You aren't ever far from my thoughts or my heart, Courtney. I hope with every new day that your heart heals with your baby's love that fills it sooo sooo much. xoxo
Courtney, I've been following your story for awhile now and am always so impressed by your grace and strength despite your awful circumstances. You are truly an inspiration to me- on Tuesday, my little boy was diagnosed with Leigh's Disease and most likely will not survive more than a few years. We are of course devastated. Thank you for always being so open and honest with your emotions and for sharing sweet Tripp with us.
i cant discibe u how your son have touch my heart...im truly sorry for your lost But i believe is alive in many peoples hearts! He is angel,sending here to show peoples what is beauty and true love!
Hi, Courtney. I was sent to this blog by a baby with EB that I started following on my FB page. I follow a lot of kids on FB that have cancer, are premature (I have a preemie), have CHD or other diseases. I had NEVER heard of EB before and this has to be the worst thing I've ever heard of. I have 5 (cooking 6) kids of my own and I am around your age....and I cannot imagine going through what you have been through. I have cried and cried as I have been reading through your blog. Tripp passed away on the day my youngest was born 7 weeks premature and almost didn't make it. I cannot imagine how much your Mommy's heart misses your little boy and I am so sad for you and am praying for your healing. I know you will never let Tripp be forgotten....and he isn't being forgotten. Through his life my husband and I have learned about EB and we are taking up this little known cause! Thank you for sharing his life; he was such a beautiful soul on Earth and he must be so much more beautiful in the arms of Jesus! I can't wait to meet him in heaven one day to tell him he changed me. Many prayers for you on this VERY hard day, Mama. You are one amazing woman with a little boy who accomplish his God-given goal of changing hearts and advocating for others! God's Love and Smiles, Chala Baker
Little by little your heart will heal in time. You are so strong. Some days are just harder than others. Tripp was so lucky to have you as his mommy. Be patient with yourself.
Oh Courtney! He is so precious! Thank you so much for continuing to share your journey with us! I wore my butterfly shirt today and Tripp is never far from my thoughts! Even though I've never met you my heart breaks along with yours, and saying lots of prayers for you!! HUGS!!!
my friend lost her son when he was 13 and it was awful and she mourned for a long time, but it changed her, in many ways, and she found God again and she's now remarried, a grandma and full of joy. Just letting you know that some good eventually comes out , kinda like a silver lining, although you'll never stop loving your boy.
Always thinking about you and Tripp!! You both have forever changed my life!! He is drumming to a beautiful beat right now with Jesus! Hold his memory and love close! I hope time will heal your pain! I never knew you or Tripp, but I will always remember Him and hope one day ifand when I go to heaven I can meet Tripp! He's first on my list!!!
It's good to see precious Tripp. When I see him playing and smiling through all he endured it reminds me again what a brave and precious little angel he is. Hope your doing well thank you for sharing this special video.
You are amazing. Your courage and strength to put one foot in front of another inspires me every day. I love this video of your beautiful little Tripp. What a blessing he is to all of us.
I'm sorry you're hurting. I read another blog of a mom who lost her 7 year old son to CF and she just had a baby 2 months ago, and she found out her new baby girl has CF. I thought maybe you could send her some love, and since you know as a mom what it is to lose a little one, you two could also talk and support eachother. Just a thought http://notsobrightandshiny.blogspot.com/2012/09/26-days.html?showComment=1347680404259#c2176112842551701794
He's so precious Courtney! I think of both of you daily and I try to honor him every day by being a better person and mum and by spreading awareness about EB whenever I have the opportunity. Every time I see a butterfly or I hear an Elmo's song I feel it like gentle signals of his presence. Through your story I "met" him and I miss him too. And every 14 of the month I honor him in my own special way. You are in my prayers <3
Courtney it's been just over 4 years for my little boy in heaven just know that there are no longer in pain and are still little babies just like they left us I pray that you and your family wi I pray that you and your family will be at peace knowing that he is
I too think of Tripp a lot especially the fourteenth of each month. You changed me Courtney for the better and I strive to be a compassionate strong mother like you. Tripp continues to live on in the hearts of so many people- many who never met him. Few people can ever say they did do much let alone in such a short life. I am sure he is reaping his reward in Heaven and I hope I will be worthy to meet him one day. Wishing you strength and future happiness x
Sending you my love Courtney. Perhaps you could reach out to another family whose baby was born on August 23rd and they think he has the most severe form of EB. He's battling very hard and his family is learning just how difficult his battle is going to be. Look up Easton Friedel. I think you could really help this family.
