horrid things about you and your son when they themselves have never had to go through anything close to what Tripp family your family go through on a daily basis. I pray for them that God may open their eyes. I enjoy your pictures and videos and want you t know I am behind you 100%. Just keep doing your thing: being the best mommy possible to that angel Tripp! Love and prayers to you daily! Danielle Laurel Bloomery TN
Well i think you are a very brave person to do what you are doing! because i think most people would have given up already and acted like their child didn't exist. So to the people who think you are wrong they don't understand the pain you and your son are going through..I cried when i came to your page. I have 2 nieces 12 years old and 14 months; and two nephews 5 and 17 months and it broke my heart to think of them not being able to play or see...i'm sure when it's time for your son to go home to god he will go with a smile and peace in his heart.. because he was loved by a great mother and supporting family. i wish you,your son and your family nothing best in 2012. god bless!!
I find myself thinking and praying for y'all often. I check in here at least one a day to see if there are any updates on you and your sweet boy. Being a mom of boys your story has really touched my heart. May every day with your amazing boy bring you blessings.
Courtney, you and Tripp are on my mind and heart tonight as we see this old year out. I know 2011 brought a lot of changes to your life and Tripp'; changes that had to be heart rending to you. I pray as 2012 comes to us, a fresh gift from God, that somehow Tripp's health may improve and he can be more comfortable. I pray for continued strength for you and your mother. Caretakers of the severely ill are truly blessed by God to endure what they have to endure. God bless you little Tripp; your suffering causes many people sorrow; but yet your smile has won over the world - teaching us how to endure, how to make the best in unimaginable circumstances, and showing us the power of unconditional love! I promise in this new year to continue storming Heaven with my prayers for you and your family and to try to promote awareness of EB in any way I can. Love you Tripp! Happy New Year!
A very happy new year to Tripp and entire family. My prayers for Tripp in this fight against EB. Frankly I didn't knew about this disease till I came across this blog. Then I went through this story and read a lot about EB and other diseases which are very rare. Pardon my little knowledge. but it seems stanford univ has developed some treatment which are in clinical trial phase/even though with lot of restrictions. but I could stop myself from posting this here,just in case it helps you people in any manner. http://dermatology.stanford.edu/research/research.html . I will pray this story has a positive end. Wishing u all a happy new year again.
Hi Courtney! I am Barbara fromm Argentina, Buenos Aires. Te escribo en español para poder expresarme en palabras de la manera que mejor se entienda. Yo tambien tengo un bebito con E.B, su nombre es Lautaro y el 12 de enero cumple los 3 meses de vida. No pude volver al trabajo y es muy probable que deje de hacerlo debido a que Lauty me necesita, quiero brindarle la mejor atencion posible y se que yo voy a poder cuidarlo mejor que nadie. Me gusto mucho tus publicaciones, muchas gracias por compartir tu historia y la de ese bebito hermoso, me das mucha fuerza para seguir adelante. Sos un ejemplo de vida, y ese bebote tiene suerte de tenerte como mama, sos un angel. Se lo ve con mucha energia y fuerte, se nota que tiene mucho amor. Te re admiro. Te deseo lo mejor...Que tengas un muy feliz año para vos y ese bebito hermoso.
I'm one of the thousands of people who say a prayer every night for you and your handsome little man. A prayer full of hope, love, and comfort. I make sure to keep up on the both of you and always hold my breath when I open up a new post from you in hopes there has been a miracle that has happend and Tripp is all better and there was a cure found for EB. I will admit I've been worried that there hasn't been any updates in the last couple of weeks and am hoping that you have just been super busy with the holiday season. I truly wish you both all the love and happiness in this new year.
Bless you for all you do for your trooper. You are his angel. You can tell in every picture how much he just loves you so.
Much love from my family to yours all the way in Minnesota :)
I have visited your blog from time to time and every time I am amazed by you and Tripp. I cannot imagine how ANYONE could ever judge you. You are a wonderful mother, you have tremendous strength and faith greater than anyone I have ever seen. You are amazing! I pray God's peace on you, Tripp and your family.
