Thursday, January 12, 2012

The strongest boy I'll ever know.

Things are not going well.  
Actually, things are getting bad pretty fast.  
I've known for about a month now that this time wasn't one of the times that my little man was just going to "bounce back."  He's too sick... sicker than he's ever been.  For about 2 months now, he has been laying in the same position, and not doing much of anything.  He has had major anxiety issues (which I think we FINALLY have under control, thank you God).  And in the past 3 days, he has spiraled downhill even more so.   
He has started to swell... (hands, feet, head, scrotum, lips, eyes... you name it).  He has WELL over 4+ pitting edema in his hands, feet and head.  His poor little swollen hand can't even hold his Elmo anymore (I'd rather you cut off my legs than my baby not be able to hold his best friend, Elmo).   The swelling is not a good sign.  It's called "third spacing."  This means that water is leaking from his blood vessels and collecting in the tissue areas between his cells.  This is usually caused by an electrolyte imbalance or the inability of the organs to function properly (which we think he could have both, or it could be from something else, we have no idea).  Dr. Defusco came to the house yesterday.  She spent about 6 hours with us.  She was there through his entire bath and then stayed after to discuss things and just talk.  She's so amazing- I can't say enough great things about her.  Seriously, I wish every doctor cared about their patients like she does Tripp.  It's very admirable. 
Dr. D doesn't think Tripp has much longer to be with us.  And seeing after seeing what he looked like yesterday and today, I have to agree with her.  His poor, sweet body is so tired.  The swelling is new- he's never been swollen like this before, ever.   He can barely even muster a smile to tell us "yes" or "no."  It's so sad.  I'm so sad.  I knew keeping him at home would be hard, and it is.  But I also know that it's a decision that I will never regret.  

He's throwing up with anything I put in his stomach- so she also wants me to slow down on his feeds.  She thinks that at this point his little body doesn't even feel hungry.  But as a Mommy, I can't make myself just stop feeding him... unless I'm doing more harm than good (which it's coming down to now).  That will be a decision that I will take literally minute by minute.  We ask him if he's hungry or thirsty very often... and he is still somewhat able to tell us yes or no with a little smile or a head shake.  
He is SUCH a fighter... sometimes I wish he didn't think he had to fight so hard.  
He's so incredibly strong. 

He is also having trouble regulating his body temperature (which is a sign of the electrolyte imbalance, perhaps an overwhelming infection, and/or his immune system just shutting down).  His little extremities are so cold.  And his temperature has gotten as low as 93.7 degrees.  That's a huge and fast change from the fevers he has been running in the past few months.   

Within the past three days, I think we have finally found a pain/anxiety medicine regimen that is working for him.  I can finally say that I think he is as "comfortable" as he's going to get.  He is sedated enough not to constantly cry due to anxiety but is still able to hear us and know what is going on.  Yesterday after his bath was the most comfortable he's looked in months.  Even during bath was better considering how bad he looks and is feeling.  I'm so grateful.  He's been sleeping well at night and I'm not having to suction him as much because his breathing is shallow, but very easy and comfortable right now. That is specifically what I've been praying to God for every night- peace in whatever form He can give it.  Now I'm not saying that it won't get worse, because I'm almost positive that it will.  I don't know how long he can hold on like this.  I just pray that we can keep him this comfortable until it is time for him to go to Heaven- whether that be days or weeks.   And I pray for him to be able to pass as peacefully as possible- at home- in his comfort zone- with the people who love him- where he belongs. 

Thank you all so much for your continued support and prayers.  Please keep the prayers coming, as we need them now more than ever.  If you like to pray for something specific, please pray for PEACE... for Tripp to have peace from everything causing him discomfort. 

I am so thankful for my faith at this time.  
I often think about moms who have lost children (or anyone who has lost anyone for that matter) who don't believe in God or in Heaven.  Do they wonder where their children are?  That must be the worst, most awful feeling.  I'm so grateful that I am certain Tripp's soul will be in Heaven and that one day I will see him again. 

"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the former things have passed away.”
-Revelation 21:4

What a promise, right?  No pain, no mourning... just me and my baby boy- EB free.  I can't wait until that day.  I have been reassuring him that it's okay for him to go home to Heaven.  
I tell him that Mommy loves him so much and that I am so, SO proud of him.  
I tell him that in Heaven, he will never hurt again and he will be able to run, talk, and play like a normal little boy. 
I tell him that there will never be a day that goes by that I won't miss him with every fiber of my being.  
I tell him how many people (like you guys) love him and that he has done such great things just by being alive.  
I tell him that I promise him that I will be the very best person I can be so that I can meet him in Heaven when it is time and give him the biggest, tightest hug he has ever had. 
I tell him that he has made me a better person for the rest of my life. 
I tell him that he is the strongest boy I'll ever know. 






Love,
Photobucket

866 comments:

  1. He is the strongest and you are an amazing strong women.

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  2. He is. And HE is faithful, Courtney. Your boy is amazing and you are an amazing mommy. Keeping you all tucked safely in my prayers for peace and mercy.

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  3. Oh Courtney, I am so sorry. My heart just aches for you guys. I will pray for peace.

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  4. Keeping you in prayers, lady. You are the stongest mother I have ever known...Keep the faith and thank you for always looking to God. It gives me faith and hope each day even going through my minor situations. Caiden and I pray for Tripp and we know that God is our comfortor. God Be with you Always!!

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  5. LOTS AND LOTS of prayers your way. A friend of mine told me about your sweet little boy. I have read your entire blog and have continued to keep up with your posts. It breaks my heart and I admire you for your strength. And Tripp for his incredible strength.

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  6. Praying so hard for you little one and your mummy too. I pray you have peace soon. Beautiful brave little boy xxxxxxxx

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  7. No doubt he got that incredible strength from his mom. I'll be praying for him and your family.

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  8. You are really someone I admire. I am unsure if I could do this my self though I know that as a mother we do what we need to for our children. I have prayed for both you & Tripp.. praying for that miracle. But I also learned that Tripp IS a miracle. Perhaps in all those prayers God had already performed a miracle in this little boy's existence.

    I don't comment a lot, but I've lost a child (my son died after preemie birth in 2009).. & I just want you to know that where ever this journey goes, you are never alone.

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  9. My heart just breaks for you and Tripp. I too know your sweet boy in headed to a much better place one day and EB free in Heaven. Hugs and prayers for you guys to get through these rough days. My tears are flowing and my heart is breaking. The Maksi family loves Tripp.