Courtney, I am so sorry for your pain, Tripp is looking down on you everyday and is so proud of you even though you have sad and bad days he is so proud of what you have done and what you continue to do daily. You have all the right to be sad, you have gone through more than any Mom should ever have to go through. I want to tell you Courtney every time I get an email saying you have done a post I am so happy because I think of you daily and wonder how you are. I am so glad you still take the time to post because we all want to know how and what you are doing. I know that every time you post that you are going t be sad but at least it is nice hearing from you and knowing you are okay. SO THANK YOU COURTNEY!!!!
Courtney - you've been on my heart for several reasons this week. First a baby boy was born with EB in my town and his story has been circulating through Facebook. (Baby Easton in Columbus, Ohio.) I'm ashamed to say I haven't had the nerve to read his story because following Tripp's life was so difficult. (I feel ridiculous saying that when your pain is obviously so great. But I think everyone got to know and love him and we all felt like we lost him.) Also I saw the episode of Dr. Phil with Trayvon Martin's parents this week and his poor parents were describing the pain of losing their child. I know that's every mother's greatest fear and I hate it for you so much. I've said it so many times before but I am such a better parent because I know your story. I don't take a second with my son for granted. I'm so grateful for all the good that's happening for you. You deserve all of it and more :)
Such a smart and handsome lil man!! Thank you for sharing because of you I appreciate even more my five boys... LETS get rid of EB so all the butterfly kids out there can have a pain free life vote for DEBRA on the chase community giving so they can win the $$$$$ to help on the research for a cure.. Baby easton friedel page on facebook has the link..
Handsome and smart lil angel RIP... Thank you for sharing because of you I appreciate even more life and my five boys THANK YOU you are such a great example of what a real mother should be DIOS TE BENDIGA (god bles you).. Lets help DEBRA on the chase community giving by voting for this organization (debra) so they can win the money for the research of a cure of EB find the link on: support baby easton friedel facebook page, because every child deserves a PAIN-FREE life..
Will never ever forget your sweet baby boy Courtney. You remain in my prayers daily. Thank you for sharing your little man with us. May God bless you and you never feel far from His love.
I could watch Tripp videos all day. What a personality! Thank you for sharing your beautiful son with us. Because of you and Tripp - I believe I have become a better person. You probably don't even realize how many lives you have changed just by putting your heart out there and I thank you for that. Since reading about Tripp I have been trying my best to donate as much as I can to DEBRA...through my work we can sign up for Combined Federal Campaign where you pick an organization to donate $$ to - either on a one time basis or have it taken out of your paycheck every pay period. I am going to continue to donate to DEBRA in the hopes that one day there will be a cure and babies will not have to suffer like poor Tripp. God Bless you. My prayers are with you and all the other families battling with this horrible disease. Sending you lots of hugs from Alexandria, VA. Gloria
Courtney... I feel terrible to think that I haven't been reading blogs this year and I just found out about Tripp's leaving you. I feel ridiculous at just thinking about saying whatever to you... there is nothing I can say. But I want you to know that you and Tripp opened my eyes to a love and courage life. That you've been in my prayers and thoughts and will continue to be. That all the great things that are happening to you know are well deserved and are blessings that your little angel is sending (and will ckeep sending) to you because you made him so happy. You have every right to enjoy them and be happy and keep telling all about it to him. I hope your pain becomes more bearable. Love, Shanti
He was sooo good at ignoring his Mommy :o) That selective hearing is tricky like that!! I miss him too and I never even met him. I know that your heart and soul feel empty but there are many good things to fill that hole with until the day you see him again. Remember...you have eternity to spend with him, this is only temporary :o) Much love and prayers to you always!! Kelley
I have been sitting here watching Tripp's videos again. I love watching his videos! Even through his pain he would smile and play. There are not many people that can do that. He IS one amazing little boy! He is with the angels anxiously waiting for you and holding your spot. Happy 8 months in heaven little man!!