Keeping your family in my thoughts and prayers. We can all see that Tripp gets his incredible strength from you- so please stay strong and dont let others under your skin. Focus on the important thing, Tripp.
Thought much about your family during the holidays. Me and my kiddos pray for you and Tripp every night. You both continue to be inspirations of strength and love. God bless you!
Great picture!! Merry Christmas to you and yours♥
ReplyDeleteMerry Christmas little Tripp xo
ReplyDeleteMerry Christmas from the Childers family in OHIO!
ReplyDeleteMerry Christmas from The Drew Family!
ReplyDeleteBeautiful picture, Courtney!
Xo,
Jessica
www.ardjla.blogspot.com
That is ONE beautiful family is all i have to say~
ReplyDeleteOh and Merry Merry Christmas to all of you!
Merry Christmas !!
ReplyDeleteMerry CHRISTmas to you as well. Love and prayers from North Carolina.
ReplyDeleteMerry Christmas! What a beautiful family picture!
ReplyDeleteThank you Courtney! Merry Christmas to you and your family as well! God bless!
ReplyDeleteWishing you a peaceful Christmas! Merry Christmas to you all.
ReplyDeleteMerry Christmas to all of you!
ReplyDeleteMerry Christmas to a beautiful family (inside and out)!
ReplyDeleteSuch a beautiful picture!!! Merry Christmas!!
ReplyDeleteMerry Christmas! Thank you for sharing :) Love you Tripp!
ReplyDeleteThe Dauphin Family
Connecticut
Courtney! Beautiful photo and Merry Christmas! I wanted to comment on your last post- I have been a reader of your blog since the beginning, but I rarely get to comment because I usually read your blog on my phone (google reader) which doesn't allow comments. ANYWAY- I just wanted to send you some love and support. You are an AMAZING and inspiring mom, and if anyone questions your intentions regarding Tripp, then they OBVIOUSLY do not know you or your beautiful, mother warrior heart. I can't say enough how amazing I think you are, and how Tripp was blessed with the most perfect mommy for him. I was talking with my family the other night about you, and we were marvelling over how Tripp could not have been matched with a more perfect mom for him. You are so patient and caring, and I just want to tell you how much I admire you as a mom. ((((hugs)))) Merry Christmas, girl! Sending you much love and light...
ReplyDeleteMerry Christmas from the Stepp Family in Allentown,PA
ReplyDeleteMerry Christmas!! That is a great family picture!
ReplyDeleteThe Novakowski Family
Lafayette, Louisiana
Aww Beautiful! I will be thinking about Tripp on Christmas. He is so precious and loved! Merry Christmas!
ReplyDeleteKelly Cunningham
Sacramento, ca
Merry Christmas from our family to yours! God bless you all with a peaceful day. That picture of Tripp in the Santa hat is priceless :-)
ReplyDeleteThe Moore Family
N. Tonawanda, NY
Merry Christmas to You all! All the best from Finland
ReplyDeleteMerry Christmas and happy new year! Hugs and kisses for you and your family <3
ReplyDeleteMarika
From Finland
A Merry and Blessed Christmas to you and your family. I saw in your blog that you read "The Power of Positive Thinking" ...sending positive thoughts and lots of love your way.
ReplyDeleteDonna
Merry Christmas! This Christmas I am thinking about your family everyday. I followed your blog for less than a year. In another country, far away. But from reading these past 10 months about what you go through I feel like I have become a better person. At least I appreciate life and health in a completely different way now. Tripp is so special, and so are you. I am amazed of both of your strengths. I wish Tripp could understand how many hearts he has touched and how many lives he has changed. Even my life is changed because of him and I think that is incredible! This young little boy. He is a gift from God, a very special gift.
ReplyDeleteEB on the other hand is the worst disease I have ever heard of or seen. It's horrific and I hope with all of my heart that someday a cure will be here. I am just so sad that the cure won't be here in time to help you.
I wish you a calm Christmas filled with love. And I hope Tripp can enjoy himself and won't be in too much pain.
