Monday, November 2, 2009

Home SWEET Home...

We are HOME... Finally.  And it's never felt so good.  The little things you appreciate... like your OWN bed instead of a brick hard ICU couch.  I have never loved our little house so much before.  Tripp is doing amazing.  I know I've said this before, but I could say it a million times... he is our little miracle baby.  I don't know how he does it.  I was so worried about getting "my baby" back.  And now, I not only have my baby back, but he's happier than before.. smiling all the time.  The only thing that stinks is that I can't hear him cooing or don't know if he's laughing out loud or not.  We have a follow up appointment with Dr. Rodriguez (ENT) in 3 weeks and she is going to get speech to evaluate Tripp for the speaking valve.  Which is a little device that goes on the end of his trach and will let him breathe through the trach and out his mouth, so we can hear him.  He will have to "learn" how to use it though, so speech will need to make sure he can move enough air to be able to use it.  

Tripp's first Halloween was spent in the hospital... didn't see that one coming.  Daddy couldn't stand not to have him dressed up, so he went to WalMart and got him a monkey costume... because I thought the skunk was pretty cruel.  We had to take him on a "GO" trip before we could leave the hospital, so we would be prepared to use all of our own equipment when we got home.  So we took him down to the hotel that is in the hospital.  It had a big atrium with a little water fountain.  He was a good boy.  We got to practice using our portable suction machine out and about.  It was nice to get to take him somewhere just Randy and I, even though we only stayed about 30 minutes, because Randy was ready to get back so we could go home.  Here's our little monkey...

I'm home, I 'm home.... Can we stay for a while??

All smiles.

If you're wondering how I am doing... I think I'm okay.  I was pretty stressed out yesterday when we got home and I had to set up all of his equipment, and find a spot for all of his new supplies.  But we ended up having a pretty good night.  Hopefully each day will get better and I will get as comfortable with his trach as I am with the skin and the G-tube.  I am doing a lot better emotionally than I thought I would be.  I think it's because he has been such a good baby and smiling all the time.  I'm sure that helps.  Please say some prayers that it stays this way.  God Bless all of you who follow us and pray for us.  We are so blessed.


  1. Thanks for sharing your journey with us...part of Tripp's miracle is how many lives he is touching...He and all of you are constantly in my thoughts and prayers...Love Aunt Sharon

  2. Court tell your mom her big sister loves her and she is always in my thoughts and prayers, and that I truly admire her courage.

  3. I am so thankful that you guys are home and everyone is doing great!! I have been following you on caringbridge and just made it to your blog.

    Tripp is such a cutie - and so happy!! what a miracle!

    RDEB - 35

  4. I'm so happy for you all to be home. Home is such a comforting place! I pray that things go well. Tripp looks so good!

  5. I've been following your blog and Tripp's Caring Bridge page for a while, and have never introduced myself.

    We are distantly related (I think!); my mom's cousin, Andree MacDonald, was the one who introduced me to your site.

    My son, Anthony, had a liver transplant when he was three months old (almost six years ago now!), so I am no stranger to the medical world.

    I just wanted to say, "Hi!" and let you know that there are even more folks out there keeping your family in our prayers.

  6. Tripp being home and smiling the way he is means our prayers ARE being answered! We will continue to pray!

  7. He's so beautiful. Bless you and your beautiful family!

  8. Just wanted to let you know that I continue to follow Tripp's progress both through your blog and your Caring Bridge Site. He is so beautiful!!! You guys are amazingly strong too. Hope it is ok, but I featured Tripp today on my blog: If any of the information is wrong or offends you, please let me know and I will change it. Take care and so happy to add others to your prayer warrior team! Carol