I miss him too. I hope you are letting yourself grieve fully. Don't hold back for the sake of those around you. Let them grieve their way, and sweetie, you grieve your way...upfront and honest. It will serve you well!!!
I check here often......I never leave without shedding some tears. You are a wonderful and special mother just as Tripp was a wonderful and special child. I see Gods love and grace every time I come to this page. Praying for you always and trying to be half the mama you are....<3
You don't know me, but I read your blog every since i saw prayer request for Tripp last year. I came across this site for a friend of a friend that's baby boy is battling EB as well.
Easton was born 8/23/12 with a rare disease known as Epidermolysis Bullosa (EB). Donations for Baby Easton can be made here http://igg.me/p/212935?a=1117035 (Click link to read the entire story and donate.)
Courtney I just found out your blog (idk even how but i thank god i did) I get to know about a little angel named Tripp and the most brave woman i have ever hear of... You and your family will be in my prayers from now on... i hope that little precious angel for yours will take care of all of us. The best for you and your family.
Oh mama - I am so sorry for your loss. I have also recently lost a baby so I feel your pain! Reading through your posts has been eye opening. I had never heard of EB. I am glad you share.
Praying your road gets smoother. It may never get "easier", but I pray it gets smoother for you, if that makes sense. Your Tripp is a joy to watch. What a sweetie.
Grieving with you dear sister in the Lord. Saw your blog link on baby Easton's donation page. I am seriously mourning for you and all butterfly baby families. What dedication and faith you have and truly inspires me to live for Christ more. To love my own children more and to look forward to seeing Tripp and my four babies in heaven! What a celebration they must be having and I rejoice in knowing that the Shepherd is holding them all close to him. Press on and live a life for Christ. Your precious son is a beautiful testimony for Christ. xoxo
I am soooo sorry for your loss! I check in every now and then to see how you are doing! But you and that sweet baby boy are always on my mind! He has touched my heart from the very first time I came to your blog! He was a talented little angel! I hate that you have had to go through losing him! My heart truly breaks for you! I watched these videos and started to cry! He is sooo precious! I just wanted to share with you how much I have been touched!
He is so happy in Heaven!!
ReplyDeleteStill praying for you Courtney! I watch the videos that you posted of Tripp and they still make me cry.......
ReplyDeleteYou aren't ever far from my thoughts or my heart, Courtney. I hope with every new day that your heart heals with your baby's love that fills it sooo sooo much. xoxo
ReplyDeleteCourtney, I've been following your story for awhile now and am always so impressed by your grace and strength despite your awful circumstances. You are truly an inspiration to me- on Tuesday, my little boy was diagnosed with Leigh's Disease and most likely will not survive more than a few years. We are of course devastated. Thank you for always being so open and honest with your emotions and for sharing sweet Tripp with us.
ReplyDeletei cant discibe u how your son have touch my heart...im truly sorry for your lost But i believe is alive in many peoples hearts! He is angel,sending here to show peoples what is beauty and true love!
ReplyDeleteHi, Courtney. I was sent to this blog by a baby with EB that I started following on my FB page. I follow a lot of kids on FB that have cancer, are premature (I have a preemie), have CHD or other diseases. I had NEVER heard of EB before and this has to be the worst thing I've ever heard of. I have 5 (cooking 6) kids of my own and I am around your age....and I cannot imagine going through what you have been through. I have cried and cried as I have been reading through your blog. Tripp passed away on the day my youngest was born 7 weeks premature and almost didn't make it. I cannot imagine how much your Mommy's heart misses your little boy and I am so sad for you and am praying for your healing. I know you will never let Tripp be forgotten....and he isn't being forgotten. Through his life my husband and I have learned about EB and we are taking up this little known cause! Thank you for sharing his life; he was such a beautiful soul on Earth and he must be so much more beautiful in the arms of Jesus! I can't wait to meet him in heaven one day to tell him he changed me. Many prayers for you on this VERY hard day, Mama. You are one amazing woman with a little boy who accomplish his God-given goal of changing hearts and advocating for others!
