We have been doing pretty good, except for the sleeping at night and a few trach problems. Last night was a little better than the rest of the week, he was up about every hour. Which is good lately. It's amazing how much "a little bit better broken sleep" can make you feel. He is still on the steroids and we are going to try and keep him on a low dose for a while until I can figure out what I want to do about hid mouth FULL of teeth. They make his sores look better and I guess make him feel a little better. We have been extremely busy around here, trying to get back in our house. We added on a bathroom and a living room. That way Tripp can have his own bathroom and we can make the other living room his playroom with all of his toys (without all of his dressing supplies!) Our house is reallllllly old, so it was way too small for us. Now we have so much more room. It feels great. Tripp still isn't sure where he is when he's in his new living room, but he will get used to it pretty soon. And he will LOVE his new playroom when it's finished, I know it!!
We will probably be going to see the ENT tomorrow. He has been coughing a whole lot and had some small amounts of bright red blood every now and then coming out of his trach. So I just want to make sure nothing is going on down there.