Tuesday, January 17, 2012

Tripp's services

Tripp's services will be held at St. Joseph's Catholic Church in Ponchatoula on Wednesday, January 18th.  
Visitation will be from 10am - 1pm, with a mass of Christian Burial starting at 1pm. 
Interment follow in the Ponchatoula Cemetery. 
His services are open to all who loved Tripp and want to join us in prayer. 

Love,
Photobucket

439 comments:

  1. Thinking about you at this sad time, Courtney. Stay strong and remember your baby boy is watching over you from heaven.
    xoxo
    Amanda

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  2. I wish I lived closer so that I could join you in the celebration of Tripp's life. My family will be sure to pray in Tripp's name at the same time. I feel like Heaven will be flooded with love and prayers for Tripp. I hope you are able to find some peace that your sweet drumming angel is not in pain and has joined God. God bless.

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  3. Although all of us would have understood if you'd asked for this to be private, thank you for allowing us to pay our respects.

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  4. My thoughts and prayers are with you and your family during this time!! Tripp was such an inspiration and touched many lives, including mine! God bless you!

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  5. I wish I was still in NOLA I would be there in a heartbeat. I know you wanted us to pray for peace for Tripp and I did, but now I'm praying you can find peace. I know this is never an easy thing to do, but you are a very strong woman. You already overcame what would have killed me. I pray you find your peace and sanity in this time of lose and know that a lot of people are rooting for you and praying for you.

    Savannah

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  6. My thoughts are still with you, and will continue to be on this day. Much love, and many prayers. <3

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  7. We will be praying for you and your famiy tomorrow, as we are not able to attend being all the way up in Michigan. Know that Tripp was loved and touched our hearts now and forever. I pray the Lord will provide you peace and comfort as you attend his services tomorrow. Your sweet angel will be with you in spirit every step of the way. Much love to you and your family. We love you Tripp

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  8. God bless you, peace be with you now and always!

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  9. Wishing we were closer to LA and sending our love and prayer to you and family Courtney.

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  10. I wish I could be there. I will be there in spirit from Ohio.

    Thinking of you Courtney. I wish I could give you a hug.

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  11. Prayers from Kentucky... wish I could make it!

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  12. Dear Courtney,

    I'm so sorry to hear of sweet Tripp's passing.

    I started reading your  blog when the ABC news article came out.  I spent the next couple of weeks gradually reading the entire thing, which has changed my life forever.  

    I've been thinking on how to even come close to expressing the feelings I have for you, Tripp & your family.  I could write a book, but let me just say, you are all heroes.

    You have done everything right.  You are an amazing mother and every parent in the world should take lessons from you!  Actually, every person in the world should!  You & Tripp have taught me, and many others all over the world, lessons about life we would have never learned otherwise.  Because of you, our path in life is forever changed for the better!  That, is truly priceless!

    Your little drummer boy is definitely an angel now, but of course, he always was.  I know you must miss him so much.  I pray for God to help you through this painful time.  You are in our thoughts and prayers every day.  I'm so glad you have a strong Christian man by your side as well as your wonderful family to continue being the support you need.  I wish I could do more to help you.  

    God bless you.

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  13. Wish I could be there! Many thoughts and prayers from Nebraska! You are amazing and Tripp touched so many lives!

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  14. we love you and will be praying. You are constantly on my mind and in my heart. god bless you and your family. Courtney, you will always be an amazing mommy.

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  15. How I wish I could be there with you, to support you, to grieve with you, to celebrate Tripp's life with you. I will be there in spirit. If I were there I would say that I am blessed to have known and loved such an exceptional little man who has served his Heavenly Father so perfectly in his short life, bring souls back to the Father, and setting an example for all of us to follow. Tripp's mission is over but will not be forgotten. Those of us who were touched by Tripp's light will carry it with us all the rest of our lives. Sending prayers for you Courtney. Knowing that you too, by virtue of the fact that you were chosen to be this special spirits earthly mother, are a specially blessed spirit changing lives right along with precious son. Thank you for sharing him with us. I'm eternally grateful!

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  16. I won't be there in person As I am in WA state (I'm from Ponchatoula) Courtney but I will be thinking of you. My prayers are with you & your family. I love watching Tripp's videos. He'll forever be apart of my life. Thank you for sharing his life with all of us. God Bless you. Your such an amazing woman & mommy. Lighting my candle for Tripp, who is in heaven playing his drums. Lots of love & Prayers
    Kimberly Reck

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  17. Our thoughts and prayers will be with you in spirit from Minnesota and a balloon will be released at 1:00 in his memory. Thank you for sharing Tripps life with us. Until you meet again may God hold him in the palm of his hand.

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  18. Thank you so much for taking the time to read my blog post about your darling boy. I was very touched when I found your comment. Imagine that you took the time to go to my blog and look at pictures of when our lantern that sailed up to Tripp at this difficult time. It feels very nice. <3 It was a very moving moment outside in our garden and we followed the lantern until it disappeared into the darkness with its message. I live, as you probably understood, in Sweden and can not be in the morning and say farewell to Tripp. But I want you to know that I will be with you both in thought and in my heart and I will try to give you strength to cope through this day. I wish you a peaceful day with much love around you. Is there anything I can do for you, here on the other side of the world, do not hesitate a second to ask. I'm forever touched by you and Tripp. All of my love and prayers go out to you, Courtney. Hugs Asa Seger

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  19. We're all the way out in canada, but I will be there in spirit. God bless you and your little angel.

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  20. I will be in Chicago in body but in Ponchatoula in spirit. God's comfort to you and your family.

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  21. I so wish I could come to LA to say goodbye in person to this sweet baby boy who fought so hard & changed so many lives in his short life.
    My thoughts will be with you all as you lay him down to rest. :(

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  22. Wish I could attend but I promise that I will be there in spirit. Sweet Courtney, my heart is with you. May God continue to uplift you all during this time of grieving.

    Love-
    Mary and Baby Jackson

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  23. Our thoughts and prayers are with you and your family. RIP Sweet Tripp

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  24. this is my first visit to your site. i am so devastated for you, and i have no real words. i am praying for you and your family. sending gentle hugs from a sister in Christ.

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  25. Oh dear sister, please accept my prayers and love for your family. There aren't words a total stranger can say. I'll only tell you that my heart is breaking for you. I understand the loss of a child. I will be praying for your peace and strength. God bless you God bless you!