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  10. "My presence will go with you, and I will give you rest." (Exodus 33:14)

    I've followed Tripp's story and my heart goes out to your family. Praying for strength and peace during this time. You are such a strong mother for your sweet courageous boy.

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  11. Oh my goodness. You are such a fabulous mom with the most perfect son ever. Hugs to you, Tripp, and the rest of your family.

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  12. oh, those pictures. my heart is breaking. your little man deserves the peace you are asking for!

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  13. Praying for Peace...Love you both.

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  14. Courtney you are a wonderful person. Tripp, baby boy, you are amazing. We draw strength from your devotion to keep pushing through. I pray Lord that you please put your tender hands on him, give him PEACE, give him the strength to do your will Lord. This baby is suffering, and I ask for comfort in his name as well. Thank you Lord, Amen.

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  15. Courtney, I have never posted before, but you & Tripp's story touches me more than you you. I want you to know that you are the strongest woman I have ever "known". I am praying for peace for all of you. God Bless you!

    Lisa Cucinella
    Slidell, Louisiana

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  16. Hugs and prayers, Courtney :*-(

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  17. You, Tripp, and the rest of the family remain in my prayers.

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  18. oh Courtney... oh little Tripp...
    there is not much I really can say...
    I think about you and your family so often... I pray for little Tripp... and when the time comes I bet Jesus is waiting for Tripp with wide open arms... and they will do everything what Tripp coudln't do on earth... and I also think they throw a big party for him there... because he is such a brave and pure soul...

    I can't stopp crying...

    I just send you all the love for your little one...

    the warmest regards from Germany

    Andrea

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  19. I am praying for your little man! I pray God gives him the peace he deserves and the comfort you need to handle this.

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  20. Thank you for posting an update. You have been in my thoughts and prayers since my sister-in-law told me about your blog only a week ago. I will be praying for peace and strength for you, Tripp and your family. Sending my love!

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  21. Oh Courtney, my heart is breaking for you. I pray that Tripp is comfortable and peaceful. You hate to see your babies hurt. He is such a fighter and inspiration to all of us. I thank God for Tripp because he has helped so many of us become better people. I am also praying for you to have peace and strength. You are so right, I am so glad that we are promised to see our angels again. It breaks my heart for those that don't believe because they will not get to see their babies again. Children are a treasure from the Lord and Jesus loves them so much. Still praying for Tripp for I know that God still has him here for a reason. God has a plan that we can't see. Much love to you and your family!!!

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  22. Such an inspirational little guy. Thank you for sharing and being such a loving, devoted mommy. My heart is praying for his peace and your strength. Much love from Georgia!

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    1. Courtney, we'll be keeping you and Tripp in our thoughts. He's such a beautiful and sweet little man. My heart breaks over what you two are going through.

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  23. Courtney- I have been following you for awhile and I feel like I know you and Tripp personally. He has changed my life. You have changed my life. I want to be a better person- wife, mother, friend so I too can someday return to a loving Father in Heaven and watch Tripp run and play like he will be doing happily and pain free. I love you guys- strange I know to have strangers say this but I will never take little moments with my children for granted. I will pray for peace.. for all of ya'll! Love- your friend in Nashville, Shannon

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  24. Courtney, I am of a different faith then yourself, but in my faith of Islam, all children go to heaven and though it is hard to say this, I hope that Tripp joins the Lord there soon. I hate hate hate that he has had to bear with this painful disease, but God is the Most Just and allows things to happen for reasons which we may never understand. I hope that the remainder of his time here is peaceful and I pray that God grants you patience and comfort in this trying time. You are all in my prayers.

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  25. I am praying for you, for Tripp. God loves you and I am sure that he is very near, Courtney. I pray that Tripp knows this too... knows that God loves him and He's with him by his Spirit.

    Many prayers for peace and comfort, love,
    ebe

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  26. My prayers to your and your family, especially sweet, sweet Tripp. That he have the peace that he so deserves. You are such a wonderful angel yourself and you show with each typed word, how very special and loved that baby is.
    I'm sorry to hear that things are moving in a downward spirial, hold strong to the love you have for him and our heavenly father. Thank you for sharing your son with us. Thank you and may God continue to be with you and your family in these times.

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  27. We love you, Baby Tripp. We've loved and prayed for you since you were a week old. You were such a beautiful baby and in our eyes you will always be beautiful...inside and out. Peace be with you and Mommy and everyone whose lives have been touched by you. Kisses are being sent from Illinois. And lots and LOTS of prayers for peace, comfort and rest. Much love, Sarah, Tim, Ty and Lila Griffin

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  28. Courtney, you are soo strong. I wish only comfort for your sweet baby boy in his final days/weeks. You are so correct..He is soo strong but he gets it from his mommy.

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  29. I found this poem online
    I LIFT YOU UP IN PRAYER
    by:BeverlyJ.Anderson
    I talked with God this morning,and lifted you in prayer.
    I knew you were weighted down with much heartache,pain and care.
    I knew you faced decisions,so hard for you to make,
    I asked that God would guide you,and show the road to take.
    I asked for God to touch you,and take your pain away,be it His will,or give you strength each day.
    He promised He will be there,to comfort and sustain.
    He'll share your every burden,and soothe your every pain.
    Just give Him all your heartache,you'll feel a peace inside,and such a joy in knowing, GOD'S WALKING BY YOUR SIDE.
    His grace is all-sufficient,
    Your trials He'll help you through
    Cast all your care upon Him....For He careth for you.

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  30. My heart is filled with sadness but not for whats looming for Tripp but that his entire life has been an amazing struggle. The deep love you have for your son is undeniable Courtney and I wish you peace while he transitions. You are an incredible mother with so much love in your heart. Blessings to you all!

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  31. you and tripp are incredibly strong and i hope that rest of his time here is peacefull as possible.continue to be strong and don´t lose your hope. prayers from finland.

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  32. Sending prayers for PEACE. Just as Tripp is the STRONGEST boy, YOU are the STRONGEST mommy. God has trusted both of you with responsibilities that could not be handled without Him. I think the two of you have shown the world that "I can do all things through Christ who strengthens me,”Philippians 4:13.

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  33. Love you Tripp! Love you Courtney!...But most of all Jesus Loves You...

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  34. Always praying for peace to your brave and strong little man. I am happy that you have found a medicine that helps with the anxiety. It is heartbreaking that he can't hold his Elmo :-( I am so happy that you have your faith. It would probably be even harder to go through this without knowing God is by your side. And knowing you will meet again. It is an amazing thing to know. I will pray so hard for you and Tripp. Wish God send you peace and strength. A mother should not have to watch her child suffer. I am in pain with you even though I can't even imagine your struggle. Love always!! Extra much love to your boy. He is incredible.