ReplyDeleteGod's Love and Smiles,
Chala Baker
Little by little your heart will heal in time. You are so strong. Some days are just harder than others. Tripp was so lucky to have you as his mommy. Be patient with yourself.
ReplyDeleteTripp is one lucky boy to have you for his mom! I truly believe you will get to hold your angel again! You are in my thoughts and prayers.
ReplyDeletei am unable to view the video. :(
ReplyDeleteStill praying for you and your family.
ReplyDeleteOh Courtney! He is so precious! Thank you so much for continuing to share your journey with us! I wore my butterfly shirt today and Tripp is never far from my thoughts! Even though I've never met you my heart breaks along with yours, and saying lots of prayers for you!! HUGS!!!
ReplyDeleteSarah from NM
my friend lost her son when he was 13 and it was awful and she mourned for a long time, but it changed her, in many ways, and she found God again and she's now remarried, a grandma and full of joy. Just letting you know that some good eventually comes out , kinda like a silver lining, although you'll never stop loving your boy.
ReplyDeleteAlways thinking about you and Tripp!! You both have forever changed my life!! He is drumming to a beautiful beat right now with Jesus! Hold his memory and love close! I hope time will heal your pain! I never knew you or Tripp, but I will always remember Him and hope one day ifand when I go to heaven I can meet Tripp! He's first on my list!!!
ReplyDeleteHe impacted more people's lives in his few years than most will in many lifetimes.
ReplyDeleteIt's good to see precious Tripp.
ReplyDeleteWhen I see him playing and smiling through all he endured it reminds me again what a brave and precious little angel he is.
Hope your doing well thank you for sharing this special video.
You are amazing. Your courage and strength to put one foot in front of another inspires me every day. I love this video of your beautiful little Tripp. What a blessing he is to all of us.
ReplyDeleteYour always in my thoughts and prayers...
ReplyDeleteMy heart still breaks for you. But you and your baby's love inspire me every day. My prayers are still with you and all EB families.
ReplyDeleteI'm sorry you're hurting.
ReplyDeleteI read another blog of a mom who lost her 7 year old son to CF and she just had a baby 2 months ago, and she found out her new baby girl has CF. I thought maybe you could send her some love, and since you know as a mom what it is to lose a little one, you two could also talk and support eachother. Just a thought
http://notsobrightandshiny.blogspot.com/2012/09/26-days.html?showComment=1347680404259#c2176112842551701794
Thinking of you all the time! Praying for you!
ReplyDeleteHe's so precious Courtney! I think of both of you daily and I try to honor him every day by being a better person and mum and by spreading awareness about EB whenever I have the opportunity. Every time I see a butterfly or I hear an Elmo's song I feel it like gentle signals of his presence. Through your story I "met" him and I miss him too. And every 14 of the month I honor him in my own special way. You are in my prayers <3
ReplyDeletePraying for you right now, just because. :)
ReplyDeleteCourtney you are always in my prayers. Thanks for sharing Tripp with us all.
ReplyDeleteI don't know how you do it. Such an unbelievably strong woman.
ReplyDeleteAdorable!
ReplyDeletePraying for you Courtney.
(((Hugs)))
<><
Courtney it's been just over 4 years for my little boy in heaven just know that there are no longer in pain and are still little babies just like they left us I pray that you and your family wi I pray that you and your family will be at peace knowing that he is
ReplyDeletepraying for you and your family. Tripp is missed, for sure!
ReplyDeleteI too think of Tripp a lot especially the fourteenth of each month. You changed me Courtney for the better and I strive to be a compassionate strong mother like you. Tripp continues to live on in the hearts of so many people- many who never met him. Few people can ever say they did do much let alone in such a short life. I am sure he is reaping his reward in Heaven and I hope I will be worthy to meet him one day.
