Saturday, January 28, 2012

A note from Grammy

 No one really teaches us how to become parents. 
 We learn from our parents and grandparents.
We read books, we google and we pray that we do the right 
things to make us qualify as good parents.

Courtney, when you were very young, 
you loved taking care of your dolls.
As you grew older, 
you loved taking care of other people's children.
They were always attracted to you and your smile!
After you became a nurse,
you loved taking care of your "little old people".
You REALLY loved it!!
When little man was born, 
you were sure to love taking care of him.
I knew you would be an incredible Mom!
I just didn't know HOW incredible!!
You stepped into the unknown world of EB 
and gave your ENTIRE self....
EVERY DAY and EVERY NIGHT!
For two years and eight months you gave!!
The minute Tripp was born, you showed him nothing but
 love, patience, joy, happiness and
PEACE.
I know you prayed for peace for him,
but you gave him peace just by your presence.
From the first breath he took until his last breath in your arms, 
you surrounded him with an amazing peace.
He loved your voice and how you smelled.
He loved for you to sing to him and "rock rock" him 
and whisper "I love You" in his ear. 
You and he had a perfect love. 
I watched you bring him peace every day!!
He was happy because all he ever knew was happiness from YOU!
He smiled because of you!
He chuckled because of you!
He danced and shook his booty because of you!
He played his drums in perfect rythm because of you!
He loved Elmo because of you!
He even fussed us because of you!
He lived for two years and eight months 
because of you!
You are an AMAZING mom groomed and handpicked by God
to nurture one of his angels.
You did the most incredible job TAKING CARE OF Tripp.
God Himself prepared you well!!
It was such an honor to help you care for him.
Thank you for trusting me with your Angel!
I wouldn't trade a single second of the time I spent with him!
I too wish I could do it 100 more years, minus the pain.
What a brave little soul he is. 
He captured hearts all over the world. 
He was, is and always will be my HEART! 
Grammy's Angel!
I love you and I am so very proud of you Courtney!




I love you Bubba.
You are the strongest little man I will ever know.
You gave each of us a new lesson about
 love, patience, kindness, selflessness and generosity 
without speaking a word!
WHO DOES THAT? 
You and your mom are heroes to me and many others.


I will miss you every single minute of every single day.
Take good care of your Mom now!






Thank You...
First to God for trusting me to help care for His Angel.
What an amazing gift he was.
Then to everyone who had a part in helping Tripp 
with his mission on this earth. 
His mission isn't over yet,
 as he is still bringing people closer to God!!
He has made me and anyone who "knew" him
a much better person.


One last thing...
Courtney assures her Dad and me that she will
be taking care of us in our old age.
I feel extremely comforted by this.


All my love to each of you reading this.
Your love and prayers helped 
Courtney through many dark days.

Please continue to pray for her peace. 

Love,
Anita
Courtney's Mom
Tripp's Grammy

178 comments:

  1. Beautiful & praying for all of you. <3 {{{Hugs}}}

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  2. Hugs and prayers for you all. So many lives changed for the better because of this sweet little guy and his amazing family. <3

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  3. Wow, what a wonderful relationship you two have! You know you deserve some credit to! You raised that wonderful caring daughter!

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  4. This was truly beautiful!!! Blessings to your amazing family.

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  5. What a wonderful letter to your dear daughter. What a wonderful grammy you are to Tripp. My heart still aches for your loss.

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  6. Much love to you, Anita, and Courtney.

    ((((Hugs)))))

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  7. Oh that's beautiful!!!! Still praying for all of you!!!! ♥♥♥

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  8. What a beautiful note! Thank you for sharing this with us. :)

    I am still praying and praying for Courtney and your family. It aches my heart knowing the pain you all are going though. I cannot imagine the pain of losing a child.

    Praying,
    <><

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  9. I just read the Note from Gammy-brought tears to my eyes and as they flow over now-no one could have said it any better!! Praying for Peace and Comfort!! I pray that the Lord wraps his comforting arms around the family-I love yall-without even knowing yall personally-I love yall

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  10. If the world could have Courtney's heart what a great world it would be. I have a little boy who is 2 years 10 months old. I have always loved him dearly but Courtney & Tripp have helped make my love even deeper for him. Thank you to Courtney for sharing her beautiful baby boy, Tripp, with us.

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  11. Beautifully said Grammy. Many prayers being said for strength for Courtney.

    Courtney...Tripp was a very lucky boy to have a mother so very devoted to him. You gave Tripp 110%, even on the hardest of days. I am sure he is smiling down and whispering "I Love You Too Mommy" in your ear. He will always be with you.

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  12. U both have been such a blessing to not only Tripp, but everyone that read ur blogs. Thanks 4 letting us in to witness gods angel at work bringing people together in his name. Watching u trust god. I will miss his drumming, but in no form could I possible know ur pain. Praying 4 all of u.

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  13. You, Courtney, and Tripp will always be lifted up in our prayers. Thank you so much for sharing this beautiful little angel with us. I am forever changed because of him. Thank you, also, for your testimony and your faith. Tripp, you will always be my hero.

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  14. You and Courtney both did an amazing job taking care of Tripp. Thanks you for sharing your family and Tripp's journey with us. May you find peace and comfort in the days ahead. <3

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  15. Your family has shown me so much strength and courage. You all are truly special people and there us definitely a place in heaven for beautiful people like you. I continue to pray for your peace and strength during this hard time. Just know that you, your daughter and your grandson are all an inspiration to me!

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  16. Anita,
    What a beautiful post. I can only guess that the reason Courtney is such an amazing mom is because she was raised by an amazing mom. You are so right when you say Tripp is still bringing people closer to God. I don't think a day has gone by since I found this blog that I have not thought about your family and prayed to God to give you peace. I have a son only two months older then Tripp and he can be very "challenging". I used to get so upset because of his constant screaming but now I think.....Courtney would give anything to hear her baby right now...so I try to be more patient...more loving....more like Courtney. I can't help but think of Mary and the beautiful son she was sent...she had to watch him suffer and die but he was the light of the world and sent for the most amazing purpose. I think Tripps light is shinning so bright and I for one will never forget all that he came here to show us. Sending love and peace to your family.

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  17. What Amazing words! So touching to read it all and it is so true that Courtney did give Tripp that Peace we all prayed for! Praying for Gods Peace-Love-Strengh to continue to drown Your hearts, souls and minds! thank you for the update as you all have been on my mind everyday!

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  18. This is so beautiful. Courtney- I have been thinking and praying for you so much, and the rest of your family!
    Nicole

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  19. What a beautiful letter to your amazing daughter Courtney. You, too are a wonderful mother! Continued prayers for your entire family.

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  20. Oh how my heart breaks reading this.. for the pain that you felt for your daughter in pain who in turn was in pain for her son.. so heavy hearted. This was a truly beautiful testament to read.. what a wonderful grandmother, what a wonderful mother. God absolutely had the best people picked out for Tripp, God Bless you all. I will continue to pray for strength for you and your family as you move onto this next chapter in your life. You are inspirational and I'm so very thankful you bared your heart and soul in these posts and shared your precious son with all of us.
    Much love and peace to you.