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  35. Praying for Peace for that brave little soul! Praying for Peace for you to Momma!

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  36. God bless you and your family!

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  37. Praying for peace....

    Now may the Lord of peace himself give you His peace at all times and in every situation. The Lord be with you all. (2 Thessalonians 3:16 NLT)

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  38. You and lil Tripp are amazing & so inspiring to me. You are so strong and I'm grateful you have so much faith as well. Will def be praying for peace for lil man!

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  39. My heart is breaking for you and your family. It's so bittersweet to know that Tripp's struggle are almost over and soon he will be whole, painless, and unreservedly joyful... But that can only be when you are apart. Lord have mercy on you both. I am praying for peace and joy to fill this time you have together. A boy loves his mommy like no one else and I know he cherishes every moment you spend with him. I'm sorry, any words seem so inadequate. Love from South Carolina.

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  40. You are an amazing person. I'll be praying for peace for you and Tripp. May God bless you both!

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  41. You are ABSOLUTLEY AMAZING. I read your blog and I cry everytime. As a mother I can not fathom going through this. I wish you and your family all the PEACE in the world!

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  42. My prayers continue for all of you.

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  43. Praying and praying and praying for sweet Tripp, you and your family.

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  44. My heart just aches for this precious soul I have grown to love so much without ever even meeting him. As much as I don't want him to go & as hard as I know everyone has prayed for him to be healed, if it means PEACE for his little body, that's what I will pray for specifically with you, whether it means here or in Heaven.
    Your heart must be breaking. I will pray for God to ease your emotional pain, as well.
    I know that a couple of weeks ago, my son broke out with little tiny blisters on his hands, mouth, and below his knees around his feet. We took him to the doctor and found out he had "Hand, Foot, & Mouth", which is common among infants & toddlers and would heal in 7-10 days. I've shared your (Tripp's) story with my husband and shown him pictures of Tripp and before I could even say anything, he asked me if I could only imagine how sweet Tripp must feel since our boy felt so bad and didn't want to drink anything because of the few little blisters in his mouth. I CAN'T imagine!
    Please keep telling Tripp what a difference he has made in so many people's lives just by being alive. He is so very special!!!

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  45. The poor little thing. I can see the difference in Tripp in his pictures. I'm so sorry. Please know we are all thinking of you and sending so much love. My son passed away a year ago at 2 months old, so please email me if you need anything from someone that understands. Much love to you during a trying time.

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  46. Thank you for sharing your heart and Tripp's life with us. Many prayers are with you all day and night. May God give you both peace. You may be the strongest mommy we'll ever know too! We love you Tripp!

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  47. Praying that God gives you the strength to endure what's yet to come. You and your little man are an inspiration to all of us. God Bless.

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  48. praying for peace for the strongest little boy i've never met.

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  49. I will be praying for peace that passes all understanding for all of you, as well as wisdom and strength for you as you make decisions. Know that God has used you & Tripp to touch so many people to bring Him glory...praise God for your faith and for His faithfulness that He has shown through you. What an amazing son you have & what an amazing mom you are...my prayers will continue.

    Sheri D.

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  50. Thinking of you both and sending lots of prayers for your sweet little boy.

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  51. You are a wonderful mom who was blessed with an angel like no other. Both of you are in my prayers.....

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  52. Thank you for sharing Tripp with us all, Courtney. I can't begin to imagine how difficult this time must be for you. I pray for Tripp every day, hoping for peace for him. I pray for you, for being a tough, TOUGH mommy. I admire your strength. With love, Tracy.

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  53. Keeping you and Tripp in my prayers. ya'll are an inspirtaion to me! Praying for peace and comfort. Love from Mississippi.

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  54. Praying for you and your amazing little boy who has touched so many!

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  55. You've prepared us all that this time would come, but it's still a stab to the heart to hear it. I am so, so sad for you and for the rest of the world to lose our little warrior. My kids just asked me last night if there was any news with Tripp and I told them that he's very sick right now, and they prayed for him with tears in their eyes. A pain-free life in heaven....bittersweet smile right now. Hugs and prayers for strength to you and your family.

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  56. Oh dearest Courtney, how my heart goes out to you... I pray for you and your beautiful baby boy Tripp as well as your family and every one who loves your boy so very much... You are such a Godly woman and such an awesome mummy to your little angel-child. May our Heavenly Father hold you in His arms and continue to carry you through as He has... I also pray for no more pain for little Tripp and complete peace as he leaves all this behind. What a child! He has endured more agony and at the same time done far more for the Kingdom of God and for every person who has even just heard his name and read his story than most people walking this earth will ever do in an entire lifetime. All this with keeping his smile... I pray an abundance of Blessings on you both... I wish I could give you a hug... Lots of love, from my heart to yours.
    Mel G

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  57. Prayers for you and much love xx

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  58. Courtney, I am praying so hard for your precious baby boy. I can honestly say that I am a better person now because of Tripp, and I have so much love in my heart for him. I pray that God gives him peace and comfort in any way, shape or form. I am praying for you and your family as well. I am sending much love and prayers your way. This post has tears running down my eyes....we love you Tripp!

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  59. So, so much love to you and Tripp. I've followed you from the beginning. There are no words.

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  60. Praying for you, your family, and Tripp! Praying that God gives all of you peace during this trying time. As a mother, I can not imagine what you are going through. Your strength, faith, and unfailing love is so inspiring. I believe Tripp knows that you love him more than anything, but unlike us no matter how much we know letting someone go is the right thing, it is so hard to let go. He doesn't want to let go of his mommy, but one day you will be reunited and you will be able to give him the biggest hug without fear of hurting him! He is such a blessing to many! I do not know you or your family personally but you have touched my life and I just want to thank you for you that & thank Tripp for that.

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  61. Wishing you both peace and comfort. What an amazing little boy!

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  62. Courtney, I've stopped by to offer prayers for your family and Godspeed for Tripp. God bless you.

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  63. I am praying for you all...you and tripp are so strong...thank God he has an amazing mother like you.

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  64. Praying for peace & comfort, for Tripp & your entire family. My mom went to Heaven on Thanksgiving Day...I told her before she left to look up & find Gabe Williams, I will tell her in my prayers tonight to be on the look out for Tripp Roth..she will know them by the strenght & peace & happiness they show on their face. She promised before she left me that she would rock Gabe & hug & kiss him for Patrice & Matt. I promise she will do the same with Tripp. Courtney my heart is breaking for you & your family, but I know with God's guidance you will be ok..Love you Wanda Wilkinson Durham NC friends of Patrice & Matt Williams

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  65. Praying for peace and comfort for you all. You both are amazing!!!!