Love from me and my family <3
/Lisa
Merry Christmas to all of you and especially to the brave and beautiful little fighter Tripp! <3
ReplyDeleteMerry Christmas to all of you, especially to the bravest little fighter Tripp <3
ReplyDeleteMerry Christmas, still praying for a Christmas miracle.
ReplyDeleteKathy Guillot
Carriere, MS
Hi
ReplyDeleteI have been following you for the last two years.
Im also from Louisiana but currently living in NJ.
I have nothing but great respect and love for you and your beautiful boy.
Those judgemental people can shove it where it does not shine. :)
I have donated over $100 and will continue for your baby boy. I swell up with joy whenever your blog gets posted! I have a six year old son who also follow your blog. I only have one son. He has for years stated that he DOES NOT want a brother or sister....He changed his mind recently and said he ll be Tripps older brother. That brought me to tears. I was so stinking proud of him. He has send Tripp an oranment with Elmo stickers.
Best of luck with Tripps health and your relationship with your new man :)
MERRY CHRISTMAS to you and your family!!
With love
Heather & Colton
:) And to you too
ReplyDeleteThanks for the words of encouragement
Merry Christmas to you & your Family!! May God bring y'all a cure for Baby Tripp!! God Bless You All!! Sending many prayers y'all way!!
ReplyDeleteGreat picture of such a beautiful, loving and caring family. Wishing each of you much love and peace during this Christmas season. I hope that Tripp will have a great Christmas day, with as little pain as possible. May God continue to bless each of you and continue to give you strength and courage.
ReplyDeleteMerry Christmas with Love,
Timmy, Teela and Katie Falgoust
Chackbay, Louisiana
Courtney,
ReplyDeleteI've always already written you on this post {#4}, I need you to know something. Please know that God is working through your precious baby boy. This verse you quoted today gave me chills & tears when I read it earlier. I knew right then Tripp is a plan of God.
I am a newly wed who just started a book study with other wives about how to be a Christian wife. I know this really has nothing to do with Tripp but please, hear me out. We get together every Tuesday and discuss one chapter at a time. This past Tuesday, the discussion was a lot of Eve choosing the apple, and what the outcome of it. Yaddi Yaddi Ya! After we were finished, a christian wife of three years asked a question to the leader of the study that has always questioned her but she never knew the answer.
"Why is it we praise God when good things happen to us{because we are supposed to} but when bad things happen, we are told 'Not to ask why God would do this or blame God.'"
Our leader, who knows the bible very well, tried to explain it but couldn't really get to it so she then called a member of her church and asked for help. He said something along the lines of 'God never causes the bad, he allows it. God creates all good. Satan is the cause of bad.' Yaddi Yaddi Ya. The wife with the question felt better but I could still tell it wasn't clear. We then began to discuss different things, like examples & I brought up your amazing son, Tripp.
Me? I wasn't brought up in church, therefore I do not know a lot about the bible. I've been drawn closer to God & built my relationship with him about a year prior to getting engaged. When I brought up Tripp {which both of these ladies have already heard me talk about him prior too} I started to use him & what you write about as an example. I couldn't understand why this could happen to him and why he is suffering so badly. I explained you once stated that you felt God is working through Tripp to bring people closer. God suffered so much for us, as Tripp is doing... for me, and these two ladies as MANY other people out there in this world. Yesterday, I prayed in the middle of the day because I just felt the urge. Tripp.. & you were in those prayers, as always. I prayed for Tripp & for whatever reason this is happening to him to work in the matter of time. I told the lady with the question to read this blog, as I forwarded your URL. I don't know if she read it or not, but I will tell you when she got my text message today "Today on Tripps blog it states, "Shall we indeed accept good from God and not accept adversity?" -Job 2:10"
She wrote back with "Wow really? That's crazy!
Apparently she picked her bible up and read it because she then said "That's nutso! It's like God knew you would see that because we were talking about it the other night. I'm about to go read more of Job." Then she explained what JOb stated and how it answer her question but it also helps me understand Tripps situation. My last text to her was "Yes, now go read Tripps story because apparently that's why Tripp is here... to bring us the word of God."
