So far, today is a little better than yesterday. Here's the catch... I finally talked to Dr. Shah today (who did the surgery)- I had missed his call yesterday. And today he says this: "Well, all those things are normal (not opening his eyes, swelling, watering, pain)." And he also says, "I also had to make an abrasion on his cornea while excising the lid, so he's probably going to have a really rough week." UH, are you serious? Ok, so that could explain why he won't open his eye and why he's in excruciating pain. Which, if I would have known that I wouldn't have been so concerned about how he was acting... but when he came out to talk to us after surgery, he said everything went well- he just placed the ring in and snipped the granulation tissue. And said he wouldn't need anything for pain. Guess that changed.
Anyway, (as my grandpa used to say, in his low deep voice)- "Whatcha gonna do??" At least I know now why he's in so much pain and I can expect the next few days to be rough and that's normal. Though he has been running a little low grade fever. But that could just be the stress from surgery.
With all that's been going on, he's about a month late on shots. He'll be 16 months on Tuesday and hasn't had his 15 month shots yet. But last week he was running fever so Dr. Defusco didn't want to give them, and this week he had surgery and couldn't get them either. So I guess next week he will be getting shots. Poor man. I hate shots. But Dr. Defusco threatened me again with the "no kids" speech. Especially now that he's behind on shots. So he just cannot be around kids or really anyone who is "around kids." It's too risky.
MY SISTER IS COMING HOME ON MONDAY!! I guess my guilt trip worked!! She's staying until the next Sunday. I miss her so much and I'm so excited. I really hope Tripp is feeling better so she can see all the fun stuff he's doing in person. I hope she can get out of the handcuffs I'll have her in and doesn't miss her plane to North Dakota. Otherwise, Uncle Mike will probably be kind of mad at me. :)
So far today, Tripp has opened his eyes a little bit more. The surgery eye is still really swollen and watering like crazy. But he actually rode around in his car a little today, while I sang 100 songs. He's a little doped up on the tylenol with codeine- but whatever works. At least he actually did something other than rock All. Day. Long. So it's only 2:00- I'm hoping things only get better and not worse. Thank you all again for your love, prayers, and support.
Love,
So glad to hear that all is normal and he's doing a bit better today. How exciting that your sister is visting ~ have fun!
ReplyDeleteHang in there Courtney, you are doing a fantastic job taking care of this remarkable,amazing, beautiful baby!!!! Always in my thoughts and prayers!!! Love, Monica
ReplyDeletei've never posted a comment but followed aa link from Patrice to get here. Tripp is an amazing little fellow--as are his Mom and Dad. Thanks for shareing Tripp. I am proud to "know" you
ReplyDeleteOk...so I guess I will stay away for a while since I see/teach about 750 kids in a week!!! But I know you know we love you and pray for you everyday of our life!!!! You, and everyone who helps you with Tripp are heroes in my eyes!!! And Tripp is the sweetest angel I have ever been blessed to know! Take care and I hope the weekend gets better for all of you!!! At least Britt will be here on Monday!!!! LOVE LOVE LOVE YOU ALL!!!
ReplyDeleteShelly
Okay, can I just say that I love your little boy! He is such an amazing guy! I LOVE that most of his pictures of him, he always has a smile on his face! I adore him!! xoxo
ReplyDeleteIt amazes me how God picks such wonderful people to nurture, love, and guide these special children. Each mother chosen has something so special, whether it's a fun-loving personality, patience, strong-willing, unending love - you are all so special.
ReplyDeleteSeveral months after my nephew was born, (he was born w/ spina bifida & hydrocephalus) my sister was havin' a low moment while at physical therapy. A lot was going through her head of "why me?" and "how did i end up like this?". at the end of the session, the PT, who is just dang-right beautiful - inside, out, and all around - handed her a sheet of paper and this is what is said:
Some Mothers Special
by Erma Bombeck
Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year, nearly 100,000 women will become mothers of children w/ disabilities. Did you ever wonder how mothers of these children are chosen?
Somehow I visualize God hovering over Earth selecting his instruments for propagation w/ care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger. "Armstrong, Beth; son; patron saint, Matthew". "Rudledge, Carrie; twins; patron saint....give her Gerard. He's used to profanity." Finally, he passes a name to an angel and smiles, "Give her a child w/ a disability."
The angel is curious. "Why this one God? She's so happy." "Exactly," smiles God. "Could I give a child w/ a disability to a mother who does not know laughter? That would be cruel." "But has she patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock & resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give to her has his own world. She has to make it live in her world and that's not going to be easy." "But Lord, I don't think she even believe in you." God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness." The angels gasps, "Selfishness? Is that a virtue?" God nods, "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman whom I will bless with a child less than perfect."
"She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never be considered a 'step' ordinary. When her child says 'Momma" for the first time, she will be present at a miracle and know it. When she describes a tree or a sunset to her child, she will see it as few people ever see my creations."
"I will permit her to see clearly the things I see - ignornance, cruelty, prejudice - and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life; because she is doing my work as surely as if she were here by my side." "And what about her patron saint?" ask the angel, his pen poised in midair. God smiles, "A mirror will suffice."
*I hope you didn't mind this long comment. I just wanted you to know that I envy you and the strength you have daily to endure and take care of Tripp. He's a very lucky lil' boy to have such wonderful parents as you are; to make sure he's gettin' the best of care and the love (and then some!) that he receives everyday. May God continue to bless you all and continue to provide you w/ the support, love, and each other each day.
Hi Courtney,
ReplyDeleteGlad "the little knight" was feeling a touch better today. Ditto on if Dr.'s would only give us a heads up on what to expect after medical procedures. It's like if you don't ask questions they don't say a whole lot. Sorry you had to suffer additional stress 'til you were able to talk to him. Extra prayers for all of you.
Rachel
Oh dear, corneal abrasions are yuck. I've had one and it just made my eye water and water and sting a lot. Poor little guy. *prayers*
ReplyDelete