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  66. Oh, Courtney...
    My heart is breaking for you, and yet rejoicing in the thought of Tripp whole and healed, walking hand in hand with Jesus. Words are insufficient; just know that you have a whole army praying for you and Tripp. Hugs to you...

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  67. I'm praying for peace for your beautiful son. I have been looking for your post everything I get on here. I pray for your strength and peace when your sweet son is ready to be with God. Love you and him so much. Praying hard from Mississippi

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  68. Dear Lord, I ask of you tOday and everyday that you will bring Tripp and his family peace during this very difficult time. Lord I ask you to wrap your love and comfort around them. And Lord when it's time for you to take Tripp home that you will continue to give his family comfort and peace during that difficult time. I will never understand but it is not for me to understand just to trust in you and always lean on you. I speak this in Jesus name Amen!! God bless you Roth family! XOXO

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  69. Ahh, little guy I sure hope that you know what a truly amazing mommy you have. I hope that you are finding the comfort that you mom is trying her best to provide.

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  70. Praying for peace. I love your little man so much- I hope that is okay. Tripp and you have touched my life beyond words. Thank you for sharing your son with me. Please tell him that Kristi from Colorado loves him and that he is my hero!

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  71. Praying for y'all....may HE give Tripp and all of you the peace that passes all understanding that only He can give.....

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  72. Praying for PEACE for you and Tripp. You are both so amazing!

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  73. I'm praying for you and Tripp . I have been reading your blog for sometime now, but never can find the right words to say. I just sit and cry and pray for ya'll. I pray for Tripp peace and your to. You are a amazing mom. Love and Prayer.

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  74. I'm speechless.....YOU are so amazingly strong!!! That precious baby boy will be in god's hands and he will be an amazing guardian angel. I don't think there's much I can even say right now. I HATE to hear this. I think of yall every single day, its so awesome to hear he won't be in pain but how dearly will everyone miss him! I will continue to keep yall in my thoughts and prayers!!! Please give him lots of love and hugs!!!!!! Take care!!!

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  75. May the God of all comfort give you, Tripp, your mom, and your family peace at this time. Many thoughts and prayers for sweet Tripp.

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  76. I'm from Finland and I heard this story about a month ago..it brought tears into my eyes and it made wonder how hard could it be in a situation like that.
    You are very strong and your little man is brave, what a courage you both have!!

    I pray for you and Tripp! I pray the strenght for you and like it has been said in the revelation : one day the pain is gone.
    I send you a big hug from here,
    you both are amazing. God bless you!

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  77. Praying for peace for the strongest boy we've all ever known.

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  78. I admire your strength and courage during this most difficult. I pray for comfort for both you and Tripp. He is an amazing little man, with an amazing Momma.

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  79. Our prayers go out for Tripp and your family every night. Your baby is beautiful. He is a special presence that this Earth was lucky to know for only a short time. We will remember Tripp and his story for the rest of our lives and pray for a peaceful ending and a glorious new beginning with the Father. He will find his peace soon. Thank you for taking such good care of this angel!!

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  80. Our family continues to pray for peace for Tripp and your whole family. I am trying to type through the tears. You are such a strong person and Tripp was given to you for a reason. I believe his job here is finished and God needs to call his beautiful soul home where he can sit on his lap, healthy, happy,with his Elmo waKeeptching over his Mommy. So hard to actually put that in words. He is so very strong. keeps on fighting through the pain, You're a great Mom to let him know it's ok to stop fighting. He's brought so much to our lives, I just can't explain it. He is surrounded with thousands of prayers and hugs from around the world. So much Love for him and your family. When it is his time please know you won't be alone, we all will be there in spirit and prayer.

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  81. Court...We are praying so hard for you and Tripp and praise God for the comfort he is giving him now. Through your willingness to share Tripp and your journey with all of us, lives have been changed, our community has come together, and awareness of EB is spreading like wildfire. God knew his plans for you and Tripp long before he sent him to earth. Yes, you are an AMAZING mommy but most importantly you and Tripp are amazing servants of God. Tripp has touched more people in his 2 1/2 years than most people touch in a lifetime!! I pray you rest in knowing that when God calls him home they're gonna fling the gates open, second line him on in, and God will say, "Well done, my good and faithful servant."
    With love and Prayers...Leigh Ann & Bob

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  82. As I read this I try to imagine what it would be like if my healthy vibrant boys were sick like Tripp... I shed tears and offer up prayer often for you and Tripp... God WILL reward your faithfulness, God WILL give Tripp peace, God will give YOU peace, God WILL take Tripp home pain-free and he WILL reunite you with your EB free boy in eternity! Can you even imagine loving on him in eternity with out causing him discomfort?!?!! What a glorious day that will be!
    Psalm 30:5 - Weeping may remain for a night, but rejoicing comes in the morning

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  83. Lots of prayers for you and Tripp, and for peace for both of you.

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  84. (crying at my desk at work... having no idea how you feel but admiring you beyond measure... wanting badly to go home and hug my daughter tightly)

    our family's thoughts are with y'all :(

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  85. Love and prayers...it's all I've got. His Grace IS sufficient.

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  86. Can't seem to say more then we are PRAYING!

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  87. Amen...Standing in agreement with previous prayers for this precious child as well as the family.
    "G-Mom Fern"

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  88. I am not sure what to even say, except for that I am lifting many prayers up for sweet Tripp and your family. May you find keep faith and find peace at this difficult time. I am new to your blog but want you to know that you have already impacted my life in a profound way.

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  89. Praying for you, Tripp, and your mommy and family too. I pray that God gives you peace and comfort, and I thank Him for the wonderful loving momma you have.

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  90. May the Lord be with you all and I pray for complete PEACE! I am in tears reading this. Hugs from NC!!

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  91. Oh Courtney, I am forever thankful for God bringing you into my life to show me the beauty of innocence and compassion in a mother's unyielding love for her son. I pray for peace for you and Tripp and will continue to pray for your comfort and understanding.

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  92. Awww Courtney, my heart just aches for you!!! I will be praying for baby Tripp, you and your family!!! God has a plan for him!!! I'm sure baby Tripp will be standing at God's Pearly Gates waiting for you!!! I pray that God gives him peace!! You and baby Tripp is an inspiration!!! <3 The Diver Family!!!

