Tripp has been scheduled for tomorrow at 8:00! Neither of Tripp's eye doctors had rooms in the OR this week... So the surgery coordinator, Angel (name so appropriate), called Tripp's ENT, Dr. Rodriguez, and she gave up one of her OR rooms so that the eye doctor can remove the ring in his eye tomorrow!!! I'm so so grateful. We have to be there for 7:00, which means we have to leave for 6:00. So please keep Tripp in your prayers that taking this out of his eye will give him the relief we have been waiting for! Thank you all so much for your support, prayers, and oh so kind words.
Love, Courtney
- Posted using BlogPress from my iPhone
Thank God for Angel(s). I will pray that the surgery goes well and that Tripp will start to feel better. Stay strong and loving. a scp resident
ReplyDeleteCourtney,
ReplyDeleteYou were right to vent in your blog and it makes me sad that anyone would judge you. I think you are amazing Mother ! It seems to me that the most difficult thing for any mother is to watch their child suffer and in pain. My payers continue for precious Tripp and for you as you so lovingly care for him each day.
May God grant you strength and peace as He heals Tripp.
Hugs and extra prayers for the surgery !
Linda G.
Yay for tomm. Things are coming together and I think this surgery will be the stepping stone to great improvement in Tripp's condition. I am praying for you guys from Maryland. Stephanie
ReplyDeleteCourtney,
ReplyDeleteI've followed your blog for sometime now and pray for you and your family quite often. I've never commented until now. Your blog left me in tears today. I'm a mom (and Grandmother) and I can't imagine what you and Tripp deal with on a daily basis. I truly think it must be the "amazing grace" of God that enables you to be such an incredible Mom.
Courtney, I wish I lived where I could volunteer to help in some way...to lighten your load in some small way.
What I can do is pray and encourage you to stay strong and stay focused on what your divine "calling" is right now. Continue to fight for Tripp. God knew He could trust you with this job and you're doing it . You're doing it very well. He's a blessed little guy to have you for his Mom, his advocate, his nurse, his cheer-leader, his ALL.
I'll be praying that his surgery goes well and that relief is on the way.
We'll be thinking and praying for y'all! Love and respect, Tim
ReplyDeleteDear Courtney & family
ReplyDeleteI never knew about EB until I recv'd link to Samantha and Jonah and Tripp, your journey amazes me with each update.
I adopted two children from Paraguay who were later diagnosed with severe special needs. People, professionals alike would comment saying things like "Oh, how devastating to end up with two kids like these" etc.
The amazing gift God has given us to be chosen to be "their" Mother is beyond words. The heartache to witness the pain these Angels endure daily brings me to my knees, but I truly believe they are Angels!
I love the poem about the plane landing in Holland instead of Italy, how this life was unexpected but, He always knew!
I can remember a doctor telling me to try something and get back with him in 2 weeks and my reply was "you spend 24 hrs with my child and then tell me about waiting 2 weeks!"
I think God made us more tenacious, being an advocate for our children means we have to fight for everything and it requires battle after battle. I so understand your frustration, you just want to say "Hello" do any of you have a clue?
Well, I guess I will close by saying, I am so proud of You and I know that twinkle in Tripp's sweetness is a reflection of the love you light his world with each and every day!
Love and continued prayers, Pam
I just said a prayer for you right now! I hope Tripp feels much better now, and I hope you and your husband can be strong together while you wait through the surgery. I know it's never easy to worry about a loved one through surgery, and especially not your little guy, but just lean on each other and trust in God and know everything will turn out just fine in the end.
ReplyDeleteRead your post yesterday, heartbreaking. I don't know how you do it. Made me cry. You are so strong, but what else could you possibly be. I've been following your blogs and you are usually so positive and I don't think I could be like that given the same situation. Vent away. I wish you could have a day off. Tripp too. I'm praying for you and Tripp.
ReplyDeleteCourtney-
ReplyDeleteAfter reading everything that Tripp goes through...it made me wonder how he does smile. But he does and in my heart I know it is the love that you shower on him shining back through. I had to step away from my computer half way through your earlier post. I couldnt see through my tears. There have been nights that I have been up thinking of Tripp. There is a song...He's My Son - Mark Schultz. I would listen to this song years ago when my nephew was diagnosed with Osteogenisis Imperfecta (brittle bone disease) and think of him...and cry. Now it has become the song that makes me think of Tripp, your husband and you. I am sorry for the lack of understanding...but it seems like those that are close are the ones that dont fully understand. My daughter has an interstitial lung disease...yet I have people that walk into my house and dont think or care about cleaning their hands. It is scary and I live in fear. I guess people become so focused on themselves they dont see the bigger picture. I have so much hope in Daylon's and Bella's journeys that a cure for Tripp and Jonah is just around the corner. Your son is in my heart and in my prayers daily. My hope is that those that dont understand read your post and finally get it.
