Friday, February 11, 2011

WWL Channel 4 story

Great news.  The local news station here- WWL Channel 4, will be airing a story on Tripp.  It will be appropriately titled "Angel Baby."  It will not be a documentary type story on EB (that's not what this station does), it will simply be a story on the joys and sorrows of Tripp's life and what he endures each day.  Tripp's wonderful pediatrician made it to the house that day to do an interview as well.  Randy was working, and Randy's mom was out of town.  So it was my mom, Dr. Defusco, and I. 

The story will air on Tuesday, February 15th at 10pm.  There will also be advertisements throughout the weekend- and they are even working on getting an advertisement during the Grammy Awards... which I thought was pretty cool:)  So keep your eye out for my cute little man.  And a fair warning: During my interview, I thought I was going to be answering questions about Tripp's disease, however I was caught off guard when Mr. Bill started asking me things like, "What do you pray for at night?" and "How strong is your little boy?"  So... there may or may not be some tears flowing.  I just couldn't help it. 
Also, for those of you who are not in this area... the story will also be on their website:
I'm not sure when or how long it will be there though, so when I know more I will let you know.

Since I have started Tripp on 2 oral antibiotics, nebulized breathing treatments, and oxygen... he's been feeling A LOT better.  Though like I always say- blogging about it could change things... But he's been having some pretty good days.  Playing and being the little ham that he is.  He had an awesome day yesterday visiting with his Daddy, and then had a really good bath.  He even got in his walker yesterday after bath for about 30 minutes... which hasn't happened in about 3 months.  I was in heaven.  I am stealing an awesome quote from a good friend-
 "Imagine waking up tomorrow with only the things you have thanked God for today." (thanks Aly:) 
I love this.  And I often get so caught up in the moment when Tripp has a good day, that I forget to thank God for it.  This definitely makes me realize that I too often pray to God for good days, and then put Him on the back burner when things turn "good" for us.  Something I need to work on. 

  But I will end with these precious pictures from the past 3 days.  His eyes can be a little deceiving... they are open wide, but overgrown with tissue:(  Though he still finds a way to play and get exactly what he wants!

SMILE for bath! Look close- because it might not ever happen again:)

"Snapping with Maw Maw Pat"



  1. congratulations, dear, I cant wait! (:

  2. Wonderful news! Tripp is a real star! Maybe it is difficult to get outside for him, but we will be glad to welcome you to all of our homes through TV :)

  3. I can not hold back tears of joy to see these pictures of Tripp ...

    Thanks Courtney by news of the little man is so good to know that he is better with the new medication ... who played for more time ...

    I think both you guys ...

    I believe that God is on your side.

    Kisses with love and believe that miracles happen.
    Sandra from Portugal

    PS: I want to see the article on the Tripp on the site of WWL Channel 4, says when online.

  4. The pictures are worth a thousand words, aren't they Courney? How beautiful the quote is... it is sure to have people thinking and thanking God for some simple or huge treasures and moments in their everyday lives! I just love you and your little man and I pray every day for you, my friends in Louisiana! You have captured my heart!

  5. Awesome, can't wait to see it.And I am so glad to hear from you and Tripp, as always we are thinking of you. We love you Tripp:)

  6. Hi Courtney: I am so thrilled that Tripp is feeling better. You must be so so happy. Give that precious son of yours a big hug and kiss for me. You guys are always in my prayers.
    God Is Good. Love you guys. Love Leah's Nana

  7. All that keeps coming to my mind the whole time I am reading is "Praise God, Praise God!!". It's so good to see him smiling!! I can't wait to see the interview.

  8. Courtney,
    I dont know you but I am sure you get comments from strangers all the time and I have been reading for a while and I can't not say anything any longer.
    I think you are beautiful and strong, ass is Tripp and you must feel so blessed and priviliged to have him in your life. How lucky are you to have this sweet spirit to greet you each day!
    Every time I read one of your entries I am brought to tears, your story is very moving. And today I will thank God for everything I have, especially my little boy.
    Stay strong.

  9. SO happy to hear that Tripp is doing better. What a beautiful smile he has. Can't wait to see the story on you and Tripp. Sending prayers!!!

  10. I don't comment often; but I do read your blog daily. So glad that even though I don't live in your area I will be able to watch Tripp's debut on their website. So glad that he is feeling a little bit better this week. Always praying!

  11. OHHH This just makes my heart smile!!!!
    Thank you for sharing,,,it is soo wonderful knowing God is blessing Tripp with better times:) Thank you LORD, may YOUR Blessings continue!

  12. Can't wait to watch it on the web!

    SO glad he's feeling better and will pray that he continues feeling better each day. Much love to you and Tripp!!

    Love from TX,

  13. just put it into my tivo :) cant wait to see it
    glad he's feeling better!

  14. Dear Courtney, yes, his eyes do look so much better in the pictures, Im so sad it's deceiving, that was the first thing I noticed ! Here is to hope for only good and better days. Sending hugs to the precious boy !

  15. I'm so glad to hear that you and Tripp have had some happier days! I'll be praying for more of those kinds of days for ya'll. I'll be checking back for more information on the special, I'd love to catch it online.

  16. My mom and I have been praying for Tripp!

  17. i'm so glad for good days for tripp (and you)! i'm praying for many more great days.

    i can't wait to see the story on your sweet boy!

  18. Courtney,
    I have been following your blog for awhile. I have started to comment a few times and didn't know quite what to say. You are such an incredible mother and Tripp is such a brave, wonderful little boy. Please know that you are in my prayers each and every day.

  19. Oh, I am so looking forward to the TV segment. Thank you for mentioning the link where we can watch it. I'm praying for more good days/nights for Tripp and you.

  20. So happy to see a new post. You have no idea how many people care about you and your little man. Thank you for posting the link - I live no where near you but am anxious to see the story on your little man.

  21. Love the pic of the back of his little round head...I could just run up and give him a big ol' kiss right on top of it! LOL.

  22. I have a box of cloth diapers that my son wore from the time he turned 1 till he potty trained. Can you use them? or do you know someone that could?

  23. Courtney, I just love you too more than words can say. It is like that feeling when you have a baby and the moment you see them you are instantly in love! You and Tripp have captured my heart in that way, and I truly thank god everyday for allowing me to witness both of your strengths and devotion to life, love and happiness! I cried like a baby when I first read about the interview, I am so extremely happy for you! I will continue to pray for both of you!
    With all my love!

  24. Courtney, I just watched the segment on WWL. Loved see you share your story. You are a great mom to that amazing little man. He truly is the strongest person I've ever seen.

    Sending many more prayers your way.

  25. Love the pictures.... they are making me smile all the way in MN.
    Thanks Tripp!