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  93. Your family and that precious little boy are in my prayers. May God provide him comfort. Courtney I admire you and your mothers strength and faith. It is a beautiful thing.

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  94. He really is the strongest little boy and you are the strongest Mom. Thoughts are with you all. Hugs.

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  95. Praying for you and Tripp, thankful that God is faithful to answer.

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  96. I know that you've been slowly preparing all of us for this time, but it still saddens me greatly. I'm happy to hear that he is not so consumed with anxiety.

    May peace come to Tripp, you, and your family at this very difficult time.

    Thank you for sharing Tripp with the rest of us. He is truly an inspiration and a fine exmaple of a warrior, and he always will be.

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  97. Praying for your family. You are an amazing mom. Wishing peace for you all.

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  98. All of you are so strong! I pray that God continues to wrap his coat of arms around your entire family. I pray for peace. Most of all I want to thank him! Thank him for giving you this experience to draw deeper unto Him! Thank Him for giving you the opportunity to spread his word!! So sweet! My prayers continue to remain with all of you!

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  99. Tripp is in my daily prayers. I pray he feels nothing but peace and love and know he will be waiting for you in heaven.
    Love and Prayers!!!

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  100. Praying for you and Tripp. You are both an inspiration of Faith. You will see him again and he will be laughing and running!Praying for peace that surrounds you both like no other peace, like Jesus is right there with you!
    Sincerely,
    Holly Arnold

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  101. Yes, you WILL see him again. He will be in a place where pain is only a memory.

    I can't fathom what you've endured and what you are facing now, but I join my prayers with others for you to find peace and comfort and the reassurance that his sweet spirit is released from mortal pain and discomfort. I'm with you - how can any parent possibly endure extreme illness and saying goodbye to their child without a knowledge of God and the peace of the after life.

    I know God has a special eye out for him and for YOU right now (and all along). Give that sweet boy all the love that we all wish we could give him ourselves.

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  102. Praying for PEACE- may it bless over your home. So much love pouring from my heart to your family. Sweet drummer boy we love you so.... Love from Texas

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  103. Love to you all during this time, both of you by being on this earth have made the world a better place. Thankyou Tripp for showing us just how strong a little person can be. You're an inspiration!

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  104. Oh, I cannot tell you how my heart breaks for you. I pray that Tripp finds peace and comfort - perfect love. God bless you,and hold you snugly in the palm of his hand.

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  105. God Bless Tripp. He is absolutely beautiful. Thank you for sharing him.

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  106. Dear Jesus, Please please please comfort and help this baby boy and his mommy, and all who care for him. Amen.

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  107. I do pray for you, your husband and Tripp. I know our God will give the peace and strengh y'all need. I pray for anyone suffering with EB, ALS, Autism and Parkison, cancer and the care givers. My wife went to be with Jesus on June 27,2011 I loss her to ALS. It was the hardest thing I've ever gone through I couldn't have done it without the power of God in my life. I know I'll stand next to Vadia again in the Glory of Jesus. And I will get to meet Tripp there too, I'm looking forward to meeting the strongest boy ever. I can see where Tripp gets his strengh from, you are a wonderful Mother for being so strong. a friend in Jesus Christ, Rick

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  108. As a mum to a 15 month old boy, I am just weeping right now. Tripp's doctor is amazing! I cannot imagine the heartache you have or the comfort of knowing he'll be pain-free in days or weeks. I wish he could hold his Elmo! Sending lots of love and peace your way.

    Tripp is a beautiful and handsome boy. So many of us have fallen in love with him :) xx

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  109. My twins who will soon turn 3 years old, Allie and Zane, always pray for, "baby Tripp" before bed. Tripp has made an impact on this world that will be fully revealed in to us in Heaven. God bless you and keep you. You and your family are surrounded by angels.

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  110. My mom died of cancer when she was 42 and I was 16. The following was her favorite hymn. It comforts me often and I pray it provides you moments of peace. Praying for you and Tripp...both of you are so strong.

    "Be Not Afraid"

    1.
    You shall cross the barren desert, but you shall not die of thirst.
    You shall wander far in safety though you do not know the way.
    You shall speak your words in foreign lands and all will understand.
    You shall see the face of God and live.

    R.
    Be not afraid.
    I go before you always.
    Come follow me, and
    I will give you rest.

    2.
    If you pass through raging waters in the sea, you shall not drown.
    If you walk amid the burning flames, you shall not be harmed.
    If you stand before the pow'r of hell and death is at your side, know that
    I am with you through it all.

    3.
    Blessed are your poor, for the kingdom shall be theirs.
    Blest are you that weep and mourn, for one day you shall laugh.
    And if wicked men insult and hate you all because of me, blessed, blessed are you!

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  111. Praying for peace, for you and Tripp.

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  112. Tears and prayers. Trip will soon know joy and peace that none of us here can even imagine. May Our Lady carry him in her arms to Heaven, where Trip will be the newest little saint there. Courtney, my prayers for you and all who love Tripp now and always.

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  113. I can't tell you how sorry I am. I have read your blog before, but felt the need to actually write you. You are a very strong woman and Trip is very lucky to have you as his mommy. I wish him peace and wish you the strength to understand that he may leave you far too soon but that he will no longer feel any pain and discomfort. God bless you and your family.

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  114. Praying for PEACE and comfort for your little drummer boy. My heart goes out to you and your family during the very difficult time. Stay strong in your faith and know that you will see his sweet face again.
    Sincerely,
    Kristen Sherwood

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  115. Keeping you, Tripp and your family in my prayers!

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  116. Words cannot express..... praying for peace for all of you.

    We all love you!

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  117. Psalm 73:26
    "My flesh and my heart may fail, but God is the strength of my heart and my portion forever."

    Praying for Peace- Tripp, and you, have touched so many lives. He is such a warrior- and I know that so many great things await him, as so many great things have already come out of his short time here. Love and hugs from Virginia!

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  118. Courtney, there is nothing more I can say than I am so sorry you have to watch your sweet son endure all of this pain. I think of you both often and hope and pray comfort and peace come your way somewhere somehow. Much love to you and Tripp.

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  119. I have no words, but wanted to let you know that we are praying for you all here in the UK. Holding you close in our hearts. xxx

    Psalm 56:3 "What time I am afraid, I will trust in thee."

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  120. so many prayers for you and your family and your amazingly strong little boy....your story reminds me every moment how blessed i am to be a mommy...