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  26. I wish I could be there, and if I didn't live hundreds of miles away, I would be. My son's funeral was a year ago today. Thinking of you during this difficult time. We all love you and Tripp, even perfect strangers (like me) from the internet.

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  27. God bless you and your sweet Tripp. May the God of all comforts be with you! You were a wonderful mommy, and Tripp and you were so blessed to have each other.

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  28. YOu are a strong and wonderful lady of faith know this...and we will try to make it <3

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  29. I can't be there in person, but my thoughts are with You and Your family. Lots of love from Estonia.

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  30. Just saw this on FB. So sad for your baby. He was a trooper. Thought of Tripp as I watched "World's Smallest StormChaser" on TLC/Discovery. The storm chaser was a girl from England with EB. Very inspriring.

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  31. Hello Courtney.

    I am so sorry I will not be in attendance. I live in Houston, but you are and will always be in my heart. I thank God for your example and pray that God sends you peace and the blessings that reciprocate from being the mother that you are. Once a mother, always a mother. God bless you and peace be unto you.

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  32. Courtney, I can't make it to the service but please know I will be there in spirit. I wish I could have met Tripp in person. I know I cherish everyone that got to meet Lauren during her short life.

    Great things are in the works for you. Our angels are always there by our sides to help guide the way. Tripp has made so many lives better and he will continue to do good work through you.

    Call or email with anything you need.

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  33. Courtney, I was devistated when I read that Tripp had passed. I hope you find comfort in knowing that he is, in fact, flying high with God. I can only imagine how good he is feeling - walking and talking with Him. No more pain. No more suffering. Words could not express how deeply I feel for you and your family. Having to go on living without your child is something no mother should ever have to experience. Only we know this is part of God's plan. You have been a witness to thousands and thousands of people. Your reward is waiting for you. And one day you and Tripp will be together again.
    Love,
    Kelly

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  34. Sending my love from afar here in North Carolina. Will be attending his service with my own silent prayer.

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  35. Thank you for inviting us to be a part of yours and Tripp's lives. He has left an impression on my heart that will always be there. Y'all taught me not to take one moment for granted cause nothing is promised. My heart is in pieces. I've never meet you or Tripp but I felt like I knew you both. Please accept my sincerest condolences. I feel like the light doesn't shine as bright now :( I know he's in a better place and finally free of pain and drumming away but it just seems to early. Your family will always be in my prayers.

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  36. I will most certainly be there in spirit as I will be sending prayers from here in Florida. I know Tripps whole family, especially Courtney and Anita will be held in Gods tender embrace the whole day long and all the long days coming. My love to you all,
    Diana

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  37. Although I can't be there, I have been praying and will be praying for all of you - Tripp, you, your mother and the rest of your family.

    Once again, love and prayers, now and always, from Pakistan.

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  38. Sending you and your family ALL of my love from NY. Tripp truly touched my life in so many profound ways, I grieve with you. Thinking of you all the time Courtney.

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  39. I wish I could be there to celebrate his life! I know he is running, playing and singing from heaven and is showing you with love! God bless you and your family Courtney!
    Terry's from Clayton NC

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  40. I wish we were closer so we could be there. We haven't stopped praying for you and your family Courtney. We loved little Tripp so much. He REALLY CHANGED our lives. Thank You for taking such good care of him.
    Love,
    Crystal Craig from CA
    liamdcraig.blogspot.com

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  41. May God bless y'all Courtney. You will continue to be in my thoughts and prayers. We prayed for you Sunday in Mass at St. Richard Catholic Church in Jackson, MS.

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  42. I literally just discovered your blog. You are such an amazing mother and so inspiring. I love you and Tripp. Thank you for being so brave and sharing your story.

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  43. I can not quit thinking of you all. May you sweet angel have an amazing life in heaven now guiding you & watching you every single day. XoXo

    I wish I could be there. Tripp changed my heart.

    Jessica
    Sanvannah, Georgia

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  44. Courtney & Family --

    Although we're too far away to attend, please know that you will all be in our thoughts and prayers tomorrow.

    Sending you our love and strength!

    Big Tight Hugs,
    Katie, Stanton & Chloe

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  45. I want so badly to share words of comfort and encouragement, but the only thing that keeps running through my head is the following, "Yet you do not know what your life will be like tomorrow. You are just a vapor that appears for a little while and then vanishes away".

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  46. Can you put the service on the Internet for those who cant make it?

    Please know you are thought of, I miss ur blog updates and miss ur little boy!!

    Love,
    Nicole, Rosemead, Ca

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  47. For those of us who can not attend his services, but would like to do something, do you have a suggestion for a place to donate money or time in Tripp's memory?

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  48. Praying for you...you amazing and precious mama. I know God is so pleased with you and will comfort your heart and be as near as your breath. Your sweet Tripp is so loved. Well done sweet Courtney.

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  49. My prayers will be with you tomorrow. I wish I could be there in support of you and all you have done for your son. May the peace of Christ be with you. With love and respect, Jen Holden

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  50. I wish I could be there, but I will be praying from home. Tripp has been in my thoughts and prayers for 6 months now, and now Tripp is at peace and pain-free, I now pray to heal Courtney's heart that is breaking. Much love to you Courtney, as you and your little drummer boy in heaven will always be in my heart and I will pray for a cure!

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  51. Courtney, you and your family are in our prayers. I pray that God wrap his arms around y'all and give y'all comfort through this sad time. I can only imagine how heavy your heart feels. Your strong faith makes me smile bc you know when it's your time your Lil man will be waiting on his mommy with arms wide open. He's finally EB free and most of all pain free. Tripp was such a trooper as were you. Y'all amaze me. You are more than awesome, more than wonderful, more than astounding, You are an inspiration to millions, you are tripps mommy...enough said! He's such a star...I love y'all so much! You and your angel have changed thousands of lives. thank you for letting us experience this journey with y'all. Keep your strong faith sweetie <\3 much love, bless you and your family.

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  52. Im sorry to hear about your lost and I wish the best for your family I have followed your blog and I just want to say you have been a great mother to that sweet baby boy. He is in gods hands now you did all you could to make his time special and thats all that counts........R.I.P. TRIPP YOU MAY BE GONE BUT YOUR STORY LIVES IN OUR HEARTS FOREVER, YOU WILL NEVER BE FORGOTTEN!