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  21. Absolutely beautiful. Courtney is so lucky to have an amazing mom like you to help and comfort. As mothers we always want to be reassured that we are doing a good job and I can easily say that both of you are 2 of the most amazing mothers I have ever known. You both loved Tripp and took care of him with every fiber of your being and it is an honor to be able to share your journey with you through this blog. I will continue to pray for Courtney and your family for peace and comfort. God bless.

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  22. Praying for YOUR peace Courtney, Anita that was just beautiful God BLESS you all. Tripp I think about you daily never got to know you but I miss you so much!

    Lots of LOVE to all
    God bless,
    Mary

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  23. Wow, your mom is just as amazing as you are. I see who you get it from now. That is the sweetest letter. Praying for you and your family. I know that it gets harder each day that passes by but by the grace of God we become stronger. It doesn't get easier, God just makes us stronger so that we can face a new day. Sending (((HUGS))) your way. Thanks for allowing us to be a part of your journey. We miss Tripp so much and are so grateful that he us with his life.

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  24. Such an amazing post. Not a day goes by that I don't think about you and your family. I am holding a fundraiser at the school I teach at in Tripp's memory and donating the money to DEBRA. Continue to be strong!

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  25. Mrs. Anita, thank you so much for sharing with us. Courtney learned how to be a good mommy from her good mommy - you are amazing, too! We continue to pray for Courtney and for you, too - I can't imagine how much you miss that sweet Tripp. Hugs to both of you!

    Love from TX,
    Laura

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  26. Amazing...I continue to pray for all of you...I'm sure Courtney learned a lot about love and caring for others from her amazing mom and dad... :) Hang in there Courtney...loves n hugs :)

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  27. Thank you Grammy and a thank you to your courageous and loving daughter, as well as her entire support system of family and friends. Courtney's blog was a story that touched everyone who read it. Such an outpouring of truly unconditional love. She must have had wonderful, loving role models to become such a remarkable woman and mother.
    Tripp's 32 months were filled with agony that no one should ever have to feel. The care, caresses and your family's daily routine of loving care has taught many people. They prayer with you and for your little angel.
    He's no longer suffering and for that we thank God. Your family will continue to be in my prayers. May you and family find peace as baby Tripp now is no longer suffering.

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  28. You are the example of a mother and grandmother--a true grammy. I too am grammie and I can only pray to live up to your example. You truely are an amazing woman.

    My prayers are with you and your family.

    Blessings, Grammie Mari

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  29. I am praying for you all peace, strength and love. Tripp is a beautiful angel. We are so blessed to know you all. Prayers, love and support for the days ahead. Courtney know that Tripp is now your guardian angel taking care of you, as you did for him.

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  30. My son, Owen is just a few months younger than Tripp was, and every day since I "met" you all through your blog, at least once a day, something has reminded me of Tripp. Dancing, drumming, Elmo....yesterday it was hearing "I'm Yours" on the radio and I remembered the video of Tripp dancing and laughing without his bandages on. Thank you for sharing so much of your joy, pain and LIFE with the world. I cannot wait until I meet your precious angel in heaven, who is probably dancing, laughing and singing right now--without his bandages! Keep putting one foot in front of the other, breathing in and out. You're STILL doing a great job!

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  31. Bless you! I am a mother to 3 boys under the age of 6 and when something goes wrong there is nothing more comforting than the encouragement of my Godly mother. I know that Courtney AND Tripp love and appreciate you so much. They are so blessed to have your love and support. Praying for peace for all of you!

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  32. As a mom of two little ones, I know how much I love my mom wven more than before and appreciate her help. God chose You to be Courtney's mom and Tripp's Grammy. Continues prayers for ALL of you.

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  33. You can never know how much your mother loves you until you have a child of your own. How very blessed Tripp was to be surrounded by your love.

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  34. I'm so sorry for ur loss Grammy. I have a 28 month old grandson who I live with n babysit every day. God sent him to save me from a drug addiction and he is my life. My heart hurts so much for u all. Me and the baby pray for ur family every night. Even though I don't know u I feel like I do and Courtney is an amazing woman and mother and it's obvious where she gets it from! Yalls faith is very obvious too and I thank God y'all have it. U all have touched so many lives and strengthened so many people's faith, made us hold our babies a little tighter and longer each day! You all are truly special, rare and amazingly beautiful women, I will continue to pray for your family. God Bless You All and thank y'all for sharing yalls angel with us and making us all better people for it!!

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  35. I so admire the strength and support that your family has shown. Tripp's happiness and joy that he displayed in his drumming, dancing, and smiling was surely due to the love that you all showed him. I know he will always be there watching over you all and loving you all. He is so proud of all you did for him. It is amazing and so inspiring what he still does! You and your family remain in my thoughts and prayers everyday. May God continue to bless you and bring you comfort during this time.

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  36. We feel like you feel. Tripp was chosen to go to Courtney because of who she is and how she would care for him. This wasn't random. This was guided by God's hand, and like you, we are all so proud of her for the magnificent way she cared for her little man. And it was no accident that you were Courtney's mother. It was all part of the preparation for Tripp's mission on earth, of which you played a huge part. Tripp is still in the hearts and minds of the world, and will be as long as we all live. Tripp and Courtney and you have changed my life and for that I am eternally grateful. You are ever in my prayers. I promised Tripp when he passed that we (all who know of and loved him) would take care of his mommy. Please let us know something, anything we can do, tangible or spiritual, to sustain you all through your grief. I owe a debt and I want to pay it. janskylar@yahoo.com Love to you all!!!

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  37. Praying for peace & comfort for all if you.

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  38. Abosolutely beautiful.God could not have found a better family to show us that love is alive and the best gift any of us can have.My prayers go out to you.Thank you so much for sharing Tripps jorney of love.I cry tears of joy, love, and thankfulness for the entire family.

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  39. Beautifully written Grammy. Honored to continue to lift up Courtney in prayer.

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  40. Beautiful, what wonderful moms you both are!

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  41. You and Courtney were Tripp's perfect team, he could not have asked for any better. Bless you both! I will certainly continue to pray for Courtney, yourself, and family to find peace. You are both so brave, I know you will take care of each other now. You did an amazing job raising your wonderful daughter!

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  42. Beautiful. What a wonderful tribute to your daughter and grandson! They are so lucky to have you, too!

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  43. We love and miss Tripp also!! Oh we are lifting you And Courtney up in prayer and love! Y'all are so strong and such an inspiration. I am looking forward to meeting Tripp one day in heaven!!

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  44. Amen to that! Praying for all of you daily!