Tripp- Sending you love little guy...even though we have never met you have captured/stolen my heart. xoxox
Denise WI
We are friends of Bella's and want o send our bery best for Tripp tomorrow and prayers of strength.
ReplyDeleteTina in NJ
Praying for that sweet man to have a calm, successful surgery. Praying for you and Randy, too! Please keep us posted!!
ReplyDeleteLove from TX!
Laura
Thinking of you and your sweet little baby, let it go well !
ReplyDeleteI hope the eye surgery is successful and sweet Tripp can feel better...
ReplyDeleteSweet Tripp Get well soon, we SO miss your tricks!!
love and hugs
Praying for and thinking about Tripp, I'm so very glad that he is being made a priority by the doctors and hospital and that they will get that ring out ASAP. I remember when Leah was suffering with EB eye issues, the blistering, scratched corneas, terrible pain, unable to open her eyes, it was so incredibly sad. But Leah's amazing parents (Meg & Jeff) took such good care of her, and I know that you, Tripp's amazing parents (Courtney & Randy) will help him get through this terrible EB eye complication too. Praying for Tripp and the doctors and nurses that will be taking care of him today. Also praying for strength for you, his parents, so that you can continue to take such wonderful care of your sweet little man Tripp. Love, Judy Turnquist(Leah's Grandma, Jeff's Mom) Bowie, MD
ReplyDeleteCourtney, you have the sweetest boy in the world there, and you were absolutely right to post what you did last time. A few years ago I was in a different bad place so I know what really bad places are like, and Courtney, the best thing to do with people who can't or won't understand is lose them. No matter who, friends or family, whoever. It sounds drastic but you have to protect yourself because you need your energy for Tripp. I had to lose two people who had been friends, but without any bad intentions they were bringing so much negative stuff with them, it was taking too much of my strength to cope with them and I needed that strength for my kids.
ReplyDeleteYour post was heartbreaking, sometimes there just aren't words that will help so I'm sending you and that sweet boy love from a stranger.
Li.
I'm so happy to hear that someone was able to help you out- you'd think people would go out of their way to do that for you and your sweet boy!
ReplyDeleteI'll be thinking of you this morning and hoping everything goes well. Stay strong and know you have a lot of people that not only support you, but also think you are the best mom in the world. Hugs.
sending good thoughts and lots of prayers for a successful surgery and easy recovery.
ReplyDeleteYou are all in my thoughts and prayers.
ReplyDeleteYay! That is definitely an Angel at work. You and Tripp are in my thoughts today.
ReplyDeletePraying for Tripp. May the Lord our God comfort you as you go through these trials. May you feel his loving arms around you. Praying this will bring Tripp relief. I am amazed at his smile every day.
ReplyDeleteCourtney,
ReplyDeleteI admire your strength and ferocity in fighting for the best for your amazing son-no wonder he is so strong-he has an incredibly strong mom! I am praying for a successful surgery and relief for Tripp's eye-and I pray daily for someone to find a way to give Tripp much less pain. I pray that someday he will experience moments of pure joy and you will experience the joy of watching him! Take care. Linda
Angels all around you tomorrow Courtney!
ReplyDeleteI am so happy that Tripp will have his eye surgery. I hated having hard contacts in my eye, poor baby, can't even imagine what pain the ring is. It definately is severe since he doesn't even open his eye! I hope he feels better.
ReplyDeletePraying for Tripp.
ReplyDeleteCourtney,
ReplyDeleteTripp and your family will be in our thoughts a prayers. The eye issues that go along with EB are awful. Evey deals with this on a regular basis and as a mother I know I always wish I could take her pain on and endure it. It is so hard to watch our children struggle with this devasting condition. Take care!
Praying for Tripp and your family. It is hard to deal with people who just don't understand. I hope that they will realize that all you do for Tripp is for the best and very much needed. I hope all goes well tomorrow, you will be in my prayers. ...{LOVE}...
ReplyDeleteThe people that do not wash their hands are just RUDE (and stupid)! Since they are so RUDE(and stupid) just TELL them to wash their hands.
ReplyDeletePraying for Tripp and your family!
Hi Courtney!
ReplyDeleteHoping everything went smoothly for Tripp and that this brings relief. Thinking of you...and admiring your resilience throughout this battle. You are loved.
PRAYING for Tripp. Strength and prays for mom and dad also!
ReplyDeleteIn Christ
Hope the surgery went well and that Tripp is getting some relief from his eye pain.
ReplyDeleteIt makes my heart so sad to think of what he endures each day. My thoughts and prayers are with you.
Hoping the surgery went well. I have thinking of Tripp a lot. Sening hugs and prayers your way,.
ReplyDeleteThinking of you!!!
ReplyDelete