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  53. Courtney, please know that Kaelin and I will be with you in spirit tomorrow. We will be praying for your comfort this time. That God will heal your heart and you will know His Grace. You are an amazing mother and you rose to His calling when Tripp came to you. We love you and Tripp and you will always be in our prayers.

    Dawn & Kaelin Thomas

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  54. wish I could be there to show my love and support. You are an amazing mother, tripp has forever changed my life. You're family is in my prayers. I'm so happy to know tripp is with heavenly father right now-pain free and loving life :) you will be with him again and what a sweet reunion it will be.

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  55. Thinking about you. I prated for peace and it was special to know that Tripp left this world in peace with the most important person holding him. Praying for you in now and in difficult times ahead.

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  56. I would give anything if I could be there. Please know that I along with so many people around the world will be with you in prayer, as we have been for so long. I cannot keep you off of my mind. My heart aches for you, Courtney, and I pray that you are able to find some comfort in the fact that Tripp is with his heavenly father, even as I know that your arms miss rocking that sweet boy. We will all miss him, but no one more than you. You are in my constant prayers. I wish I could send a big hug through the internet. Now i have tears in my eyes again. Oh, I wish I could be there. And OH, how I hate EB. I will continue to donate when I can and raise any awareness I can in my own small world.

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  57. You and your son are such an inspiration. Thank you so much for sharing your story. I can't even imagine the pain you are going through. I pray that God will give you strength and peace to get through your days. We all have a lot to learn from your story. Micha

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  58. Courtney - My deepest sympathies for your loss of your little man. You and Tripp have given me, a complete stranger, and the world a gift in your truly inspiring demonstration of God's love here on Earth. Thank you for sharing.

    Although his life was short, his impact was great. Because of him, I will try to love a little better in my own life. His pure smile has made a lasting impression on me that I will not forget. God Bless him, you, and your family.

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  59. I will be attending Mass at St. Francis Cathedral in Santa Fe, NM at the same time as Tripp's funeral. It is the yearly pro-life Mass, attended by thousands of people. You can guarantee I will place a picture of Tripp at one of the altars and seek Tripp's intercession for all the children in the world. He is a powerful Saint in the Body of Christ.

    The response by so many people to Tripp's beautiful life and the love shown to him, is a reflection of people's hunger for love in this world. Thank you Courtney and family for showing so many people what love looks like and for being such powerful witnesses to the truth of Jesus' Gospel.

    Courtney, your life with Tripp gives you an insight into Mary's experience with her Son that few people in this world have. You need to share this with others so that we can better appreciate Mary's work in Jesus' life: "you yourself a sword shall pierce" (Luke 2:35).

    Benjamin

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  60. Prayers and Peace. Tripp was a warrior, but so are you for being so devoted. Thank you for yours and Tripp's story.

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  61. Wish I could be there for you both, cause I for sure loved Tripp with all my heart <3 Lot's of love coming your way all the way from Belgium. May your sweet angel R.I.P

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  62. What I wouldn't give to be there in person. Please know that the Banks family from Utah will be praying and thinking about you. We will have a moment of silence for you, Tripp and your entire family.

    Lot's of Love from a Mom that thinks the world of you Courtney,
    Jadie

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  63. Your strength and love is what got him this far. I truly hope that other mothers who care for their children with the same heart wrenching disease take example from you.
    May God bless you in so many ways!
    Much love and respect from Rockledge Florida,
    Paula Perry

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  64. Courtney, I would love to be there to support you and celebrate Tripp's life. Sadly, we are expecting a major snow storm tonight and I just won't be able to make it. My children and I will be sending a balloon up to Tripp in rememberance tomorrow. You will be in our thoughts and prayers through the service. You and Tripp have touched my life. You have inspired me to be a better mother and I am grateful. Tripp is smiling down on you from Heaven! The skies will be drumming tomorrow! LOVE and HUGS!

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  65. I don't know what to say other than you and Tripp have changed my life for the better forever. I am so genuinely sorry for the unthinkable pain you are feeling. Tripp truly is and always has been an angel, and so are you. Thank you for sharing your miracle son with the world.

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  66. We will be there in Spirit. Wish it could be in person. God Bless you, and keep you wrapped in his loving arms. I wish I had magic words to take away your pain, but there just aren't any. Just know we continue to pray for all of you and will also keep up the fight!!

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  67. I sure wish I could be there. You are so strong Courtney. Tripp is in Heaven LOOKING down at you with his brand new eyes, he's playing his drums with his UNBANDAGED arms, and he's WALKING around because he doesn't have anymore hiney issues. He is so proud you are his Mommy. He knows that YOU are an Angel that was given to him to love him and care for him while he was living in pain everyday. He smiled and laughed and played because he knew you that was going to give you more hope. We love you so much Courtney. You truly are my hero.

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  68. I really want to attend sweet Tripp's services tomorrow, but due to work I am unable to attend. Please know that I will be thinking of and praying for you and the rest of your family tomorrow. I can't imagine the pain you must be going through right now. I will share with you what my very wise best friend shared with me the other day as I expressed to her my grief over Tripp's passing. She said that she believes that angels take the place of young children that have illnesses such as Tripp and bear their pain and burden, and we as adults learn from them if we choose to. I think part of Tripp's mission was to bring you closer to God through his unconditional love for you and determination and strength to be with you as long as he could. He taught you to trust God like you had never trusted Him before. As you said to the left of this page, Tripp taught you true love, patience, respect and selflessness. And I truly believe that God worked through you to give Tripp the best possible life he could have, and Tripp knew it.
    If there is anything I can do for you and your family, please let me know.
    lizzie70@lycos.com or gsommers74@gmail.com

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  69. Courtney, i have never seen your blog until today. My sister, who has enormous compassion, has been following you for a long time. She is clearly stronger than I am. We were blessed with healthy kids. You were blessed with Tripp. I can tell you right now that my sister and I are instantaneously 'better' people for what we have learned, and will learn, from Tripp.

    I am so sorry for your devastating loss. And for the pain of your journey. But I can tell you are an amazing woman who will treasure Tripp, and his part in your life. I will educate myself about this - for whatever good may come of it.

    Care for yourself as well as you can, and may the arms of your friends and family help you when you cannot. Thank you for your bravery.