ReplyDeleteWishing you strength and future happiness x
He is precious! What a great memory you have of him! I love following your blog, and I'm glad you are still blogging! Thinking of you...
ReplyDeleteStephani
Sending you my love Courtney. Perhaps you could reach out to another family whose baby was born on August 23rd and they think he has the most severe form of EB. He's battling very hard and his family is learning just how difficult his battle is going to be. Look up Easton Friedel. I think you could really help this family.
ReplyDeleteCourtney, I am so sorry for your pain, Tripp is looking down on you everyday and is so proud of you even though you have sad and bad days he is so proud of what you have done and what you continue to do daily. You have all the right to be sad, you have gone through more than any Mom should ever have to go through. I want to tell you Courtney every time I get an email saying you have done a post I am so happy because I think of you daily and wonder how you are. I am so glad you still take the time to post because we all want to know how and what you are doing. I know that every time you post that you are going t be sad but at least it is nice hearing from you and knowing you are okay. SO THANK YOU COURTNEY!!!!
ReplyDeleteCourtney - you've been on my heart for several reasons this week. First a baby boy was born with EB in my town and his story has been circulating through Facebook. (Baby Easton in Columbus, Ohio.) I'm ashamed to say I haven't had the nerve to read his story because following Tripp's life was so difficult. (I feel ridiculous saying that when your pain is obviously so great. But I think everyone got to know and love him and we all felt like we lost him.) Also I saw the episode of Dr. Phil with Trayvon Martin's parents this week and his poor parents were describing the pain of losing their child. I know that's every mother's greatest fear and I hate it for you so much. I've said it so many times before but I am such a better parent because I know your story. I don't take a second with my son for granted. I'm so grateful for all the good that's happening for you. You deserve all of it and more :)
ReplyDeleteSuch a smart and handsome lil man!! Thank you for sharing because of you I appreciate even more my five boys... LETS get rid of EB so all the butterfly kids out there can have a pain free life vote for DEBRA on the chase community giving so they can win the $$$$$ to help on the research for a cure.. Baby easton friedel page on facebook has the link..
ReplyDeleteHandsome and smart lil angel RIP... Thank you for sharing because of you I appreciate even more life and my five boys THANK YOU you are such a great example of what a real mother should be DIOS TE BENDIGA (god bles you).. Lets help DEBRA on the chase community giving by voting for this organization (debra) so they can win the money for the research of a cure of EB find the link on: support baby easton friedel facebook page, because every child deserves a PAIN-FREE life..
ReplyDeleteWill never ever forget your sweet baby boy Courtney. You remain in my prayers daily. Thank you for sharing your little man with us. May God bless you and you never feel far from His love.
ReplyDeleteI could watch Tripp videos all day. What a personality! Thank you for sharing your beautiful son with us. Because of you and Tripp - I believe I have become a better person. You probably don't even realize how many lives you have changed just by putting your heart out there and I thank you for that. Since reading about Tripp I have been trying my best to donate as much as I can to DEBRA...through my work we can sign up for Combined Federal Campaign where you pick an organization to donate $$ to - either on a one time basis or have it taken out of your paycheck every pay period. I am going to continue to donate to DEBRA in the hopes that one day there will be a cure and babies will not have to suffer like poor Tripp. God Bless you. My prayers are with you and all the other families battling with this horrible disease. Sending you lots of hugs from Alexandria, VA. Gloria
ReplyDeleteI miss him too! He was soooo adorable.
ReplyDeleteSending you tons of love frm Spain
Just stumbled upon your blog. My heart breaks for you and your loss.
ReplyDeleteCourtney... I feel terrible to think that I haven't been reading blogs this year and I just found out about Tripp's leaving you. I feel ridiculous at just thinking about saying whatever to you... there is nothing I can say.