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  45. Amen and so well said! Beautiful word and beautiful family!!! Always praying for Courtney. May I be half the women she is:-)

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  46. thank you Grammy for posting these beautiful thoughts. i've never met you or any of your family, but learnt to give the best of me, every single minute, and that's because of Little Man Tripp and Courtney..
    my heart aches, and all of you are in my prayers and heart.
    May Courtney find the peace and light she so much deserves.
    pls receive all my love.
    xxx

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  47. Beautiful, Anita. You know, as children, we learn by modeling the behavior of our parents. Courtney watched you pour that perfect love upon her, and in return, poured it out all over the trippster. Thank YOU for setting such an inspiring example TO THIS DAY, and through this post. We love you. - Tim and Angelique

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  48. Thank you for keeping us in your life and posting journals. I feel a deep void with Tripp going home. Though you still speak of Tripp, I miss your daily post of his activities. I re-read older post from his journals just so that I can "be there" with him. I miss Tripp! I love Tripp! And I am so blessed to see the work of God through You and Tripp and the lives that have been changed. I love Tripp, you Courtney and your family and you all will always be in my heart and prayers. With God's Blessings and love <3

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  49. Anita, your letter is beautiful, your words and expressions rich with tremendous depth and emotion... our family wishes to Thank you, your grand-son and your daughter for sharing your lives with all of us. All of you, every single person that your daughter talked about in her blogs, her sister, doctors, her boyfriend, you and her Daddy... perhaps with out realizing it, you have forged bonds with thousands of people that think of and pray for all of you every single day. You made our lives richer just by allowing us to walk with all of you through a most difficult journey. We grew to love Tripp too and to love all of you. Selfishly, I don't want your daughter to stop blogging. I am certain that I am not the only one that wishes to continue to hear how Courtney's life unfolds... to see where her life takes her. She and all of you, will NEVER be forgotten. Never. I will pray for all of you, for the rest of my days. Thank you again for sharing your lives with us. God bless you, God keep you. Livy & Family

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  50. Courtney and family, thank you very much for sharing your heart. I miss reading Tripp's daily journals and go back to re-read just so I can still be with him, crazy I know, but I miss him. Your strength is amazing to me and I know Tripp was a blessing indeed. I love God for putting You and Tripp in my life and so many more, that Tripp's life is a testimony that God's plan is always for a purpose. Thank You with God's Blessings and Love <3

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  51. I may not 'know' Courtney but I KNOW how good of a mother she is. I see where it comes from by these beautiful words. Blessings to your whole family during these days of learning to live through this as it is never something to get over. My prayers are with you and all the EB angels.

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  52. Anita, I lost a Granddaughter at 17 months so I know very well your pain.
    (((hugs))) and prayers.

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  53. Simply BEAUTIFUL..... Courtney has the advantage of having amazing role models as parents in her life. You too were such a blessing to sweet baby Tripp and you are also an inspiration to many. The strength, dedication, and love that you and Courtney shared with Tripp was incredible! . . . May God bless you both with a sense of peace.

    Prayers always.

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  54. Beautifully said Grandma. You're both amazing mothers and I continue to pray for peace and comfort for you family.

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  55. Thank you for sharing you heart with us. You are an amazing family. Tripp will always be with you in the day to day things u see. Whether it be a song on the radio or a show on tv.. he will be there. God bless you all. Courtney I pray for peace and comfort for you and your family. God bless you and keep you.

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  56. This is by far the most sincere and touching letter that I have ever read. I truly admire Courtney. She is the strongest person that I know. Even though I don't actually know her, I feel as though I do from following her blog. I admire all of you for being so strong. Thanks to you and Courtney for sharing your lives with everyone. You all have touched more hearts than you will ever know and everyone who has followed Courtneys blog will forever keep Tripp and your family in their thoughts and prayers. I just can not express how grateful I am for your stories, videos and positive attitude. You all are truly a beautiful family, inside and out. Thank you again and God Bless!

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  57. Absolutely beautiful. What an amazing and loving family xo

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  58. The love I feel from this family. Tripp knew/knows the love his family had for him. My words are not much. Every time I see Elmo or hear a drum, I will think of Tripp. How strong, courageous, loving and inspiring that little drummer boy is. Sending healing prayer's for all of you.

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  59. Our prayers for Courtney, your family and all who love you all will continue to flow from our little family in Australia. God Bless you all.

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  60. Thank you for sharing your heart and soul...you are truly an inspiration. I have been in awe of Tripp and Courtney and their amazing journey together, and with your letter, it's clear that the energy of love has a mighty presence in your family. God bless and may He give strength to each and every one of you.

    It's truly been a pleasure to meet Tripp, Courtney and you--even if only from a distance.

    Mercy, peace, and love be multiplied to you. ~Jude 1:2

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  61. Prayers for all of your family!

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  62. Dear Anita,

    Even though I don't know Courtney and Tripp personally, I definitely feel like I do because of this blog. Thank you for sharing about God's mission for Tripp on earth through the blog. It has changed my life for the better.

    I love and miss Tripp too, but have a feeling that he's watching over you and your family right now.

    God bless you and your family.

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  63. Dear Anita, your daughter and grandson have touched so many hearts and inspired many of us to look at our families with new eyes. Your strength as a family and Courtney's unconditional love and dedication to Tripp are what this life is really all about. Thank you for this beautiful post. God bless all of you. Ayesha, from Pakistan

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  64. This is a beautiful post. I came to this blog only after Tripp had passed. A friend from NOLA posted a 'RIP Tripp' that led me to this site. I read every single post over the course of a few days (one of the very few times that I was thankful to be unemployed). Courtney -- your love for your beautiful boy was incredible, infectious, complete. I do hope you find peace and joy in this new life that you find yourself in. I never knew Tripp but I will never forget him.

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  65. Tripp indeed was a gift from God lent to us for only a short while. I am so glad he picked your daughter to be with him these few short years/months as he couldn't have found a kinder, gentler, patient soul/mom for this special child. I can't imagine how you all must miss him now. Beautiful tribute Grammy...as a Grammy also I know you miss Tripp too plus you have to endure watching your daughter grieve. Tripp definitely did his work here on earth...truly a very special "little man" who will be missed terribly. God bless your family and thanks for sharing Tripp with us and this journey of love.

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  66. I live in Manitoba Canada Anita. That was such an eloquent loving letter, a real gesture of love for your daughter and Tripp. Thank you sharing it. I would only add one thing that being
    Courtney became such a wonderful mother and human being Because of You.
    Heather

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  67. That´s so beautiful.Tripp for sure had the best mom ever and the best Grandma!!
    Love and hugs
    Cristina (Spain)

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  68. Anita, you are as beautiful as your daughter. I just love your whole family. I am in awe of you and your family's faith, strength, and love for each other. I will continue to lift you all in prayer (especially Courtney). I know she is missing her baby like no other.
    Courtney, you are and will always be my HERO. I haven't met you but feel like I have known you because you openly shared the most incredible journey of your life with us. You have immeasurable integrity, strength, joy, peace, and FAITH. Thank you for being an example of Christ and a light for Him here on earth.
    Please know that I pray for you each and every day. I know how much your world seems upside down right now. I ask God everyday to give you the biggest hug ever and that Tripp is the luckiest angel ever for having you as his mommy.
    Love you girl.

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  69. What a wonderful family you all are. God knew exactly what he was doing when he brought Tripp into your lives. Tripp has made my faith in God so much stronger. My husband passed away in October shortly after being diagnosed with Wegeners, a horrible disease. Tripp was the reason I have been able to accept God's decision to welcome my husband into heaven at an early age. Thank you to all of you for what you have given me, by sharing your lives with Tripp.