Thank you for posting this verse for whatever brought you to it. I know this was a lot of ... yaddi yaddi ya, but I just want you to know Tripps suffering is working on all of us. Tripp is a child of God & I know you've touched on 'Tripp going home to the Lord', but he isn't finished working our spirits in his word of God.
May God bless you and Tripp! May God bless your family for the holidays. You & Tripp have changed me {as I've been telling everyone about him} since I first read your blog months ago.
Tripps is a very special child, as you know this, but believe that I hold him very close to my heart.
Thank you for this verse.
Jessica from Georgia
Merry Christmas to you and yours! I wish you all a blessed holiday season. As always, praying for Tripp and your entire family.
ReplyDelete- Joanna Binsfeld
Madison, WI
Merry Christmas to you too, Courtney - thank you for sending the picture of your beautiful family! I notice in the corner that you also have that little drum playing musical Santa haha, my daughter has one too.
ReplyDeleteSarai
nemesis_33012 at yahoo dot com
Merry Christmas Courtney, Great family picture. Thanks for sharing. I've never met you but I know your family well. You and Tripp are in my thoughts and prayers daily. You are truly an amazing person. God knows who he can trust with his extra special angels. Know that you and Tripp are loved by more people then you can imagine. Hope you have a very Merry Christmas. Jody McLin
ReplyDeleteMerry Christmas to you and your precious family!
ReplyDeleteMerry Christmas to you and your wonderful family, and some extra love and gentle hugs to little man Tripp.
ReplyDeleteJanice Liu, San Francisco, CA
Merry Christmas to you and yours... Best wishes for the New Year.
ReplyDeleteI have been reading your blog for some time now and I have to say you are an amazing woman, mother, caregiver and protector... I am a nurse as well and I can't imagine what you are going thru but Tripp is blessed even more that his mommmy is a Nurse.. :) Stand strong and tall. You are doing an AWESOME job...
Laura Newman Bothell, WA
Merry Christmas mt dear... many gentle hugs to your angel, and may you have peace and comfort this holiday.
ReplyDeleteMost amazing, powerful, loving, faithful, family I have ever known! Wishing you all the best possible things now and in the future.
ReplyDeletemerry christmas!
ReplyDeleteMerry Christmas to you and your beautiful family! Thinking of you and Tripp!
ReplyDeleteThough I haven't commented before I have followed your blog for several months now (and just made contact via email). What a beautiful photo, Courtney, of an amazing family - it is so heartwarming and uplifting! Please continue to be strengthened by all your friends and supporters all over the world - little Tripp is loved by so many! (As are you.) Wishing you all peace, joy and hope this Christmas.
ReplyDeleteKaren from New Zealand
Merry Christmas to the most special family!
ReplyDeleteEllen from Long Island
Merry Christmas to you, Tripp ad your whole family
ReplyDeleteMerry Christmas to you and your family!
ReplyDeleteThe Miller Family
Bossier City, LA
Merry Christmas to you, Tripp, and your family!!!
ReplyDeleteThe Groetsch Family
Kenner, LA
Merry Christmas to you and your family!
ReplyDeleteIda from Finland
Merry Christmas to a very wonderful family! What a beautiful picture!
ReplyDeleteMerry CHRISTmas to you all as well! Have a blessed holiday enjoying each other! Much love to you and yours!
ReplyDeletemerry christmas to you, Tripp and your whole family from Finland! <3 may God bless you all!
ReplyDeleteMerry Christmas! We are keeping the prayers coming!
ReplyDeleteMerry Christmas to you and your family! Especially little Tripp! I am praying for you daily for strength & for Tripp to not experience so much pain! God has His hands on both of you!
ReplyDeleteMany blessings to you, your family and of course most of all for your sweetheart Tripp. Praying always for your little drummer boy.
ReplyDeleteMerry Christmas from Finland! I remember you in my prayers
ReplyDeleteHi Courtney & Family,
ReplyDeleteHope you have a Christmas filled with peace that only God can give. Hope Tripp has a very good day. Thank you for sharing your journey with us. I will continue to pray for your precious family.
What an amazing faith expressed in your choice of verse. May God bless you, your beautiful family, your sweet family with every nEed. Xoxo
ReplyDeleteSending so much love from my family to yours!