ReplyDeleteBut I want you to know that you and Tripp opened my eyes to a love and courage life. That you've been in my prayers and thoughts and will continue to be. That all the great things that are happening to you know are well deserved and are blessings that your little angel is sending (and will ckeep sending) to you because you made him so happy. You have every right to enjoy them and be happy and keep telling all about it to him.
I hope your pain becomes more bearable.
Love,
Shanti
He was sooo good at ignoring his Mommy :o) That selective hearing is tricky like that!! I miss him too and I never even met him. I know that your heart and soul feel empty but there are many good things to fill that hole with until the day you see him again. Remember...you have eternity to spend with him, this is only temporary :o) Much love and prayers to you always!!
ReplyDeleteKelley
I never met you, Tripp, but I think about you almost everyday.
ReplyDeleteI have been sitting here watching Tripp's videos again. I love watching his videos! Even through his pain he would smile and play. There are not many people that can do that. He IS one amazing little boy! He is with the angels anxiously waiting for you and holding your spot. Happy 8 months in heaven little man!!
ReplyDeleteI miss him too. I hope you are letting yourself grieve fully. Don't hold back for the sake of those around you. Let them grieve their way, and sweetie, you grieve your way...upfront and honest. It will serve you well!!!
ReplyDeleteYour little boy is too adorable, Tripp is so sweet! All strenght to you Courtney. I'm so sorry for your loss.
ReplyDeleteLove, Maria
Hi Courtney,
ReplyDeleteI am missing that little drummer boy too...
Hugs and Kisses from a Filipino follower.
I check here often......I never leave without shedding some tears. You are a wonderful and special mother just as Tripp was a wonderful and special child. I see Gods love and grace every time I come to this page. Praying for you always and trying to be half the mama you are....<3
ReplyDeleteYou don't know me, but I read your blog every since i saw prayer request for Tripp last year. I came across this site for a friend of a friend that's baby boy is battling EB as well.
ReplyDeleteEaston was born 8/23/12 with a rare disease known as Epidermolysis Bullosa (EB). Donations for Baby Easton can be made here http://igg.me/p/212935?a=1117035 (Click link to read the entire story and donate.)
Courtney I just found out your blog (idk even how but i thank god i did) I get to know about a little angel named Tripp and the most brave woman i have ever hear of... You and your family will be in my prayers from now on... i hope that little precious angel for yours will take care of all of us. The best for you and your family.
ReplyDeleteTripp is absolutely adorable! I'm so sorry for your loss! It's absolutely heartbreaking! Thoughts and prayers are with you and your family. Xx
ReplyDeleteThinking of you and praying for you every day. Know that I will never forget your sweet baby boy.
ReplyDeleteThinking of you and praying for you daily. Please know that your sweet boy will never be forgotten and he has touched my life forever.
ReplyDeleteI love that video! :) What a cutie!
ReplyDeleteOh mama - I am so sorry for your loss. I have also recently lost a baby so I feel your pain! Reading through your posts has been eye opening. I had never heard of EB. I am glad you share.
ReplyDeletePraying your road gets smoother. It may never get "easier", but I pray it gets smoother for you, if that makes sense. Your Tripp is a joy to watch. What a sweetie.
ReplyDeleteGrieving with you dear sister in the Lord. Saw your blog link on baby Easton's donation page. I am seriously mourning for you and all butterfly baby families. What dedication and faith you have and truly inspires me to live for Christ more. To love my own children more and to look forward to seeing Tripp and my four babies in heaven! What a celebration they must be having and I rejoice in knowing that the Shepherd is holding them all close to him. Press on and live a life for Christ. Your precious son is a beautiful testimony for Christ. xoxo
ReplyDeleteSo sorry for your loss, my thoughts and prayers to you and the family.
ReplyDeleteI am soooo sorry for your loss! I check in every now and then to see how you are doing! But you and that sweet baby boy are always on my mind! He has touched my heart from the very first time I came to your blog! He was a talented little angel! I hate that you have had to go through losing him! My heart truly breaks for you! I watched these videos and started to cry! He is sooo precious! I just wanted to share with you how much I have been touched!
ReplyDelete