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  70. I have never been so deeply touched by a story the way that Tripp and Courtney's story touched me. Anita- you are an amazing Mother yourself and I know you are also going through a lot of pain. I will continue to pray for your family for peace. GOD BLESS YOU. Courtney - as a Mother myself, I can't even imagine the pain you are feeling. Please know that thousands of people are praying for you. Tripp made a difference and you did as well.

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  71. Such a beautiful post - such beautiful words - wow. You are an amazing mom and grandma - and what an amazing family. God knew what he as doing when he blessed all of you with Tripp - and he is so special. Thinking of each of you, praying for peace of heart in these painful days of grief, and remembering Tripp's smile - always! Keep breathing...

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  72. Such a beautiful way to share your love for Courtney and Tripp. I am saying prayers for her peach and that God and Tripp will continue to hold all of you close. <3

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  73. Thank you for all the love you brought to us, people that you have never met, that we do not know each other. We pray for Tripp every day & night, hoping that he is happy, pain free and taking care for his mom from Heaven.

    Marina, from Athens, Greece

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  74. Anita, you too are a true example of unconditional love. Being there for your daughter and angel as you have! not every mom/grammy would be willing to do that with such unselfishnes and devotion.

    Tripp, Courtney, You and your whole family are an example of the true meaning of the word FAMILY.

    Sending you love and hugs and gratitude from across the ocean´
    juana

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  75. And now in Spanish. Hope someone will be able to translate.
    He seguido la historia de Tripp durante más de dos años, le he visto crecer, bailar, jugar, hacer música, reir, y he sufrido con su deteriorio físico hasta que ha dado su último suspiro. Y por qué? Porque estas familias son un ejemplo a seguir, su amor incondicional, su fuerza, su fe (incluso para los no religiosos como yo), su fortaleza, es tan increíble que no puede más que inspirarnos a los demás a convertirnos en mejores personas. Y esta es precisamente la razón por la que ellos aprecian tanto a la gente "desconocida" que les apoya: saben que el sufrimiento de sus niños no ha sido en vano. Lloré con Bella y he llorado con Tripp - y ambos están y estarán siempre presentes en mi corazón.

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  76. How blessed Tripp was to have you both in his life. He is watching down on you now. May you find the peace you need.

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  77. We are praying every day for you all. Courtney is a beautiful piece of heaven and I pray that God send angels to hold her and guide her through this darkness and pain. Thank you for sharing. <3<3<3<3<3

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  78. Courtney is always on our hearts and minds. Tripp was not the only awesome example to come out of your dear family - Courtney is another! Thank you both for sharing your special "angel" with us. The lessons learned from both Courtney & Tripp are for a life time. One way we can honor sweet Tripp is to keep lovin' on his precious Mommy.

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  79. God Bless you all! I won't stop praying for your family. Tripp I love you, Thank you for your courage and sweet smile.

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  80. You are such a loving mother and you raised a beautiful daughter. Tripp's life has touched so many people, me especially. I vow to Tripp that his suffering was not in vain. He has helped me to become a "better" me. In all that I do every day, I am reminded of Tripp and he helps me make better decisions. He helps me to be a more loving Christian, to "do the right thing". I stop by his gravesite most evenings when I get off of work and I talk to him and pray for him and your family. I asked Jesus and God to look out for him and just the other day, Mary came in my mind and I felt peace knowing Tripp has our Blessed Mother with him also. I bought my grandson an Elmo toy yesterday, it is Elmo playing the drums and I will always remember Tripp's smile while my grandson plays with this toy. God Bless all of you. You are loved so much....

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  81. I have always known that Courtney was such an amazing mother because you were such an amazing mother. You taught her love, patience, and the art of nurturing. There is no doubt that Tripp felt his Grammy's love as well. The pictures of you with him are just gorgeous. God definitely blessed you with an angel, but he also blessed Tripp with an amazing mother and Grammy. Thank you for the beautiful words. I think about you all so often. May God bless you all.

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  82. I have been thinking about Courtney a lot in the past few days. Thanks for posting this beautiful letter. I can only imagine the pain you have gone through watching your precious daughter in pain, a pain that only a mother can feel. I still pray for Courtney and I know Tripp will be there when it's time for you all to meet again. God Bless you and Courtney. Amen

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  83. My prayers are still with you and your family. It is a comfort every day to know there are people out there who cause lots of good "ripples" throughout the world. I thank you both (grammy and Courtney) for allowing me to see your world, even through the pain.

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  84. Now we know where Courtney learned to love so deeply and truly!
    What a beautiful tribute from a loving mother and grandmother. Thank you for this inspiration!

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  85. Your words bring tears to my eyes...I, too, have a beautiful, tender, nurturing daughter. I have often thought of you through this journey...watching your daughter meet all of those needs that taking care of Tripp entailed. That unconditional love flowed from you...pure and strong. Please accept my deepest sympathy as one mama, one grandma, to another. God Bless.

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  86. Beautiful...thank you for sharing with us.

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  87. You are an amazing family! God has chosen all of you for something even more special, yet to come! You are all continually in my prayers!

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  88. I can't imagine what all of you are going through. There's some comfort knowing that little Drummer Boy is no longer in pain, but I know that doesn't bring you total peace. My hope for your family that one day soon you may be able to laugh and smile when remembering little Tripp's wonderful memories.

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  89. What a beautiful post Grammy. My prayer now is for Courtney. She has given her all and now it's her time. My prayer is that she will be taken care of. I know that y'all shower her with love and support like no other. But I pray that she finds the one that will lift her up. Remain by her side and take care of her. She deserves it oh so much. Not a day goes by that I don't stop and think about Tripp and his precious family. We live just down the road and our paths never crossed but my heart has been touched and will never be the same. Thank you for opening your hearts, home, story and Tripp. For his love and suffering will never go in vain. With deepest love and compassion, Susie Harris

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  90. Thinking and praying for you all. A very beautiful note to a beautiful daughter from a beautiful mother! what can I say you both are very inspirational women of God. Who hold on to faith and gave all to care for Little Tripp which we miss so much. My heart is always with you both praying for Peace.

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  91. Beautiful letter, it made me cry. Still thinking of you sweet Courtney.

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  92. There are no words to describe how beautiful this post is. I don't know any of you personally but from the day I found this blog, Tripp and his amazing legacy fill my thoughts every day. You are all an amazing family. I pray for your peace during this time. Tripp was one amazing little boy. He has made me want to be a better mommy to my two babies. He is truly my hereo. Remember that he is always with you and watching out for you. I hope the days ahead find peace and the memories of that handsome, precious, little angel give you all some comfort.i cannot imagine the pain you are all in. Love and prayers.

    Chrissy

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  93. What an amazing post! My thoughts and prayers are with your family always!

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  94. What a beautiful tribute for a beautiful Mommy. Tripp was lucky to have such an amazing family. I hope you will continue to update the blog, we have all fallen in love with Courtney as much as we did with sweet baby Tripp! I am praying for your family in this time.

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  95. Your entire family simply amazes me!

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  96. Wow. This is one of the sweetest, most heartfelt things I've EVER read. No wonder Courtney was such an amazing mom- she was raised by you!