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  70. I have been thinking about you so much over the past few days. Just want you to know that you have so many people sending love and hugs to you and your family Courtney....

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  71. I wish I were able to attend, but I live in NY. He has touched my heart, as have you, so deeply I wish I could be there to celebrate his life. I'm sure you will have an amazing turn out, he was a very special boy who captured everyone's heart. Xoxo

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  72. Thank you for posting. God bless and help Courtney and all of Tripp's family. Much love.

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  73. I so wish I could be there with you all. Brian and I seriously considered it, but with school, time off from work and the budget, we just couldn't figure out a way to it. We'll be there in spirit though. Think of you and your family all the while. Love, Jenn

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  74. Courtney, I wish I could be there but I will join you all in prayer.

    Praying and praying,
    <><

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  75. You will all be in my thoughts <3 He fought well, and you were there for him every step of the way. You did the absolute best for him Courtney. How through all that a child can smile and love life is evidence to how much you loved him, mind, body and soul every second of every day.

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  76. Courtney,
    My heart is so broken. Praying for peace and strength for you and your family. I know Tripp is pain free but that doesn't make it any easier on anyone here. Sending (((HUGS))) and my love to you guys!!!

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  77. Wish we could be there! We will be saying a prayer and celebrating his life during that time.

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  78. Dear Courtney,
    My heart aches for you and your family. I want to thank you for sharing your lives with us. You are a remarkable young woman; you have taught many mothers the true meaning of being the best mother possible for sweet little Tripp. You and Tripp have shown many people that every life is important with true meaning. You have made my faith stronger. I am relieved for Tripp to be in heaven and free of EB. I am sad for you, your family, and the rest of us who will miss him dearly until we see him again in heaven. I will be at his service to honor him, and pray with your family. God Bless you.
    With love,
    Kate Ashley Hayes

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  79. Hi Courtney,
    I pray for strength for you to get you through the next couple of days. I've been following your blog for a while now and am amazed at what a strong and brave little boy Tripp was. I think all your readers fell in love with him - I know I did!
    Marjan

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  80. My family will be with you all in prayer during your sweet sons service. Please let us know how we can continue to educated others on finding a cure!
    Much love to u all!

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  81. I wish I could be there, but I'll be thinking of sweet little Tripp and the strength, courage and perseverance that his short life taught us all. I'll also be thinking of you, Courtney. You are an inspiration to us all.

    You're in my thoughts and prayers.

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  82. My family will be with you all in prayer during your sweet sons service. Please let us know how we can continue to educated others on finding a cure!
    Much love to u all!

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  83. I am so very sorry for your loss and I will be praying for you....you are such an inspiration!

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  84. Courtney, we have been praying & will continue to do so throughout tomorrow & the days to come! I pray that God will continue to grant you peace & you find comfort in knowing how fortunate you were in getting to enjoy one of God's angels for a season & in knowing that Tripp is in a far better place than we are! I know that you are looking for the day when you can hold him again, but there are so many others who never knew him that are looking for that day as well! I cannot believe how fast Tripp has stolen a piece of my heart! Love, from one mother to another!

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  85. Courtney, once again I'm so sorry.

    I know a lot of us won't be there physically, but we'll be praying with you and thinking of you.

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  86. I sure wish I could be there for you girl but I live many miles away. Will be praying for you and your sweet boy. Love always!! Katie!

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  87. continually praying for you and your family

    with love from Birmingham, Alabama

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  88. I'm so very, very sorry for your loss. I will keep you all in my prayers. I'm sure Tripp is in the arms of our Blessed Mother right now, and she is rocking him for you. May God bless your family and give you comfort.

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  89. My thoughts and prayers are with you Courtney please know Tripp was loved and prayed for always

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  90. He can finally have peace and no pain. I shall be praying for the family who lost such a little angel.

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  91. So sorry for your loss mama, you will continue to be in my prayers...

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  92. I wish I could attend the service. I have been praying for you so much Courtney! I think of tripp often and keep coming to your blog to read about him. It seems so unreal that he is at rest now. Keep doing what you are doing, Tripp's story has inspired so many. I am so glad to have had this connection to your blog!

    Stay strong!

    Brittany

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  93. I´ll join in prayer from Tripp here in Spain.
    All my love and blessings

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  94. What a wonderful mom you are and oh how little Tripp loved you...May God hold you as you grieve for your sweet baby...What a wonderful life...an inspiration to all...Much of HIS LOVE to you and your family

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  95. Courtney, I wish I could be there to say good-bye to this sweet little boy. Know that he is in my thoughts and prayers. You and your family are also in my prayers. May God bless you and grant you peace in this emotional time.

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  96. You are still in my prayers....
    I can't be at the service, but will be praying for all of you, both before and during the service, and for all those travelling there too.

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  97. We LOVE you in Athens, AL Courtney! prayers of thanksgiving because Tripp is no longer suffering! Praise GOD he is healed and playing his drum in Heaven!

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  98. I am so terribly sorry for your loss...but so thankful that your precious son is whole and at peace now. I pray for you that you find peace and comfort in that. You are an amazing and courageous young woman...its clear where your son got his brave spirit...God bless you..

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  99. Above all love your neighbor as yourself, because love covers over a multitude of sins.
    -2 Peter 2:14

    Courtney, the "sin" of EB ravaged your son's body, but the complete unconditional love you and your mother have for him "covered" that sin and allowed his life joy and meaning. The greatest compliment I can give is to say Tripp makes me want to be a better father. You make me want to be a better father and husband.

    I love you as a sister in Christ, and look forward to one day drumming with Tripp.

    Scott
    Los Altos, CA

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  100. I wish I could come so badly, but I have a 5 month old and its hard to get away. I live in Birmingham,al. I'm praying for you and your family!! Your baby was such a precious angel.

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  101. I wish with all my soul I could be there to say goodbye to him. I and my family will be praying for you. May God continue to stay close by your side. RIP Gorgeous, perfect baby boy.

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  102. I do not know you but stumbled onto your blog. My heart breaks for you. I pray for your strength in the coming minutes, hours, days, and years. You are such an inspiration. I look forward to meeting this little drummer boy in heaven some day. Rest in PEACE baby boy.........

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  103. My son, Tony Suarez, used to play ball with Randy at SELU. I am sending prayers and love to you guys. I hope that there is comfort in your heart knowing that he is an angel. I have read your posts from the beginning and I have such respect for you as a mom. You are such an inspiration and a role model as a mother. God bless you all.