ReplyDeleteHello,
ReplyDeleteI'm commenting from the UK. I had never heard about Tripp, his plight or, indeed, EB until I read an article about Tripp in the UK newspaper, the Daily Mail. I am a father, but also a hardened, ten year veteran, Police Detective; I read Tripps story, online, during a tea-break at work, and I'm not ashamed to admit that it broke my heart, and I wept. I have never in my life felt such a compulsion to do something to help.
Since reading the story, I have determined to learn as much as I can about this terrible disease, and do whatever I can to help; be that raising money or awareness.
My family and I wish you a very merry Christmas and a happy new year; and give the little man a kiss from us all.
Merry Christmas! I pray that you will have a blessed Christmas and look forward to a peaceful New Year.
ReplyDeleteMuch love,
The Miller Family in IN
Merry Christmas from The Curran Family in North Carolina. Your family is always in our prayers. I know you don't know us, but we love your family. Here is hoping for a cure in the New Year.
ReplyDeleteMerry Christmas to you all. What a beautiful family. Wishing you a healthy New Year.
ReplyDeleteMerry Christmas to you all. May you all be blessed in this coming year.
ReplyDeleteMuch love,
The Jmaeff family
Oyama, BC Canada
Merry Christmas Tripp!!! (you too Courtney!)
ReplyDeleteMerry Christmass from Colombia, SouthAmerica.
ReplyDeleteBlessings and blessings and blessings to your family and Tripp. You are not alone and we are praying for Tripp, for him to be comfy at night and pain-free until he meets Jesus.
ReplyDeleteLove,
The Haendelers - Seattle, WA
Merry Christmas to you and your family.
ReplyDeleteMerry Christmas to you and little Tripp. I found your blog about a year ago and every night, when I pray for all the little ones in our family, I add Tripp to the list. Courtney, you have become something you never wanted to be, a role model for loving, caring, protecting and unconditionally providing care for a hurting loved one. May God continue to strengthen you and to watch over Tripp this Christmas. God Bless You both...our prayers from Wisconsin will continue.
ReplyDeleteMERRY CHRISTMAS to your family from the Rakocy's of Ponchatoula.
ReplyDeleteTripp, you are the Angel on earth that God was looking for. Hold on because He is not through with you Yet.
Love You All
Such a beautiful picture! One thing that continually amazes me is how beautiful you always look. I have a crappy day and I don't take the time to put on make up. Every photo of you I see you always look put together. I think that is awesome! Always thinking of you and Tripp, especially at this time of year. I hope you guys have a wonderful christmas!
ReplyDeleteMerry Christmas to you! Hugs and prayers for a Christmas miracle.
ReplyDeleteLove, the Maksi family
Hattiesburg, MS
Merry Christmas to you and your family! What a beautiful picture. Tripp is always top of mind for my family and friends as we all follow your blog. When my neighbor and I get together we catch up on Tripp! :) Just wanted you to know that Tripp and your family have a praying and cheering section here in MN!
ReplyDeleteMerry Christmas, beautiful family!
ReplyDeleteMerry Christmas and blessings from Finland :)
ReplyDeleteHey! I'm a girl from Finland. And I fall to read your blog. I began to read more and more and wow I just can say that I am very proud of you and your little fighter. You have been so strong with your son and I just can say: do not give up! I hope all best to you and your family and lot of strength! And I hope you guys have a great christmas!
ReplyDeleteMerry Christmas to you and your family from our family in Finland! <3
ReplyDeleteMerry Christmas to your whole family from my family.
ReplyDeleteWe all send a big hug to Tripp as a present.
Hang in there little buddy, never stop fighting!!
Merry Christmas! Your family looks wonderful;
ReplyDeleteTripp is in good hands!
I lift you up in prayer everyday; thank you for sharing your journey.
What a beautiful family. Wishing, hoping and praying that Tripp has a break in his pain and is able to enjoy Christmas.
ReplyDeleteMerry Christmas!
Melinda
Such a beautiful family! Hope you & yours have a very Merry Christmas!!!