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  97. you are all in my thoughts and prayers. as a family you lifted tripp high with your love and you have inspired so many. may tripp be at peace, with God - and elmo - by his side. may God carry you when life becomes difficult, may He embrace Courtney when she needs Him most. my love goes out to you x

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  98. I am still aching and praying for your family. Thank you for continuing to share your lives with us.

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  99. Thank you for sharing.... Absolutely beautiful! Tripp will never be forgotten <3 I pray for peace and comfort for Courtney and your family knowing her precious Angel is in the arms of God pain free.... Glowing and beaming without a hint of EB hurting him ever again <3

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  100. I am moved beyond words by your story. I hope God wraps you all in his embrace and you are able to begin healing. What a beautiful, special angel Tripp is. All my love to you Courtney.

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  101. Anita, thank you for sharing your words. Your daughter is blessed to have you to comfort her now, in all that she is going through. Though I don't know you all, I think of you all often- I wish I could take away all the pain, but I am so thankful for the things I have learned from Courtney- how to praise and be thankful even when bandage changes and other aspects of EB are difficult to handle, and to be thankful for each day I have with my kids. Because of Courtney and Tripp, God is teaching me to be more patient with my kids in the little things that in the end, just don't matter. Thank you for being a great mom to Courtney, so that she could be a great mom for Tripp! My prayers are with all of you for peace and comfort. -Jen Holden

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  102. Tripp couldn't ask for a better Grammy! God bless you all.

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  103. Thank you for sharing your heart with us, Anita ~ everything you wrote was simply beautiful.

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  104. Continued prayers of PEACE & HAPPINESS to you & your entire family! Mommy Courtney, Grammy & Tripp - a true inspiration to us all!!! Many blessings for sweet angel baby Tripp! My sincerest blessings to everyone, Allison Bulot Miller (*from Belle Chasse, now living in Chicago, IL)

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  105. Dear Anita a.k.a. Grammy, I have thought of you so very often over the last two years as I read Courtney's beautiful blog. As a Meme myself, I know the love of a grandchild. I also know the feeling of watching your daughter deal with having a "special" child~ It is overwhelming sometimes the pride we do feel as we watch our own child accept and deal with what God has chosen for them. I know your heart swelled with pride and love for your Courtney. I don't "know" her in person, yet, I am so very proud of the mother she is, how strong she is, and how she so lovingly shared Tripp with all of us! I knew right away that she must of have a wonderful Mom herself. What a blessing you have been to her and her little man Tripp. I am praying every day for you as well. The love of a "grand"child such as Tripp must really have a hold on your heart. God Bless you Anita~ I am sure God has big plans for you too!
    Love
    Diana a.k.a. Meme

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  106. THank you Thank you Thank You!!!!!!!!!!!!!!!!!!!!!! I know you have been told that before but I dont think you will ever REALLY know what you did by sharing Tripp with the us. NO words will ever express the true hero you are to so many people. God has prepared a special place for you in his Kingdom for you to continue to raise Tripp. Thank you

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  107. Amen Grammy, Courtney and all of the post above. There is nothing more I can say that hasn't already been said. Tripp's journey is not over, it has just begun. Take deep breaths and smile up at him, he is watching over you now. Donna Doyle

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  108. Beautiful. Tripp was a very loved little man. My thoughts are with you Anita, Courtney and the rest of your family. xx

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  109. Amen. No more perfect words have ever been written. God bless you and Courtney. Clearly you were a wonderful mother to have raised such a special young lady who then grew up to become an amazing mama to Tripp.
    I will keep praying for peace for Courtney and the rest of your family. Thank you for sharing.

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  110. Anita,

    This was so beautiful. I could feel your love for your daughter and your "Bubba" in every - single - word.

    I think it's possible that some of the most trying days when grieving -- are those days when things becomes quiet, the people surrounding us must leave, and things get "normal"; The days you are feeling stuck with your thoughts & reflecting on how you got from "here" to "there". The moments where you sit and try to make sense of things & God's plans. And I imagine that these may be the exact days you and Courtney are experiencing now.

    If that's the case -- know I'm here. We're all here. To listen, to comfort, to do anything we can. I know you two will get through this, that you all will, and that God has a plan for your futures. I'm sure it's a grand one, where your angel -- Baby Tripp -- will watch over you all and guide you along the way.

    My prayers have not stopped, nor my constant thoughts of you and your family. I think about Bubba a lot too and I see all around little reminders of him -- every time I pass an Elmo in the store, I see a butterfly at the park, I see a baby with special needs.

    Tripp & your family have left a lasting imprint on my heart and I feel so blessed to have connected with you all. One day I hope to come out with Chloe and meet you all in person! :)

    I think it's wonderful that you both are continuing to stay connected with all of us (and I thank you for that!) and writing down your thoughts and feelings here on the blog. The way I see it -- this blog can be your way to still feel like you can converse with Tripp. You can write him letters, send him love, share with him what you're all doing -- and all of us can too!

    This can be our direct link to him & the rest of the angels. My prayer is that this happens. :)

    As always, I send you my love, prayers for peace, and many many hugs!!

    XOXO,
    Katie & Family

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  111. Oh Courtney and family, please know I think of you and lil Tripp DAILY! He is in paradise- I know he doesn't want you to be miserable. I pray for you to find peace and be comforted by your little angel nightly. Your stories have made a difference in my outlook of things. Please take care sweetie. Love from Michigan.

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  112. Thank you Anita, Courtney and Tripp. You have all taught us a wonderful lesson on love and what true love is. I am still praying for all of you...for your peace and happiness.

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  113. Dear Anita,

    Courtney was an amazing mom because of you! I do not have any doubt that you have also provided PEACE to Tripp during his journey on earth. Thank you for sharing your words of love. Because of you and Courtney, I strive to be a better mom to my children every day. I do not know your family, but every time I see Elmo, my son, and the eczema on my skin, I am reminded of Tripp. Please take care of yourself and Courtney.

    Much love,
    Josephine from California

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  114. Beautiful words from a loving mom to her daughter. Courtney only knew how to be such a loving mom because she has a good role model. Peace and love to all of you.

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  115. Beautiful post, Mrs. Anita. Courtney certainly learned how to be a great mom from you.

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  116. What a wonderful family you have and are.

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  117. Anita, oh, I AM praying for you and for Courtney. Thank you, so much, for being such a good mom to Courtney and Grammy to Trip. Thank you for loving him and for being willing to give up your life, too, to care for him. What an amazing example you have been, and are, to those of us who are privileged to read your words.

    Trip's life, Trip's story, Courtney's courage and compassion and love and strength, your love and care and example - THESE are holiness. That rocker, that room, your home - THAT is holy ground. God was there, He was praised and glorified thru your love and dedication. Trip helped to show the honor and value of every life, even thru extreme struggle. YES, HE, and YOU, and COURTNEY - are drawing people closer to God. You've drawn me. You've helped me. And though it is so hard to know that a little boy had to suffer soooo much, and although I wept so much over so many days seeing his pictures and knowing his suffering (and yours)- I couldn't do ANYTHING but praise the Creator who gave him SUCH spirit and such strength, who gave him such a loving mommy and Grammy. I don't even pretend to understand - this is truly one of the mysteries of time and of God to me....but I am choosing to trust Him on this one - that HE (God) is making ALL things new and that HE is the God who loves his children and loves to restore all things. I believe firmly that we have a new Heavens and a new Earth coming - and that there are some AMAZING days ahead for all of you with Trip. (And I am so excited to know that SOMEDAY I am going to get to meet you all and watch Trip dance and drum and run and laugh and talk.) THAT is holy, and something SO GOOD to look forward to. My family is praying for you (I'm a mommy to nine children myself...we all love you guys.) I AM praying for peace for you all. I know that you do not know how to go on at this point, what to do, how to spend your time. But I know that God has plans for Courtney now (and you too, Anita....) and people still to help.