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  121. Courtney, I have been a visitor to your site for the past several weeks, and have been praying for you and Tripp regularly. I'm so sorry for what you both are going through, but I (like you) have faith that you and he will be together in heaven for all eternity. The time you will have with him as a whole, healthy, joyful little boy will dwarf the time you share now while he is so sick. I'm looking forward to meeting you both someday; you and Tripp have been such inspiring examples to me, and I thank you.

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  122. Keeping you, Tripp and your family in my prayers! May God's peace be with you.

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  123. I just want you to know I am praying for you. Reading/seeing this just breaks my heart. I know there is a God & he is loving and kind. Sometimes, I question why he allows so much bad to happen to children & those who appear to love him most. I have a friend(actually it's her mom) who is living her last days. She has had several bouts with cancer over the last 12 years. The doctors can perform surgery or she can go through chemo again, but they aren't even sure it'll help. She has chosen to LIVE the time she has left. I mentioned my question to my grandmother & she said maybe God takes them first because he knows they are ready. He's giving the rest of us time to accept him, know him more, etc. Little Tripp is a precious little boy, completely innocent of all sin. Maybe he was sent here to bring others to the Lord through his story and your faith. It's definitely still not fair. I hope this brings some comfort to you if only for a moment. I read several blogs of parents that have lost children & one thing they all do to keep their children "alive" is to tell their story. I'm not saying you should do this. Obviously, it's up to you. I can definitely give you the blogs if you're interested. Again, praying for you & your family. I hope none of this came across as me overstepping boundaries, especially since I only know you through this blog/facebook.

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  125. Tripp is the strongest boy with the strongest mother. I will pray for peace and comfort for your family. God bless you.

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  126. Sweet little mama I pray for peace for your dear sweet angel, peace for you and your family. Thank you for sharing Tripps life with us. He has touched the lifes of all who have read his story and he has changed our lifes for the better. Tripp will always hold a special place in my heart and I will forever be grateful that you are such a strong mommy that wanted to share his amazing story with the world. May peace be with you all.

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  127. I'm heartbroken for you and Tripp. I have grown to love him so much just by reading your blog. I pray for peace for both of you.

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  128. Much love to little Tripp and to you and your family!!!

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  129. Dear Courtney,
    I was so sad to read this, I just wish I could give you a hug. As a good mommy the best thing you can do for him now is keep him as comfortable as possible. I am glad to read that he has apparently been feeling that way. And of course the best place for him to be is at home with those who love him more than anyone and can care for him as only you know how to do, instead of in a sterile hospital setting amongst strangers.

    I believe that little souls choose who their parents will be before coming down from Heaven. They choose their lives and the harder the life, the more advanced the soul. Those who choose a difficult path are truly enlightened beings who come to teach us a lesson. In Tripp's case, he has taught not only his family, but everyone who knows his story, a lesson about strength, compassion, and humanity. Remember that even though he may go back home to Heaven, time up there passes so quickly (it is an eternity, after all), that what seems like years to us down here on Earth may be just literally days or mere weeks to them. It is a place of utter joy and comfort, and you will be reunited again one day there to live your true happily ever after. Until that day comes, however, he will be pleased to see you carrying on his battle to inform and educate the ignorant about this dreadful disease.

    May the Lord grant him Peace and serenity, and as much comfort and freedom from pain as possible.

    Sarai
    Ontario, Canada

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  130. You are so incredible. Thank you for the update on your beautiful son Tripp. We are praying for his peace.

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  131. Courtney,
    I've been following your story for a while now but have never commented. For some reason you were on my mind all day and night yesterday. I don't know why, but I just want you to know that I'm thinking of you and your precious boy often, and you're in my heart. As a mother, I cannot imagine the pain you are going through seeing your baby boy fight so hard, but you are a brave, inspirational light for the rest of us to follow. I admire your grace so much, and I lift you up in my prayers.

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  132. Praying for PEACE! You are an amazing women and mother and I hope that you too will find comfort and peace. Thank you so much for sharing your incredible journey with us.

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  133. I'm just bawling! You and Tripp will be in our prayers. I will be thinking about his beautiful smile. Please know I'm sending so much love your way.

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  134. My heart is breaking for you and your sweet family. Thank you for sharing your life with so many people. Mostly, I thank you for your courage to boldly proclaim how great our God is to all of those who read your blog/subscribe to your FB page/etc.

    I just wanted to share two songs with you...I kinda love music and the Lord uses it much in my life to affirm His Word. 1. You Are For Me by Kari Jobe; http://youtu.be/_35gB76xV_Y and 2. Shadowfeet by Brooke Fraser; http://youtu.be/pTbogh5PO7M

    "When the world has fallen out from under me, I'll be found in You, still standing. You make all things new. "

    He will sustain you, Courtney. This I am sure of!

    Praying in BR.
    Michelle

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  135. Tears stream down my face, ones for heartbreak and ones for strength. The power you hold to know that you will see him again, whole and complete is faith at its finest. love from arizona

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  136. Tripp is an amazing, inspirational boy. I will pray for you all that peace will find him. I wish he could hold his Elmo, too! You have both taught me so much about love and helped me understand more about God and his work. God bless you and your beautiful boy.

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  137. My name is Michelle, and I have been following your story for about a year now. Tripp is beautiful, so special. I will never ever forget his drumming videos, and the courage and heart he showed. I will pray for peace for Tripp, and for you, too. I have a little angel boy, he is 3 and his name is Alex. I can see them, running laughing together. God speed, Tripp. You are SO loved.

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  138. I have a 2 year old who carries around a truck everywhere he goes, when you said Tripp couldn't hold his Elmo anymore it broke my heart. I'm praying for peace and comfort for your family, and most importantly for your little Hero.
    I admire you for following your mommy instincts and keeping Tripp at home in your arms. No one knows your child like you do, and there is no bond greater than that between a mommy and her boy.

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  139. My heart is absolutely breaking for you. Praying for peace for Tripp and for you as well. I wish I had the words to say to make you feel better but I know that I don't. I will just continue to lift you in prayer. I cannot wait for Tripp to be EB free and walking in the streets of gold with Jesus.

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  140. I have never posted but I have been following your blog for a while and it breaks my heart. But you are so right when its his time he will be healed and never have pain again. But I know your pain wont be over the loss will be so hard but you will see him again someday healed. Tripp is an inspiration to me and I have and will be praying for you and your family and Tripp that it will be peaceful. I think Tripp has changed a lot of lives even ones that have never met him. Also, you are an AMAZING mother you have been through so much pain and sorrow and hard work. I try to remember that when I complain about little things with my kids. I shouldn't that is nothing compared to your struggles.
    A caring stranger in Arkansas
    Carlene

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  141. Courtney,
    I have never posted before. But i have been following your blog for a while. I hope that you and Tripp both recieve the peace you deserve. You are an amazing woman and mother. God bless both of you, and may he give you comfort and more strength.