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  104. Courtney, I will continue to keep your family in my thoughts and prayers. during this time. Once again, I want you to know how deeply you and Tripp have touched my life. I learned to look at life differently and to never take advantage of each new day.

    I wrote a poem for Tripp that I incorporated into a special video which I posted on Renee's Facebook page for Tripp (you can also view it at http://youtu.be/2u8IVkDvlfg). I hope that the video makes you smile; it comes from my heart.

    Whenever I see or hear Elmo or a drum I will definitely think of our brave, courageous Tripp.

    Love and hugs in Christ,
    Sabrina (Hawthorne, NJ)

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  105. Courtney-My little girl and I are trying to come down from NC to say good bye. If we don't make it please know that we are thinking about yall and we love yall.

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  106. Your story, strength and love are inspiring. I have done nothing but think about you and pray for you and your family since I first came across your blog yesterday. I will continue to do so. I shared your story with my high school science students today and they wanted to send their thoughts and prayers to you as well. So from myself and 130 high school freshmen, we are praying for you and thinking about you through this extremely tough time.

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  107. My thoughts and prayers will be with you and all who loved Tripp this week!

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  108. I'm soo sorry for your family's loss. Tripp's story has touched my heart and if I was closer to Ponchatoula, I would have loved to attend his service. Just know that you are in my heart and no one could have been a better mother to Tripp than you have. He was very lucky to have you in his life. I find solice solace now knowing that he is never EVER going to be in pain again. No one, especially not someone so little as Tripp, should have to go through what he did. RIP Tripp. You are loved!

    Jenny Brummer
    San Jose, CA

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  109. I SO wish we could be there, but please know we are with you in spirit. Our prayers are continually with you and your family, Courtney. Please let me know if there's ANYTHING I can do for you!

    Love from TX,
    Laura (for Team A)

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  110. Thinking of you and praying for you and your family during this difficult time.

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  111. Courtney,

    I'm new to your story. I came across a link for your blog on a friend's Facebook page, and decided to read. I'm interested in people's stories and I think blogging is a great thing. I have to tell you, that i'm sitting in my office at work, wiping the last of my tears away. I couldn't ever really imagine your struggles. They're so far from my own as most people would have to admit. So the only way I can try and connect with you is through your words. And I have. Which would explain the tears. I feel compelled to share with you the admiration I have for you. Just through words. Isn't that also one of His gifts? ...You should be very proud of yourself. You are a beautiful person. And because of that, your son, an extraordinary gift of life, was also a beautiful one. Through your hurt, please consider yourself lucky. You got the privilage of witnessing and taking part in the true beauty of life. ...True love. There isn't anyone in this world that could have been any better for Tripp. Find comfort in knowing that. Though we are strangers to one another, I send my love your way.

    God Bless,
    Grace

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  112. You were there when he took is first breath and there when he took his last. The in between will always be cherished by you and all. You gave him a wonderful life. Thank you,Courtney, for sharing your life with Tripp to all. Please don't let the story end--I look forward to hearing your progress in your future endeavers. My love and prayers are with you and your family.
    Stephanie Perrin

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  113. Praying for you and your family.

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  114. So sorry for your loss. I came over from Kelly's Korner & wanted you to know we're praying for you.

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  115. I am so sorry for your loss. It is obvious by reading your story what an amazing, loving, and selfless mom you have been to your precious baby Tripp. May God bless you and give you strength. ((hugs))

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  116. I will be there in spirit Courtney, and holding you, your family and all others who knew and love(d) Tripp in my heart. With love from New Zealand.

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  117. I wish I could be there to show my support and love for you all. I'm sorry I can't be there. I'll keep you in my thoughts and prayers now and for always. Courtney and Tripp, you have touched so many people. I shared your blog with my "mom group" on facebook so you have had more followers from all over the world. I hope you can find peace and comfort in this hard time.

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  118. I can't be there in person but I will be praying for you tomorrow. May God carry you on this most difficult day.

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  119. My prayers are with you and your family as you honor Tripp's life. He has touched so many! May the love of God surround you now and in the coming days.

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  120. I really wish I could be there but my thoughts and prayers are going out to you and your family. Just remember he's at peace. He was such a wonderful little boy. Thanx so much for sharing him with us.

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  121. I have followed Tripp's story for years now and I am so heartbroken for you and your family. I am praying for peace and comfort that only our sweet, Savior can provide to you. You will see your precious Tripp again one day!

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  122. I am so sorry that Tripp died, but I am grateful that he is free from pain and at peace. I will be at the service in spirit and praying for all of you.
    LeeAnn
    Richardson, TX

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  123. Today I was blessed to encounter the newsfeed about the loss of your sweet child. First I am so sorry that you lost your little angel!! I want to thank you from deep within my heart for sharing your story your life and the life of your son! I am sorry that you get such horrible comments made to you :( when I saw this story on my fb I went to read out of curiosity. I am a nurse and have never heard of this illness. I was curious. I could not stop reading but no longer out of curiosity but out of compassion!! You are right some of us are ignorant!! I have questioned Gods plan while thinking my daughter having Athsma was so horrible.... You made me thank God my daughter has Athsma!! We sit here everyday questioning our petty problems that are. It really problems in a larger scope they are merely annoyances things we really don't want to have to tolerate on an occasional basis. When there are people like you in this world who pray for another day of annoyances just to have another moment to love your precious child. Our daily trials are like luxury vacations for you..... You go beyond compassion and love and strength and loyalty you provide something many of us do not even have inside us..... I am thankful that I bumped into your blog because you have opened my eyes and my heart I can thank God that I have my trials and problems and I will no longer look at them that way only as daily blessings and reminders that GOD is here and he is in control and that the way I see things is NOT how God sees them. Thank you Courtney and Tripp for teaching this sometimes cruel humanity that we all serve a purpose and not our own but Gods.... Thank you for teaching me personally to view things completely different than I ever had before!!!