ReplyDeleteSending lots of kisses to Tripp! :)
Beautiful picture. Thank you for sharing. Merry Christmas to you as well.
ReplyDeleteBeautiful family and Beautiful boy! Merry Christmas!
ReplyDeleteWhat a great photo! Merry Christmas to all of you.
ReplyDeletemarry christmas to your family !
ReplyDeleteMerry Christmas!!
ReplyDeleteI hope you have a Christ filled day.
Always praying for you and Tripp.
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Merry Christmas to a beautiful family!
ReplyDeleteMerry Christmas! May God's angels keep Tripp and your family in his loving care.
ReplyDeletePositive thoughts and prayers coming your way every day.
Merry Christmas and Happy New Year to you and your family!may all your dreams for the new yr come true.
ReplyDeleteHi
ReplyDeleteI not a believer and I havent been praying in ten to twenty years, but yesterday I started to read this blog and after that, I have been praying many many times. I dont know is there anybody listening me or am I saying the rigth words, but Im trying. Im praying the best I can. Im praying and Im crying. This is also my first time in years when Im crying like this. Im so sad at the moment...
Reading this blog has open my eyes. Now I know that the life it self, is the most precious gift ever and now I trully understand what you have been writing. I have three kids and I would do exactly like you have been doing.
No matter what will happen, Tripp will not be forgotten. He is the most strongest kid I know and I want to believe that there will be a good place reserved for him in the heaven.
I wish you merry Christmas and all the best for the year 2012.
I keep praying for Tripp, every day, every night.
A beautiful, strong courageous family! Like I always say......All We Need Is Love! Xoxo
ReplyDeleteMerry Christmas to all of you, sweet Courtney!! Please kiss our little Drummer boy from us!
ReplyDeleteLove from TX,
Laura (for Team A)
Merry Christmas to you and your family. Praying you all have the best Christmas possible.
ReplyDeleteLoving sweet Tripp from Canada!
Merry Christmas to all of you. You are in my prayers as always, and in my heart. I pray we can keep this Christmas Spirit all through the coming year, come what may. Tons of love to our little man...
ReplyDeleteMerry Christmas. I am thinking of you and our family always. You are an amazingly strong woman! You are loved in my home, I hope to one day meet you and let you know how ou have touched my life. Much love, Shannon Rohland
ReplyDeleteHave a wonderful Christmas. I hope the day brings you peace and that Tripp enjoys some of the day. You are a wonderful Mommy and Tripp is a precious little boy. Don't let anyone's comments spoil your holiday.
ReplyDeleteMay God grant a Christmas miracle this season. God Bless your sweet little boy. Merry Christmas to you and yours!
ReplyDeleteBeautiful Family!
ReplyDeleteMerry Christmas to each one of you! We pray that your Christmas is filled with blessed peace and the warmth of God's love.
Special wishes for 'our' precious little drummer boy and his remarkable mother!! Courtney, you are one of the brightest stars to ever grace the arena of motherhood! May God be with you always!
We lift you and Tripp up to our Lord every day. We continue to believe God for little Tripp's miracle!
Sending our love and prayers from Houston,
Noni and Leo
Courtney, I think of you so often. I am another one of the "you don't know me but..." people. I just think Tripp is so amazing. God did pick him especially to work miracles, and boy does he ever. But I think the part you gloss over is that when he picked Tripp, he picked you too. I am a single momma myself. I adopted my daughter, who just turned two years old in December. I think about you and Tripp, and my daughter and I, and I want you to know, I come read your blog thinking not only could I never be as strong as Tripp -- I don't think I could be as strong, as loving, as gracious, as faithful, as you are. I hope you know that while Tripp shows me how to be a better person, you show me how to be a better Mommy. It's 2 a.m. on Christmas morning here in Little Rock, and I just hope that Santa brings something good to you both today. Merry Christmas.
ReplyDeleteGod bless you, your beautiful son, and the whole family. With many greetings and the warmest of Christmas wishes from Finland
ReplyDeleteMay you and your family be blessed in countless ways this Christmas with God's richest blessings. May Christmas angels surround you and may the Blessed Virgin share all the graces of her son with Tripp. May your voice fall upon Tripp's ears as full of love and as softly as Mary's was on that first Christmas morn. And may Tripp bless you with a Christmas smile! Much love to all!