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  142. Praying for peace. Tripp really has done great things just by being alive. His story has truly changed my life!

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  143. I have no words! Just prayer lifting you guys up!

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  144. what a brave little man. Praying for him and your family!

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  145. What a beautiful darling! So special,and strong. You as his mother,is a gift to him.If there is anything I could give or do,I would! He will always make a mark on this world ,a beautiful imprint on everyone's hearts <3 Always in my thoughts and prayers!

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  146. What a beautiful darling! So special,and strong. You as his mother,is a gift to him.If there is anything I could give or do,I would! He will always make a mark on this world ,a beautiful imprint on everyone's hearts <3 Always on my thoughts and prayers!

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  147. God keeps His Promises. Prayers of Peace and Comfort.

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  148. praying for peace and comfort <3

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  149. Praying Courtney. I am putting a post on my blog and FB to elicit more prayer warriors.

    I am so glad to hear that Tripp is comfortable. This is so hard on you and your family but you are doing an amazing job.

    Jeremiah 29:11 NIV
    For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.

    Hang in there girl Jesus is always with you and I know in my heart that Jesus is holding Tripp and rocking him.

    Praying and praying,
    <><

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  150. Peace be with you, your family, and especially Tripp.
    Our sweet boy has fought so hard, for so long, and while I agonize for you, I also rejoice in the fact that his total peace and healing is near.
    God, please take him into Your arms quickly, and comfortably. Tripp has borne his cross with more strength and endurance than any other human being on earth could. Fill him with Your love, and show him what it means to be without pain.
    For this, we pray.
    Amen.

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  151. I've been reading your blog for a while, but I don't think I've ever posted. Watching and waiting is the hardest part. I cannot imagine watching and waiting where a child is concerned. He is a brave, sweet babe that belongs in the safest, softest arms heaven has to offer. I'm praying for both of you and your family. Tripp has made such an impact on so many lives in such a short time - and he has you and your faith and strength to make that happen. Good job, momma. We love Tripp!

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  152. Tripp is such a beautiful little man and he has the strongest and most beautiful mother. I pray that peace finds both you and Tripp and your family during this most difficult and sad time.

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  153. I just checked on you guys this morning--Tripp was on my mind. Came back and saw this update....praying so hard for your precious boy!!! Praise GOD for your faith and the promise of seeing Tripp again!

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  154. I pray for you, your family and your sweet little baby boy. I admire you. I think that you are the strongest mother in this world! And Tripp... Man, that little boy is strong! Hugs from Finland!!

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  155. Praying for peace for Tripp and comfort for you!! You are an incredibly strong woman and I have no words to describe Tripp and his bravery. He is truly an angel on earth! I know God is watching over him.

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  156. Praying for your peace. He is amazing and I can tell you how brave you are, yet I know you won't believe it. I lost a baby girl and everyone told me "you are so strong"....I know that God held me up every single day in the beginning and every day since then. He is our refuge and strength, blessings to you and your sweet baby boy.

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  157. Praying for PEACE - and strength and comfort. God bless all of you.

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  158. oh my goodness, I will be praying for him and for you! I know that God must be with him every moment whispering to him that He is always there for him and that He will be with you also. You are so amazing and strong

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  159. I can't help crying when I read this. Tripp is the strongest little boy I have ever heard about and you are an awesome mom. I will for sure pray for Tripp and you during these tuff days, weeks that lies in front of you. All we want is for Tripp to find peace and to be able to be the playful toddler he deservs to be. Loads of love to you guys <3

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    1. Praying for peace and comfort for sweet little Tripp. I'm so sorry for the acute grief you must be feeling. Please Jesus, peace, comfort, and healing for Tripp and his family. Amen.

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  160. Oh, momma. I don't know how you stay so strong. I check for updates every day. I had a feeling yesterday that something was different; that "no news (wasn't) good news."

    Please tell Tripp "thank you" for enduring all the trials that he has, and "thank you" for sharing his story. O hope he realizes how many lives he has touched. After a long, weary battle with PPD, I am able to go home every night and hug my babies and be thankful that they are healthy. I don't know if I would be where I am today without knowing Tripp. I don't know if my children would know the "mommy" that they do if I hadn't been able to follow his story.

    I hope that peace comes swiftly, quietly, and with minimal pain for both Tripp, and for you, Courtney.

    Love always,
    Jenn

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  161. You are an amazing Mommy and I have followed your blog for sometime now. You are and will continue to be in our thoughts & prayers. God bless you both.

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  162. Aw, my heart is hurting for you!! Such a strong, sweet boy!!! Praying for you and your little man!!! God bless!!

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  163. Your story is the sadist i have ever heard!Your family is in my prayers and as long as you all keep believing in the lord he will keep helping you through this.He will NEVER leave your side!That i can promise you!For his love is unconditional.I send you this with ALL my love. Diane

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  164. God Bless you both! I know that Tripp has battled this dreadful disease for so long and now his little body just has no more to give. I hope he finds peace soon. I think about you and your boy daily and pray that you both find peace. Remember God is with you and so is your blog family.

    Love from Wisconsin

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  165. Courtney, we pray for you and Tripp every night... And now we pray for peace for both of you. You both are amazing and strong. Tripp gets it from his mommy. We will continue to keep you both in our prayers. Sending lots of love!

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  166. Courtney:
    God sure knew what he was doing when he choose you to be Tripp's mom. Ever since I have started reading your story, I have seen nothing but the purest love that you have for your little boy. We pray for the both of you every night. I will continue to pray for peace for your family. And you are right Tripp is truly loved, and he is bless to have such a wonderful mother like you.

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  167. Courtney, you and little Trip are in my prayers. I pray that God gives Trip the peace that he desires and that God wraps His loving arms around you when you need Him most. You are an amazing mom and were blessed with an amazing son. Continue to hold onto the fact that one day you will be reunited and Trip will no longer be suffering. May God continue to give you guidance and may you find the peace that you are searching for. Much love and many prayers from Winston-Salem, NC.

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  168. Sending a million prayers for peace for Tripp and for your family.