    I will not stop praying for you. I would love to always be here for you - but know that you don't know me. I'm thankful that you have good people around you, holding you up.

    With much, much love.

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  118. I think about Courtney EVERY day <3 I pray for peace for her and her family <3

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  119. what an amazing and wonderful family. you are truly beautiful people! I wish that you're miracle will be an example to many as how to love so selflessly. bless you all

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  120. What a beautiful note. So glad that Courtney has a support system that helped her with Tripp and that is helping her now.

    I keep up on the blog, but just tonight we told our 3 year old daughter that Tripp had died. She once peaked around to see me reading the blog a couple of months ago, so I told her all about Tripp and what he goes through and how his mommy takes extra special care of him. I wasn't sure how to tell her, but I wanted her to know so my husband and I told her she took it like a 3 year old. Tripp did and does forever have a place in our hearts as does Courtney.

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  121. I wake up at night and think of/pray for your Courtney! What an amazing mother! Our Piper is 2, and I pray everyday to be the mother she needs me to be! Loving you all in Athens, AL

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  122. You are, quite simply, wonderful people. You are an inspiration to us all. I read The Brave Little Soul, by John Alessi; how true of Tripp is that? He, along with your help, has unlocked the love and compassion in so many people's hearts. Tripp's story has affected me deeply, and I can honestly say that I am a changed man: thanks to Tripp, this hard-nosed cop has found his faith, opened his heart, and tries, everyday, to be worthy of the life that he had taken for granted. I've said, before, that hopefully, one day (if I behave), I'll get to meet Tripp and shake his little hand; well, I want to thank him, too - thank him from the bottom of my heart. But he already knows how grateful I am, because I've already told him.

    I'm also grateful to you Courtney, and Anita, for sharing with us, and showing us all the true meaning of love, faith, compassion, caring, courage, and family. Thank you.

    You said in your speech, at Tripps funeral, that everyone, even people you'd never met, were gathered together as a family. Well, I'm sure for most of us, who have followed Tripps story - even though we may never have met you or, indeed, ever meet you - that is how it feels. Although very few of us can even begin to imagine what you are going through, how hard it must be for you, or how much pain you must be feeling, we lost Tripp, too. It would be such a shame if we lost you aswell. I do sincerely hope that you continue with your blog, Courtney, because we all care for you and your family, too. Like your Mum says: Tripps mission isn't over yet.

    My love, thoughts, and prayers are with you.

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    1. What a beautiful tribute to a beautiful little boy and his Mom. I think of and pray for Courtney and Tripp everyday. I know that Tripp is at peace, but as a Mom, my heart aches for Courtney. She is such an inspiration to us all. And Tripp, so strong and brave for his Mommy.

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  123. beautifully written. you and courtney are so lucky to have each other, just as you two and tripp were lucky to have each other. sending prayers for you both.

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  124. This was well said and very touching... Thanks for teaching us what we know today and allowing us to know Tripp not in person but by words and by the heart.. You touch me in so many ways words could not explain. We love you Courtney, never give up Tripp lives in you...We miss our Lil drummer boy!!! Hugs from Covington, la

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  125. You raised your daughter to be someone very special. Who knows more about dealing with EB than Courtney? I've been wondering where her next journey will take her. I have a feeling she's going to keep doing a whole lot of good in this world.

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  126. Praying for comfort and peace for your whole family.

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  127. Wonderful words. You say how much you admire Courtney, but she is who is she is in part because of you. You are all a very wonderful family. :-)

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  128. Oh, another thing I didn't think of in my first comment: this is also an incredible loss for you. I wish peace for you in this tough time. You are also a wonderful Grandmother and Tripp was very lucky to have you.

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  129. Absolutely amazing,,! I just recently heard about your amazing little guy tripp and his battle with this awful disease..it has touched me deeply and I often think about you and your family and what you've gone through..I've cried, and I've smiled seeing you're little angel going through this, and seeing his hard times, but seeing the happy times and how he loved elmo and his drum stick. My prayers and thoughts are with you always..and knowing there is an amazing little boy like tripp up in heaven looking down..he has touched many hearts..and when my time comes I hope I get the chance to meet the little guy who touched mine plus millions with his braveness and to tell him how special he is...his disease has opened mine and alot of others to this horrible disease....God bless your precious family and thank you for sharing and allowing complete strangers to entwine in your journey with your precious, beautiful, Tripp <3 Thank you and god bless. With much love,, Angel

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  130. He lived for two years and eight months
    because of you!

    God Bless, to you both, You are in my prayers daily and I think of Trip everyday! John 3:16 For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life!

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  131. It's probably because I am a doting grandmother myself, but no post has touched my heart as much as this one. A grandmother's heart holds twice the love and twice the pain...but you are right...we wouldn't trade it for the world. When my first grandchild was born, I said I knew how the Grinch felt, because I could literally feel my heart grow two sizes bigger!!! I know where Courtney gets her strength from. Bless you Grammy, I pray for you and Courtney every day. I think of Tripp everyday. I will continue to honor him by spreading EB awareness and by sharing smiles with others even when I don't feel like it and catching myself before I start to complain about something small! May Jesus and His Blessed Mother continue to walk with both of you and hold your hands through this difficult time.

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  132. Praying for you all EVERY day. What a beautful note for your daughter. Courtney is on my heart and I am praying for peace for her. Love from all of us in Ohio...we are missing Tripp too, and we will never forget him.
    <3
    Heather in Ohio

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  133. Such a beautiful post-it brought tears to my eyes!! What a blessed little boy to have such caring and compassionate people in his life. I feel blessed to continue to lift you all up in prayer. Stay strong and may your sweet memories of him continue to ease your pain.

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  134. What a beatiful letter. Courtney your mom is right everything good in Tripps life was because of you and your faith and trust in God. Continue to pray for you. I shared your story in our small group last week and told what a strong testimony you have and how you have inspired me. I am not sure I could ever handle such a trial with as much strength as you have. You are truly an amazing mom and woman of faith.

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  135. Dear Grammy,
    You are a beautiful woman. Thank you for the consoling and insightful words. All of us friends in the Blog world are grateful to know a little more about the family we have loved and prayed for from a distance. Thank you for sharing and allowing our hearts to link to yours. Surely, God has blessed us all as we have joined as if Family for surely we are. '
    Love, from one of your "Sisters".

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  136. What a beautifully written tribute to your daughter and grandson......Courtney has a pretty amazing mother and trip has a pretty amazing Grandmother.....God bless you and I am so sorry for your family's loss.....Tripp touches my life and made me want to be a better mom just from reading Courtney's blog.....