ReplyDeleteMerry Christmas to you, Courtney, and to your amazing family.
ReplyDeleteI think of Tripp everything single day. Best from Finland.
ReplyDeleteMerry Christmas Tripp! We love you here in Charlotte and think of you every day. You (and your beautiful mommmy) are in our prayers and offerings. You were perfectly made to show this world what love is....
ReplyDeleteMerry Christmas from New York. I hope that you all had a wonderful day.
ReplyDeleteThinking of you Tripp and family. Hope today was a good day!
ReplyDeleteHoping that you had a Merry Christmas!
ReplyDeleteMerry Christmas from Finlnd lovely Tripp and Courtney!
ReplyDelete-Liisa-
Hope you guys had a beautiful Christmas. We just wanted you to know that you and your little man are in our prayers each and every day. Tripp is such a little miracle, and your strength should be an inspiration to people. Merry Christmas and a Blessed New Year Courtney
ReplyDeleteI wanted to tell you that on Christmas night when I was tucking my 16 month old daughter in her crib we were saying prayers. As always we prayed for several of her "heart friends" (she has a severe heart defect) and after that we always pray for trip, when I said please help Trip, she said "Trip!" I couldn't help but smile! Out of the mouths of babes! We love your sweet boy! Hope you had a Merry Christmas!!
ReplyDeleteThinking about you guys. Hope you had a beautiful Christmas!
ReplyDeleteJust thinking of you and that precious little man and thought I would say hi and then pray.
ReplyDeleteHi Courtney,
ReplyDeleteI just came across your blog. Sweet girl, you are a true champion. As a mom who came very close to losing my son too many times to count, I feel some of your pain. I pleaded with God to take away my child's suffering- to let me carry it instead. You are everything to your precious son, just as he is to you. Tripp got his strength and his courage from you and your family. You are an inspiration, Courtney. An amazing, amazing example of all that a mother should be. Sending prayers and love from Texas- Tina
Courtney, I have been reading your blog for a few months now but this is my first comment. I want to let you know that you and Tripp are always in my thoughts and prayers. You are an amazingly strong woman and it is obvious that you are a spectacular mother. I cannot believe that people have the nerve to say such horrid things about you and your son when they themselves have never had to go through anything close to what Tripp family your family go through on a daily basis. I pray for them that God may open their eyes. I enjoy your pictures and videos and want you t know I am behind you 100%. Just keep doing your thing: being the best mommy possible to that angel Tripp! Love and prayers to you daily!
ReplyDeleteDanielle
Laurel Bloomery TN
Well i think you are a very brave person to do what you are doing! because i think most people would have given up already and acted like their child didn't exist. So to the people who think you are wrong they don't understand the pain you and your son are going through..I cried when i came to your page. I have 2 nieces 12 years old and 14 months; and two nephews 5 and 17 months and it broke my heart to think of them not being able to play or see...i'm sure when it's time for your son to go home to god he will go with a smile and peace in his heart.. because he was loved by a great mother and supporting family. i wish you,your son and your family nothing best in 2012. god bless!!
ReplyDeleteAimee
Merry, merry Christmas and a very happy new year to Tripp and family.
ReplyDeleteI find myself thinking and praying for y'all often. I check in here at least one a day to see if there are any updates on you and your sweet boy. Being a mom of boys your story has really touched my heart. May every day with your amazing boy bring you blessings.
ReplyDeleteHappy New Year!
-Grace
Courtney, you and Tripp are on my mind and heart tonight as we see this old year out. I know 2011 brought a lot of changes to your life and Tripp'; changes that had to be heart rending to you. I pray as 2012 comes to us, a fresh gift from God, that somehow Tripp's health may improve and he can be more comfortable. I pray for continued strength for you and your mother. Caretakers of the severely ill are truly blessed by God to endure what they have to endure. God bless you little Tripp; your suffering causes many people sorrow; but yet your smile has won over the world - teaching us how to endure, how to make the best in unimaginable circumstances, and showing us the power of unconditional love! I promise in this new year to continue storming Heaven with my prayers for you and your family and to try to promote awareness of EB in any way I can. Love you Tripp! Happy New Year!