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  169. Lord Jesus, I lift this little boy, this precious child of yours, for whom you weep, for the suffering he must endure in this earthly realm. Thank you Jesus that you have prepared for him a home in heaven, and that his mommy has the blessed peace and assurance of her place with him, and you, in your time. Give them comfort and peace, give this sweet boy peace and wrap your arms around his tired, aching body. We sing praise to your name that we have this faith, that his precious mommy has shared her faith in you with him, that he may know that comfort in these dark hours.

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  170. I am so sorry! Words just can not express how deeply sad I am for you. I will continue to lift you and Tripp up in prayer. I pray for peace and that God would give you strength and comfort you.

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  171. I do not have the words, but y'all have my prayers for peace for Tripp (and for mommy, too). You are amazing, Courtney. I know Tripp knows how blessed he is to have a mommy like you.

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  172. My heart breaks for you all... At the end of my daughter's short fight, she was very swollen- so much that it's almost unexplainable- and it was such an awful and heartbreaking thing to see. Peace is exactly what I wanted for her and I also pray that for your sweet boy. And for you.

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  173. Prayers to you. I wish there were something else I could do to comfort you and your little man <3

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  174. Lord, show this beautiful son of yours the way home. Be with him as he transitions from his mother's care into Yours. Give his mother peace and reassurance that he is preparing a home for them in Heaven and they will be reunited again.
    Tripp, you are an amazing little boy who have touched many lives. Go Home Brave Little Boy. Live in Peace.

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  175. I am praying for your family. God never gives us these problems, but he does use them to help us grow in faith. God also promised us healing, and sent his son to pay for our healing through his stripes. We know God doesn't lie, so let's focus on positivity and thank God for his healing and his promises, and not keep claiming the sickness. *hugs* You are a very strong woman, and he a strong little angel. God is good and he will get you both through this. Please keep us posted on the little guy's progress, I am asking everyone I know to send prayers your way. If God can raise the dead, heal the sick, make the blind to see, etc, awesomeness etc, he can give your son his health :)

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  176. Courtney & Family,
    There are no words that will make this easier. There is no way to take Tripp's burden. Surely if there were a way, you would have a list a mile long of people signing up to help this precious angel. His fight is incredible. His strength, your strength, determination, selflessness, compassion, and faith speaks volumes about what an amazing God we serve.

    I've BEEN praying for PEACE.

    There is a song called "Peace Be Still," by Rev. James Cleveland, that soothes the soul. The song speaks of ravenous waters, grief, and distress that can not be contained. Then there is a call to God for help. They ask the Master if He sees them and will allow them to perish. God says, "Peace be still" and all is calm.

    Peace will be still, in God's time. When Tripp receives peace, I hope that you know that God sees, He knows, and He will never leave you.

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  177. I just discovered your blog through my cousin. I am so sorry for what Tripp and you are going through. I couldn't help but cry while reading this post. YOu are right...he will be at peace when he goes to be with God and you will be with him again one day. He is an amazing little boy and you are an amazing mother. You all are in my thoughts and prayers. May God be with you and comfort you during this difficult time.
    Gina S.

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  178. Praying for Tripp, you and your family! Such a strong, little boy.

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  179. I will continue to pray for your entire family - and especially sweet Tripp - to be covered by our Lord with a soft blanket of peace & comfort as you endure what is and what will be. You both are so loved. Courtney - the strongest mom on the planet - and Tripp - the strongest boy in the universe!! God Bless you!

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  180. Tonight (here in Sweden) i sent outside and looked at the stars. I was hoping for a star to fall so that i could make a wish for Tripp to give him peace and comfort. No star fell :'( so i tried to project all my love and peace into Tripps mind. Somehow i just knew in my heart that things are worse with him. A little later i checked your blog and found this post... My husband and i read it in bed, we cried and prayed for Tripp. He is truly loved by all of us in the Seger family. God bless this little boy cause he is a very special boy. A boy too good for this world. Love and butterflykisses to all of you from the Seger's

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  181. You are such an inspiration of what it means to be a mother
    God knew what he was doing when he sent Tripp to you.
    Takes a special kind of woman and he obviously saw that in you.
    Tripps story.. Has touch so many lives.. In the short Span he has been on earth. Isn't that what we are all here to do??
    Your son is an inspiration to all of us. Thank you for being such a great mom and sharing your journey good and bad with all of us.
    I will continue to pray for you, Tripp and your family.. To meet your needs and for Gods will to be done.

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  182. Your and Tripp's strength and courage is so incredible. Tripp's journey has inspired and touched the heart of so many people. Prayers with the both of you and your family.

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  183. I always pray for Tripp first. I will be praying for peace for Tripp. He really is the strongest little man I know of! He is also the most special little guy I know of! And you Courtney are the most amazing mom I have ever seen! And your family is also extraordinary. I hope Tripp is able to stay nice and calm. Tripp...you are amazing little drummer boy..just amazing!

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  184. Praying for peace for Tripp and strength for you, dear Courtney .... Tripp's mission is being well accomplished...we're all so proud of you both and everything you've brought into our lives! ... I am praying today for God to be as gentle now as you are with Tripp ...

    Warm HUgs
    Thais

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  185. Praying for Peace for trip, and for comfort and healing in any form. Much love and prayers sent to both him and you.

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  186. Praying for the Lord's peace and comfort to surround your family in ways you've never experienced. I think it is extremely clear where Tripp gets his strength...straight from his Momma!

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  187. Thank you for sharing your story. You are so brave. May God comfort you through the last days and throughout the rest of your lives until you see your son again.

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  188. This is heartbreaking and yet you write about it so beautifully. Your words for Tripp are amazing.
    You and Tripp have the most incredible strength. Keep telling him how many lives he has touched and give him love from all over the world.
    God brings peace that passes all understanding. I will be praying for that peace for Tripp, both mentally and physically, and that as soon as God is ready he will bring him everlasting peace. And I will be praying for you and your family (your parents seem wonderful and strong too) - that God will give you peace and comfort through this most difficult time.
    With love, Laura (in England)

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  189. i have no words. Just tears. i've been following from afar for a long time, and you are such a beautiful mom. You're the kind of mom I'd love to be. we're prsaying here.
    God bless!

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  190. What a precious post, so much love is shown from what you write about your sweet baby boy. Heaven will be all the richer when he arrives. Praying for peace, and for comfort for both of you.

    Blessings, Grace

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  191. Oh, I don't even know what to say. Huge hugs to you for being the best mother a baby could ever ask for, YOU have made Tripp's life wonderful, YOU are the reason he wants to stick around. What a brave baby boy. Continuing to pray for peace for you and Tripp, and all who love him.

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