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  137. I have been praying for your little boy for a month now... I am extremely humbled by your story and it has made me a more patient mother to realize how blessed I am .... I was deviated when I discovered your blog and I felt stupid because that night my son was having a bad teething night and I all of a sudden felt so selfish for my frustration with him. Your strength helped me to be a better parent. You are a warrior and god gave him you because he knew you could be there and handle raising your child no matter what his needs because you were an unbelievably strong woman. I am praying for you and your beautiful little boy. Thank you for everything you have given to me you may not realize it but it makes a difference in another little boys life you sharing your incredible story.

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  138. This was the most precious thing I have Ever Read. I have tears strolling down my face. Thank you for sharing so much of your life. We all have our struggles. but sometimes we need a struggle check. This helps me. I see my struggles and am reminded to ask, "what I am supposed to learn from them?" and how can I help others, in the kindest way, with what I know. Because of Tripp and your blogging, I remember to ask them.

    I will continue to think of you and your baby and keep you and your family in my heart.

    Love, Natasha

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  139. Dear Anita, Dear Courtney,

    Thank you for posting this beautiful letter, thank you for sharing Tripp with us, thank you for your faith in God and thank you for reminding me of Him.

    The very first time I read your blog, I cried hard... and I still cry when reading your words of love. You teached me love. Unconditional true love.

    Tripp and you, Anita & Courtney, have touched my life in so many ways. I am thinking of you constantly, every single day. Tripp’s story is the most touching story I have ever heard of. He became my little big hero, and so are you.

    Thanks to you, I am telling my little daughter every single day how much I love her and that she means the world to me. Thanks to you, I always smile when I am changing my daughter’s diapers; looking at Elmo and thinking of Tripp. I promise that one day, I will tell her Tripp’s story.

    Thank you for sharing your feelings, your heart & soul, your emotions (in a way I could never do, but deeply wish I could), your strength, your courage, your ups and downs, for staying connected.

    I cannot imagine the difficult time you go through. Please accept my deepest sympathy. You are in my thoughts. With all my very best wishes from Switzerland.
    Bettina

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  140. Courtney,

    to have your mom say these things about you, must be the highest compliment that anyone could ever HOPE to receive. She has been with you through thick and thin, since YOUR first breath, watching through every minute that you cared for and comforted your son until his last. You are a truly amazing family, and you WILL overcome this because you have such a strong family to rely on. Your family is a rare and precious gem in this world, and you are truly blessed.

    Love,
    Donna

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  141. That was simply beautiful! I can feel your love for Courtney and Tripp through your touching words. All of you are in my thoughts and prayers every day. I know deep in my heart that Courtney will get through this difficult time and complete her purpose here on earth...especially with a loving and caring mother like you by her side. God Bless!!!

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  142. I can't even begin to tell you how Tripps story has touched our hearts. You are an amazing mother...and Tripp is changing the lives of so many. His story completley changed my outlook on so many things..including motherhood. Tripps mission continues...he has only strengthened my faith in Christ. You are one amazing person and God placed his angel to you because he knew you could handle this. You don't know us but we are praying for you. I have a 16 month old and we were just looking at pictures of Tripp and what a beautiful angel he was. God Bless you and your family.

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  143. Courtney, I think of you and Tripp every single day. Your mother's words for you were beautiful and even those of us who don't know you can tell exactly what kind of incredible person you are.

    Courtney - you make me a better mother every single day. Every. Single. Day. You inspire me to be a better person. Remember that - you are making my children's lives better too. Tripp reminds me that even those who can't speak or leave their home can make a HUGE difference in making this world a better place. Just think what all of us out here can do because of him!

    I pray for your peace at this difficult time and ever after. Please take from our strength as you go through times where yours is all but gone.

    My love, thoughts, prayers are with you.

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  144. What a beautiful note from an another amazing mother/grammy. Not a moment goes by that I don't think about Courtney and Tripp. They both have impacted my life for the positive; I now pray for her peace daily. I hope she takes as much time as she needs to grieve in her own way and to know that we are all here for her when she is ready to return to the world. I thank you for sharing your journey with us all because it indeed changed the lives of so many.

    Sending my love and prayers-
    Mary and Baby Jackson

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  145. Dear Anita,
    What a beautiful letter to your daughter! You are an amazing mother and Grammy, thank you for having always been so close to Courtney and Tripp and for giving him peace too. You are both an incredible example of unconditional love and of a true family. God could not have chosen two better Angels to take care of him while accomplishing his challenging mission. You gave Tripp the best any mother could imagine, creating for him the warmest and most loving environment a child could wish for. For me it was incredible to witness through your blog how strong, happy and cheerful he was despite the unbearable amount of pain he endured.And this is also thank to you. Brave little hero, he's such an inspiration.
    Even if I came across Tripp's incredible journey only after he grew his wings, he's changing my life in a way I find difficult to express in words.
    I thank you also for continuing sharing with us your feelings and your days. Reading Tripp's story made me feel so close to you, like family and like the others, I wonder how you are and how are coping. Ever since I "met" Tripp, I feel I am grieving with you. As I wake up in the morning I "see" his beautiful face and his sweetest smile and while this inspires me to be a better mother and a better person, at the same time it fills my eyes with tears and I am so sorry for Courtney and yourself . As Courtney has said, when your child goes in Heaven you miss him in a way it physically hurts. I have experienced it myself with my Angelica, who feel asleep in advanced pregnancy and I would like to be able to do something to ease your pain. Every day I find something that reminds me of Tripp and of his mission: Elmo playing the drums or the trumpet on my children's new diapers, biscuits shaped as butterfly in my office, a little yellow duck my eldest son received at school... I will continue to pray God to help you to bear the pain and I will pray Tripp to take care of his Mummy now and to guide her through her own mission.
    I shared Tripp's story on facebook and I asked my friends to spread his message further and to help raising awareness about EB. If there is anything I could do to be closer to you and Courtney, both spiritual and material, let me know (tboati@yahoo.com) at any time when you will feel it. My love and prayers are with you.

    "Tears are falling from the eyes

    That long to see your face.

    Arms that used to hug you tight

    Now miss your sweet embrace.



    Lips wish they could say goodbye

    And kiss you just once more.

    Feet would like to run to

    Where you are past heaven’s door.



    Hearts left behind are broken,

    Because they miss you so.

    You were loved while on this earth

    More than you could know." By Ron Tranmer

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  146. Courtney, I am at a loss for words other than to say Please keep struggling through this horrible pain that you are going through. Tripp is now going to show you how much he can be there for you like you were for him. I have to say the comment above by (Volund) said it very well we care for you so much and hope that your family now take care for each other as Tripp would want. I also hope that you continue your blog so we can help you through this terrible dark pain that you are now facing. My thoughs are with you daily. Tammie

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  147. So beautiful! Just a lovely letter. I'm so glad that Tripp and Courtney have had you as a constant support in their lives. Much love, Jennifer

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  148. Anita, That was such a beautiful post. I am sure that it was very easy to write with a daughter like Courtney. I want wish my condolences to your whole family. You are an amazing Mom and that is shown through Courtney. She is a great Mom because she had an amazing Teacher. Tripp was a lucky boy to have you all by his side.