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  124. I wish i wasn't so far away because I would be there no doubt. I learned of Tripp through "I Love Liam Lyon" on facebook. So, last night i went through and literally read every single one of your post and was totally amazed by your stength. Not only yours but how stinking tough your baby boy was. And soooooo smart! I pray that God gives you peace and thank you for sharing his story.
    God Bless You,
    Brittni Boling
    Muskogee, OK

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  125. I saw pictures of you and your darling baby boy on pinterest last night. It was all I could think about all day and night. I never had heard of EB before but I certainly am aware now, from visiting your blog. I am so sorry for your loss, the pictures of you both speak so loud and clear, it was obvious how much he loved you from the smiles on his face. I will be praying that you will be comforted through your loss, and thanking our Heavenly Father that Tripp is no longer struggling with his physical battles. Wishing you all the best...and know that you will see him again one day, with a perfectly healthy body.

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  126. I have to admit I clicked on your post thru a friend's posting, was it curiosity I'm not sure as I have a 2 year old son as well. When I read "he was exactly 2 years and 8 months old" on Saturday January 14th's blog, I choked, my heart stopped and I froze. After quick calculations, I confirmed what my heart already knew...our sons share the same birthdate. I feel we will be forever connected thru the May 14, 2009 date.
    I am extremely sorry for your loss.
    ((Hugs))

    Amanda Eagle

    Mandy_kinz@yahoo.com

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  127. I just stumbled upon your blog yesterday for the first time and spent more than an hour reading through yours and Tripp's past, just crying. I'm so sorry for you loss and I'm so thankful that you have a relationship with God to get you through this. Thank you for sharing your hurts. Most people just want to show the "good stuff". I'm praying for you and your family, as are several friends I've come across today who I found out read your blog as well. There was even a prayer for you turned in at church on Sunday by someone else. Praying.

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  128. I wish I was close to you guys. I want nothing more than to attend his services. You are the true definition of a mother, Courtney. And sweet Tripp - YOU are an inspiration. YOU are so loved. I wish we could see your smiling, pain free face in Heaven. Rest in Peace sweet angel.

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  129. Courtney, my heart breaks for you and your family! Tripp has touched so many lives, including mine! I will always remember him and never, ever take for granted what I learned from him!! All my thoughts and prayers are with you and your family!!

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  130. You, Tripp and your family are in our prayers. We pray for you to have continued strength and courage during this time tripp seems so much like you, so strong and brave, may peace be with you as you say good bye to your precious little boy, as a mother I contemplated the things you might be feeling and have mourned and cried with you for your loss for now, it is true what you said about those who don't believe in heaven or don't have hope when their little ones leave for a while, I can only imagine the valiance of your little one and the joy he would feel now having lived on earth with so much love, I know he will watch over you just as you have watched over him and he will wait to hug you again. I pray for your heart to be fortified against the moments of sadness and grief, Heaven has another soldier home now.

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  131. Courtney ~ My heart cries with you and I sincerely thank you for sharing your heart and your sweet boy with so many of us. Please know that many of us are lifting you up in prayers!

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  132. Courtney - I just became aware of you and Tripp from the news stories. I am SO sorry. Please don't mind the people that leave terrible comments - there is obviously something very very wrong with them. You did everything you could and you did it for the best of reasons. I will think of you and Tripp tomorrow during the services. So sorry for your loss. I wish you, Tripp, and your family abundant peace.

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  133. Courtney, I am so sorry for your loss. It was obvious from your beautiful sons smiling eyes how much he loved you and how happy he was to just be with you. I truly believe heaven has received a very special angel in Tripp and that he is now flying high, free from pain. Rest in peace little drummer boy you were a very special little man and an inspiration to us all. My thoughts are with you and your family Courtney. Take care, Corrina x

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  134. I can't begin to imagine your grief. I live here in LA also (Shreveport) and have two little children...and reading about your loss just now has me in tears as I type this. As a father, my heart goes out to you. But I do know you will see your child again in heaven, and that he is in a much better place now. I will post about this on my blog, to help raise awareness of EB, and support for a cure, in my own small way. My prayers truly go out to you during this very difficult time in your life.

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  135. My thoughts and prayers will be with you and your family tomorrow. I will be thinking about Tripp tomorrow and wishing him a peaceful send off to his Father in heaven. Lots of love to you and your family... Tripp will always be in my heart and in my Prayers. Love, Laura Valetutto
    Bergisch Gladbach, Germany

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  136. I just started reading your blog, but I read all your entries and I think you have a special place in heaven. The love you have for Tripp is what all moms should have. I will pray you have comfort and peace. I lost a child too and it is such a heart breaking thing.

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  137. The Molly Bears team will be there in spirit. Tripp has touched each of our lives, and Courtney we cry with you and hurt for you! http://mollybears.com/ we hope you don't mind but we are sending something special your way!

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  138. I wish I could be there to pay my respects to such a strong little person as Tripp was.
    We will always remember him and enjoy looking at the photos of him smiling and playing his drums.

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  139. I want you to know -Really, truly know- that you were and continue to be an amazing, strong mama. Tripp loved you with all of his sweet little heart for his entire life, and now will be your own personal angel now and then your welcoming committee one day. My thoughts and prayers have been with you for days now, as they will continue to be for a long, long time.

    You did nothing wrong, you are not to blame, and one last thing: It's important to let yourself cry and take sympathy and take meals and such. It really is necessary.

    prayers and love are with you from all over, miss courtney. take comfort in God's love and peace. And I'm sure, (absolutely positive) that Jesus loves Tripp's drumming. :)

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  140. I'll be there in my thoughts, dear Courtney! Keep being as strong as you are!

    Hugs

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  141. I have found this verse to comfort me in my happy times (my wedding) and times of great despair (premature birth of my second child).

    Numbers 6:24-26
    The Lord bless you and keep you;
    the Lord make His face shine upon you, and be gracious to you;
    The Lord lift up His countenance upon you, and give you peace.

    You are in my prayers.

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  142. I wish I could be there, but I will be there in spirit. Your beautiful angel touched our hearts and inspired us. I would like to send all the love and prayers we can muster for all of you at this time. God Bless Courtney big **HUGS**

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  143. Courtney, a family in San Diego wishes we could support you in person.

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  144. I am so sorry Courtney. I hope you're getting peace knowing he's right now pain free and drumming away in heaven.
    You and your family will be in my thoughts and other than that I don't even know what to say. I'm very very very sad that Tripp is gone but also very very very certain that he's in a much much better place now.
    God bless you Courtney, the best mommy I've ever known

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  145. I am praying that you also find PEACE at this time. I can not even begin to imagine how much you will miss your boy... What a fighter he is! I'm sure he will watch over you now.