ReplyDeleteA very happy new year to Tripp and entire family. My prayers for Tripp in this fight against EB. Frankly I didn't knew about this disease till I came across this blog. Then I went through this story and read a lot about EB and other diseases which are very rare. Pardon my little knowledge. but it seems stanford univ has developed some treatment which are in clinical trial phase/even though with lot of restrictions. but I could stop myself from posting this here,just in case it helps you people in any manner. http://dermatology.stanford.edu/research/research.html . I will pray this story has a positive end. Wishing u all a happy new year again.
ReplyDeleteHi Courtney!
ReplyDeleteI am Barbara fromm Argentina, Buenos Aires.
Te escribo en español para poder expresarme en palabras de la manera que mejor se entienda.
Yo tambien tengo un bebito con E.B, su nombre es Lautaro y el 12 de enero cumple los 3 meses de vida. No pude volver al trabajo y es muy probable que deje de hacerlo debido a que Lauty me necesita, quiero brindarle la mejor atencion posible y se que yo voy a poder cuidarlo mejor que nadie.
Me gusto mucho tus publicaciones, muchas gracias por compartir tu historia y la de ese bebito hermoso, me das mucha fuerza para seguir adelante.
Sos un ejemplo de vida, y ese bebote tiene suerte de tenerte como mama, sos un angel. Se lo ve con mucha energia y fuerte, se nota que tiene mucho amor. Te re admiro.
Te deseo lo mejor...Que tengas un muy feliz año para vos y ese bebito hermoso.
awwwh, blessed new year to you sweetheart!! praying for joy and strength and hope in Jesus.
ReplyDeleteMerry Christmas, brave family, may your new year be a wonderful one. I keep preying for you guys! Stay strong.
ReplyDeleteMuch love,
Coty.
Still praying for Tripp! Hope you can update us soon! Been thinking of you all during the holidays.
ReplyDeleteCourtney, Tripp & Family,
ReplyDeleteI hope you all had a very Merry CHRISTmas! I love your photo!
Sending you strength, my prayers, and many many hugs!
XOXO,
Katie Hartsfield & Family
I am praying for a Blessing for Tripp, You and your Family.
ReplyDeleteHope you all had a wonderful Christmas! Praying for sweet Tripp...
ReplyDeleteCourtney and Tripp,
ReplyDeleteI'm one of the thousands of people who say a prayer every night for you and your handsome little man. A prayer full of hope, love, and comfort. I make sure to keep up on the both of you and always hold my breath when I open up a new post from you in hopes there has been a miracle that has happend and Tripp is all better and there was a cure found for EB. I will admit I've been worried that there hasn't been any updates in the last couple of weeks and am hoping that you have just been super busy with the holiday season. I truly wish you both all the love and happiness in this new year.
Bless you for all you do for your trooper. You are his angel. You can tell in every picture how much he just loves you so.
Much love from my family to yours all the way in Minnesota :)
Ashley Partch and family
I have visited your blog from time to time and every time I am amazed by you and Tripp. I cannot imagine how ANYONE could ever judge you. You are a wonderful mother, you have tremendous strength and faith greater than anyone I have ever seen. You are amazing! I pray God's peace on you, Tripp and your family.
ReplyDeleteThinking of you all every day and praying your sweet boy is comfortable. My heart is in constant thought and prayer for your family. Hugs.
ReplyDeleteKeeping your family in my thoughts and prayers. We can all see that Tripp gets his incredible strength from you- so please stay strong and dont let others under your skin. Focus on the important thing, Tripp.
ReplyDeleteFrom Australia, much love and prayers. Crystal Mary
ReplyDeleteThought much about your family during the holidays. Me and my kiddos pray for you and Tripp every night. You both continue to be inspirations of strength and love. God bless you!
ReplyDeleteGod be with yoru family. May God's peace surround you all and bring you to your final home.
ReplyDelete