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  149. My love for my children grew so much stronger after I started following your little Tripp's story. He has taught me soooo much, more than I could ever say. For that I a so grateful that you shared this wonderful precious boy with us. Thank You.

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  150. Oh Anita...that was so beautifully written! I can't even imagine how proud you must feel!

    I also can't fathom what it must be like to be a grandparent having to not only watch your grandchild, but your daughter too.

    Sadly, my mom and step-dad have to do the same, but with the added guilt of them being the ones who were walking our daughter across the street. The pain is something I will never be able to understand.

    You make such a beautiful family. I know I've said this so many times before, but I just can't stop thinking about it.

    Thank you all for sharing yourselves and your story with us! You have made a lasting imprint on me and I will never stop checking in on you :o)

    Love,

    Jen

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  151. Your family is utterly amazing!
    You raised such an amazing daughter and I truly think she couldn't have cared for Tripp the way she did without her amazing support system and help from one spectacular Grandma! I will never forget Baby Tripp - nor will I forget your beautiful family! Your family will remain in my thoughts and prayers during this difficult time!

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  152. Tripp is my hero and Courtney my inspiration. I wake up every day and pray for her and thank him for changing me for the better, bringing me closer to God, and making me a better mother for my children. I am eternally grateful to Courtney for sharing her story and being such an amazing human being. Thank you!

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  153. You have such an amazing daughter, and I'm sure she learned at least some of that from having an amazing mother.

    God bless all of you in this tragic time of your lives.

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  154. To Courtney and family, Tripp has changed my life in so many ways. Most importantly, my relationship with God. I share Tripp and Bella's story with everyone. Those two babies have made a difference in so many lives, and will continue to do so.
    I want to Thank Courtney and her family for allowing me into her life. Her postings on here felt as if we were in the same room talking face to face. Thank you for sharing Tripp and your love for Tripp with all of us. I feel blessed. I wish that I could have met him in person. I will never forget his smile or his strength.
    Love and Prayers from Taylors,SC,
    Carla Spradlin

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  155. What wonderful lessons you have taught about what it means to really love sacrificially. You guys are just such an incredible family. Thank you for giving us a peak into your lives and for letting us get to "meet" precious angel Tripp.

    Prayers for a supernatural peace that only God can give.

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  156. How BEAUTIFUL a letter that was to read. My gosh....I'm so filled with admiration for you and Courtney and the rest of your family for all that you have been through.....and I MISS Tripp. That little boy brought joy to my days that I never thought possible. Sounds like you and Courtney were carved from the same mold my friend. You are two of the most beautifully amazing women I know. May God continue to bless your lives with his mercy and grace and bring you peace.

    Much love,

    Kim

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  157. You and Courtney both have such a way with words. I'm tearing up. Tripp was so lucky to have two GREAT women in his life that loved him with their whole hearts. You both took such great care of him, and now he's looking down and taking care of YOU. You girls have the BEST guardian Angel around.
    I don't know either of you, but I love ya'll so much.
    Keep being strong ladies.

    With love from Texas,
    Amanda

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  158. Just beautiful. Thank you for sharing your sweet grandson with all of us. He has made my life more full and I only "knew" him through these posts.

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  159. Many thoughts and prayers being sent your way. Thank you so much for telling Tripp story and for showing us all what being a MOMMY is all about! God knew what he was doing when he gave Tripp to you. Im so thankful you shared your sons life with all of us and showed us all True love and complete FAITH what an amazing woman you are! And Grammy too! Amazing family!

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  160. Beautiful words, Anita. We hope as your lives have been given a new direction with Tripps passing, that you are hanging in there and doing as well as can be. All our love,
    The Huish family

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  161. Such sweet words! I am praying for you. I hope God brings you peace and comfort!

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  162. I am a NICU nurse in TX and happened across your blog. I have taken care of 2 little ones with EB. 1 junctional and I dystrophic. I pray with you for a cure for this horrible disorder. I read a lot on your blog tonight and my heart hurts for you. You did a great job with Tripp and I applaud your courage and perseverance! Elmo's butterfly song will forever be in my heart. Thank you for your blog.

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  163. so inspiring words from a mother, you are bless to have daugther like Courtney she is brave and loveable. to courtney thank you so much... you touch may heart i always pray to bless you and your family. tripp is watching you from heaven and hug you tight when you feeling down.

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  164. I can't tell you how many times I've cried as I've read your blog, you are truly amazing, Tripp's Mummy and Grammy.
    Thank you for sharing your courageous journey with the world, know that so many people are praying for you and have been deeply touched by Tripp's life.
    My little boy is a year older than Tripp; know that I hold him even closer because of you...
    Love and prayers from yet another person who has read and never commented before.
    Danielle, Sydney Australia

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  165. My gosh. This was truly remarkable. My heart is weighing so heavy right now as uncontrolable tears run down my cheeks.

    It's been a pleasure to know {read} you & your lives for only 6 months. I feel as if I knew Tripp. I will tell you he worked me. He taught me. He brought me MUCH closer to GOD.

    I've shared his story to many people. Courtney, I hope you find peace and go far in getting this world to udnerstand EB and help find a cure. I know you loved your baby boy so much. Nobody has to explain it to me. I see it.

    I wish I could give a great big hug to this entire household, because you all are truly inspiration. Tripp was definitely a angel on earth, now comforted in heaven. Now being your guardian angel.

    I pray for peace for you all. NOw that Tripp as peace. PLEASE, PLEASE, please... don't stop writing. Never stop. I will always follow you, and the research for EB and the life you have & find.

    XoXO, Jessica {Savannah, Georgia}
    www.ardjla.blogspot.com

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  166. Such beautiful words! I'm continually praying for you guys and your broken hearts...

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  167. Courtney and Anita,

    You are amazing women. Thank you for sharing your lives and journey with us. I saw your beautiful video with Tripp and cannot stop thinking about your family. Tripp is a blessing to all, and I am so thankful that he is smiling down from heaven on you. I pray for God's comfort and peace that only He can provide during this time. He is with you and will never leave you. Love to you, Grammy and Tripp...

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  168. What a beautiful post!!!! Courtney IS such an amazing example of faith during trials! Tripp's life and Courtney's example is such an inspiration and makes me want to be a better Mommy too! Thank you for posting!

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  169. That was so beautiful. Thank you for sharing your heart

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  170. I'm out of words... My heart is completely broken and aching... How WONDERFUL people you both are! God bless you and little Tripp who knew nothing but LOVE!
    When I learned about Tripp's story I showed my mom, she just kept saying: Oh why God? Why? Such a cute baby, oh why, poor dear...always smiling, so sweet, oh why...why..." My tears were rolling down my face as I tried to translate and read it to her... I'm so sorry for your loss... The garden of God has now another beautiful flower...Tripp you're now a sweet precious angel baby boy and your mom is what I call a REAL mom! Bless you darling and ur loving family... ♥ ♥ ♥

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  171. Sending as much love as I can. Prayers and support.

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  172. Beautiful. Oh, how choked up I am reading that letter. I just can't help but to think how lucky Tripp was to be born into a family such as yours. First a wonderful mommy, and now I can see that he had a wonderful extended family as well.
    God bless you all.

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