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  146. Courtney, what an amazing, beautiful, and strong boy you were blessed with. And what a strong, courageous, and beautiful mother you are. Words cannot describe how sorry I am for your loss. No parent should ever have to experience the loss of a child. You will be in my prayers as you go through this heart wrenching and tough time. We can only imagine what you're going through. Thank you for letting us into your life with your blogs, pictures, and videos. They are most inspirational. May God continue to be with you in your time of need. R.I.P. Tripp

    Ashley Brezina
    The Colony, TX

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  147. I found your blog yesterday and started at the beginning. 12 hours later, I finished with the sad news. I am so very sorry for your loss. Tripp was such a strong little man! May he drum on forever!

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  148. I wish I could make it to your city, but since I can't, I will definately continue sending my prayers. Keep your prayers towards heaven and your knees to the ground. God Bless you Courtney & God Bless Tripp!!

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  149. I am sorry I can't be there in prson, but I will be there in spirit. You continue to be in my thoughts and prayers. Hugs from one EB mommy to another

    Katie Kacmarsky
    Grand Ledge, MI

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  150. Dearest Courtney,
    I am so so sorry for your loss. Ive followed your blog for a long time and i am amazed by your strength. You are an amazing mommy. I hope you will continue to blog. I never knew about EB until i found your blog. Now, thanks to you and Tripp, i spread the word. Thank you so much for sharing. May God bless you with peace and more strength and may Tripp rest in peace.

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  151. I live in CA, so I won't be able to attend. But I will continue to pray for peace. Many hugs!

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  152. i will be there in spirit. Praying for comfort for you Courtney, and all who love Tripp

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  153. We're there with you and your family in spirit and in prayer. This brave, brave little boy will be so missed by all he has inspired and continue to inspire in the world. Truly an angel in every sense of the word. God bless.

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  154. this is why God gave him to you--look how unselfish you are--you want to share him with the world:) You are truly a beautiful person Courtney & the most amazing mother--a true example!! My deepest sympathy & love for you & your family. Thank you so very much for sharing your beautiful amazing brave little boy with us--I will remember Tripp always:)He stole a piece of my heart & took it with him.

    Melanie Cain

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  155. I live in Washington & won't be able to attend but my thoughts & prayers will be with you & your family. I will wear red tomorrow in honor of the most precious little drummer boy who stole my heart!!

    Melanie Cain

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  156. Peace and blessings to you from Cleveland. I picture Tripp in the arms of Jesus.

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  157. I don't know how to begin, but I know I want to say something. I just stumbled upon your blog today, and read past posts about Tripp and all your daily challenges this afternoon. I thought you all day long. Later I came back to the blog to follow it and saw this post. I've spent the past hour grieving for your loss, shedding hard tears for you, a fellow mother whom I have never met. I wish there was something I could do as an anonymous stranger to bring you some comfort in this loss, but I can't possibly understand how you must be feeling: profound sadness, profound relief, profound longing... all at the same time. I do know I want to say this: thank you so much for taking the time to keep this blog and remind complete strangers of the depths of a mother's love and the beauty that we should never pause to see in our children. I will be thinking about you and praying for you for a long time to come. God bless you.

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  158. I came across your blog today. I'm so sorry for your loss. Your baby boy is so beautiful.

    I am praying for you and your family right now (and I don't really pray that often these days...) I can only imagine how difficult it must be.

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  159. Courtney,

    I came to visit your blog for the first time today. I read all about what you and Tripp have been through. I am so sorry to hear that Tripp passed away. I will have you in my prayers. I hope God brings you comfort and peace. Thank you for sharing your story. I believe it will education others and inspire.

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  160. Please know that you have friends in Indiana that are praying for you and your whole family Courtney. RIP Tripp. You are forever missed! Hugs to our little drummer boy in Heaven!

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  161. I am so sorry for your loss of sweet Tripp. What a story of love, faith and dedication. My heart aches for you all, but am so glad Tripp is now healed! May God's peace fill you through the days, weeks, months, and years ahead! His life was still a blessing, he had you!

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  162. When one door closes another opens. May you find your way and your peace in the days and years to come.

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  163. My thoughts and prayers are with you and your family as you go through this trying time in your life! Much love and prayers coming your way! I can't imagine the numbers of people that Tripp has touched in this world, I sure know he grabbed my heart!

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  164. My God bless you and help you heal. You now have an angel in heaven watching over you. By the looks of the pictures, your son had a wonderful life, thanks to you and your husband.

    Take care.

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  165. Thank you for sharing your wonderful son with us. I look forward to meeting him someday. It has been and continues to be our privilege to pray for you and your family.


    God bless your friends and family. We're joining you in prayer from Hampton, Virginia.

    With love,
    The DeWitt Family

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  166. Your strength is inspiring. As is your love for your son. I feel blessed that you shared him with me, even if just through this blog. Heaven is lucky to have this little angel.
    Jennifer

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  167. I'm so sorry... Tripp's story has greatly touched me.

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  168. My heart breaks for you and your family during this hard time. At least there is peace in knowing that precious baby Tripp is finally at peace and pain free. For those who are too far too get the service is a internet candle lit vigil set up where we can post pics of a lighted candle in Tripps honor?

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  169. Prayers to you and your family! Your little guy has touched millions of hearts and I hope the outpouring of love from everyone helps ease that pain, if only a little.

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  170. I won't be able to make the services because I have to work. I will be there in spirit and you will definitely be in my prayers. I bought Tripp an Elmo balloon tonight. It's either going to be on my car or my mailbox tomorrow in Tripp's honor! I ask that everyone else get either a red or Elmo balloon as well! Just want you to know Tripp touched my life too Courtney, and so did you! Sending my love and prayers! God grant you peace!

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  171. I can't be there in person but I will be there in spirit. Will continue to pray for you. Wish I could be there for you! If there is anything that I can do for you let me know.

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  172. God Bless you and your Family. Thank you for making his life count!

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  173. I am sure it will be a beautiful service. I wish I was able to attend and join you in prayer. God bless Tripp, God bless you. I am sure Tripp will give you the strength you need like he always did. I can't imagine what you are going through or what you feel but I care so much about you. I look at the pictures of Tripp and My heart melts. I have written to you and have posted on your blog and I wish I could do more. I truly feel honored to have had the opportunity to know Tripp and you through your blog. My four children all fell in love with Tripp, especially my oldest two ( they are 7 and 5). Tripp taught them many lessons, especially how much they can care for someone they have never met. Tripp is so loved, so are you.

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  174. Oh my goodness. I am soooo soooo sorry. He is finally at peace. Rest that beautiful little soul.

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  175. My thoughts and prayers will surround you and yours tomorrow as you celebrate Tripp's life. I am so sorry that you have to hurt. May you feel the love from so many of us that have prayed for you and Tripp and the rest of your family. Thank you for sharing Tripp's journey and beautiful spirit, so that I could learn from him.
    Dannette

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  176. I am so sorry Tripp is no longer with you. I'm sure he touched so many people, it was in the Netherlands in the news that he passed away! I spend most of my days these last two days reading your story. I am glad you have God to help you, I am sure he is with you now!! Wish you all the strentgh you need now Tripp is no longer with you!

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  177. Courtney, I may not be able to come to precious Tripp's burial, but is there something we can do? Something you need, other than prayer because that is a given. We constantly pray for you and your family. God bless you sweet girl...

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  178. Courtney,
    I will be praying for you tomorrow. I pray that you are surrounded by love, family and friends during the most difficult day of your life. I know Tripp will be looking down on you and rock you to sleep from here on out.
    God Bless,
    Ashley mom of 2.

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  179. Courtney, I pray you are holding up. I know you have been busy making arrangements so your mind has been kept busy. I wish I could be there tomorow to have mass with you. Instead I will listen to my favorite Catholic songs in honor of sweet Tripp. May God bless you and keep you. Peace be with you, Amy~

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  180. Praying for peace and strength for you and your family during this difficult time. Love to you all! Wish I could be there.

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  181. I will be there in spirit. Thanks again for sharing.

    Lots of love, still praying for peace for you...
    JennC

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  182. I will be there in spirit. Sending prayers from Connecticut.

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  183. http://www.youtube.com/watch?v=oXxFIQV0y8Q (If the link does not work, it is Jewel's "Angel Standing By")
    Since I began keeping up with Tripp and his amazing, courageous journey, this song has made me think of you. The two of you made quite the team and I believe you were each others angels. Blessing, prayers and lots of love to you and your family.

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  184. I will be there in spirit! Peace be with you, Courtney.

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  185. I will be joining you in prayer tomorrow..your story has touched my life in a way i cannot describe. I know Tripp is in heaven delighting our heavenly Father with his drumming. Since I read your story last night i have been thinking non stop of you and your son...what a miracle God sent you and how precious you are to have received it with open arms. Take strenght in our Mother, Mary, who had to suffer just like you are suffering now. May Faith pull you thru this time..and may the knowledge that your beautiful son is now pain free in God's loving arms help you go on...

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  186. Oh, Courtney. I just found your site and my heart is breaking for all of you. I can't be there tomorrow, but you will have all of my thoughts and prayers. Please, know that you and Tripp have touched my heart in a way no other has. What an incredible difficult journey you have had. I wish you and yours peace and serenity.

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  187. I will be joining you in prayer tomorrow..your story has touched my life in a way i cannot describe. I know Tripp is in heaven delighting our heavenly Father with his drumming. Since I read your story last night i have been thinking non stop of you and your son...what a miracle God sent you and how precious you are to have received it with open arms. Take strenght in our Mother, Mary, who had to suffer just like you are suffering now. May Faith pull you thru this time..and may the knowledge that your beautiful son is now pain free in God's loving arms help you go on...

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  188. This is the leader head of my blog and I forgot it was there. This has Courtney written all over it. I love you Courtney. God works in ways that we don't always understand. Keep your faith in him and live your life in his image and you will soon be with our little angel again.

    "Let your hope make you glad.
    Be patient it time of trouble
    and never stop praying."
    --Romans 12:12

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  189. I can't travel there, but will thinking of you during that time.

    Love from North Carolina, Cheryl

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  190. I had not heard about you and your son Tripp until today when someone posted a picture on Pinterest, saying he changed their life. Curious, I followed it here.

    Until today, I had never heard of EB. After today, I will never forget it. Or you and your family. I don't pretend to know, and I won't offer you words you've heard a million times. If you love God and read His Word, you already know all the right verses. But they just don't take the pain away.

    Instead, just know I'm praying for you and your family, and that lives will continue to be touched for God because of your son's life and your example.

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  191. Courtney, I cannot even fathom the agony you must be going through. I wish I were able to attend if nothing more than to show support. You are an inspiration to so many people in your courage and your devotion among many other things. I pray that God give you peace in your heart. You are truly an angel among us. A leader, a mother, a friend to so many seeking knowledge and reaching out for answers. I can only hope we cam help you as much as you have taught us. My blessings to you and your family. I will be praying at 10 and 1 in your honor. May the blessed mother bestow her strength upon you and the holy spirit guide you into forgiveness for this tremendous burden you bear. Peace be with you, sweet Courtney.

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  192. I am so sorry for your loss. God Bless you and ease your pain.

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  193. I'm so sorry for your loss. It just breaks my heart, but I know you gave him a wonderful life and devoted so much love to him....

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  194. Courtney, My daughter Gracie who was 6 died just a month shy of Tripp. I followed your blog for quite some time now. You and your family Esp Tripp have changed my life. Our children were pure souls and I hope my Gracie was one of the angels who welcomed Tripp home to Heaven. She was handicapped and very fragile herself. She died in my arms, as I too told her all about Heaven and all of the wonderful things about it and how she would meet Jesus! There is life after death. Look for Tripp he's always around you. My Gracie holds me as I held her. And I bet Tripp is now holding you as you cry in pain for the loss of him. Remember CELEBRATE his life. As hard as it is not to mourn its okay if you just cry. We are human and no mother should EVER have to bury their child before them. I know your pain and heartache. But, know God's too cried for his son Jesus and he knows your pain and sorrow. Look up to him for comfort he is always with you. I will forever cherish the memories of my daughter as will you of Tripp.

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  195. I will be praying for your family's peace during this time, and celebrating what your son's strength, and yours, has done not only for me, but for so many others.

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  196. RIP baby Tripp...My heart goes out to you on this difficult day.

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  197. I'll be there in spirit if not in person. Many (((hugs))) to you all tomorrow.

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